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Dilation's Again and Again and Again and Again...
Esophagectomy was December 10, 2010. Recovery and all was pretty good until October 2012 when swallowing difficulties resulted in my first dilation. Scar tissue had decreased opening to about 10mm so I went thru 4 dilation's in 5 weeks eventually improving swallowing. Then in January 2013 symptoms began to return and I…
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Experience with Mitomycin
Has anyone had experience with the chemo drug mitomycin. Does anyone know about it's effectiveness with EC, and it's side effects. Thank you!
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Larry is back in hospital
After a long and difficult weekend Larry finally agreed to go to the ER this morning. THANK GOD! He has several blood clots in his right lung. So it will be a few days of blood thinners. Here we go again!
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A question please Paul!
Hello Paul, I hope you are still doing well. Please are you able to give us an update on Lorretta. I think of William and Lorretta often and so hope that they are doing ok and managing to keep strong throughout this new challenge. So many of us owe them a great deal and I know that everyone here keeps them in their…
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1 year so far.....whats next?
its been one year since my surgery i had stage three did the two rounds of chemo and the surgery which wascextremely hard because after it they found a leak and had to go back in all with in a 24hr period i spent 21 days in icu got discharged did follow up chemo and last month all my scans came back negative im fully…
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Recovery from Surgery
Hello all, I have been a lurker for some time now and its great to see everyone being so helpful and supportive in the sitituations we are all facing. My dad had MIE back on March 21, 2013. Three weeks after his surgery, he had an endocopy and he was given the okay to drink water (he is on a j-tube) and did pretty okay.…
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Diagnosed with recurrence
I was just diagnosed with a recurrent esophageal cancer. The tumor is a bit lower than the original site. I am not a candidate for surgery because of poor lung function. Will be starting chemo again next week. Last time was 9/2011 with 5 weeks of chemo and 27 successive radiation treatments. The radiation was the worst and…
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Dilated again
Went to the surgeon again today for another dilation. He did probably 8 times. Larrys voice came back when he was finished. Dr said it is a spasm from nerve for swallowing and voice. He will get dilated again next week. At that time he will show Larry how to do it at home and said he will most likely have to do it almost…
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Hubby home have questions
After 9 days we are home. Ivor Lewis is no walk in the park. He has a lot of swelling in legs and feet. This started before we left the hospital. trying not to be concerned. Also dressing over chest tube holes leaks a lot. Again doctors knew this as well. Again we are still worried. Anyone else have these issues. Other…
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Calling in Hospice
Exactly 5 months to the day when we were told of my wife's cancer, we have been told they can no longer treat her. Her abdomen started to swell again, and they did an ultra sound. It showed the cancer has taken over most everywhere. We had just started round five of Chemo on Monday and Tuesday. They did let us do infusion…
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Dad just diagnosed with Stage IV
Hi everyone. My dad was diagnosed with stage IV this past friday. We were just told that he has mets to his liver as well. We want to get started with chemo as soon as possible. Had our first consult with an oncologist today and was not impressed with the guy at all. Definitely did not give us any hope. Said they were…
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I don't feel sick
I was just diagnosed with stage IV esophageal cancer and start radiation and chemo next week. My question is how can I be so sick and not feel sick? My only problem is the tumor in my esophagus that prevents solid food from going down. I can do liquids just fine. I'm not quite understanding this whole thing.
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One Year
It’s finally spring here in the Midwest. I hope to enjoy it a little more this year than last year. One year ago today, we learned that my husband Paul had stage 3 esophageal cancer. In May and June, he received 28 rounds of radiation and 5 weekly chemotherapy treatments. At that point, he wasn’t eating anything by mouth,…
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Paul Adams, can I pick your brain?
Hello Paul, My dad has now had 6 rounds of chemo over the last 12 weeks. He is treated every other week with 5-FU and Oxaliplatin. Background, just in case you hadn't read it anywhere, he is stage 4, tumor at the junction...mets to liver and multiple lymph nodes, surgery not an option. Next week he is going for his first…