Esophageal Cancer
Discussion List
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Another newbie
Have decided to post after lurking for a couple of weeks on a site which I never expected to have to use, so here goes! My husband was diagnosed with esophageal cancer a number of weeks ago. We are still in the staging process, but we know it is located in the lower part of the esophageous with some extension into the…
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Colonoscopy after Esophagectomy
Has anyone had to have a colonoscopy after having an esophagectomy? Any suggestions on how to get through the gallon of liquid prep would be greatly appreciated. JoAnn
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Stage IV....
Been staking you all for over a year and a half just filled out my about me page, and decided to join I'n discussions due to the wonderful support you all give looking forward to discussions, will tell you more about myself tomorrow way to late now..lol
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Dave update
Hi everyone, I am so sorry that I have not posted here in awhile. I’ve only had the energy to post on the FB EC page lately. Dave continues to have post-op complications. Everything that could go wrong, has gone wrong. I think I told everyone about the code 2 weeks ago, and the fact that the colon they fashioned into a new…
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Portacath problems
Hi pat here again. We just ended week one with my husband's chemo. Problems all week . Although the portacath was put in a few weeks ago the first treatment was Monday with a 2 hour drip of oxaliplatin Immediately after the 24/7 pump with 5fu was started and 22 hours later it was leaking badly. The pump was stopped and…
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Regland
Because of the dehydration and vomiting that put me in hospital for six days, my oncologist added regland into my nausea pill mix. I don't think it's a long term addition but if I remember, others have had problems with this drug. Should I be concerned or what should I be looking for?
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cancer has spread
CT scan results....cancer has spread throughout the whole body, the liver lymph nodes stomach everywhere
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For Jerry
You might be interested in listening to these doctors. These lectures have been super helpful in our fight. Some of these doctors are responsible for the health of my Dad. They are all about alternative, complimentary treatment. http://www.CancerWorldSummit.com/ I believe the lectures begin on Halloween. I'll definitely be…
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Cat Scan Results Back
I have been member for a few months just reading and getting advice. My husband was diagnosed in March with stage 4b adenocarcinoma. He was given 3-5 months without treatment. He had 10 sessions of radiation and 3 rounds of chemo (ECX) then another scan, his oncologist was amazed how well he responded. We went on a road…
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Whey protein
Even though they say Dale is in remission, he still has a very hard time eating enough to get his daily protein requirement. We found a way to make the whey protein a little more appetizing. 1.5 scoops of whey protein, 1/3 pkg of dark chocolate instant pudding mix, 1/2 cup milk. Blended together ( I use the magic bullet).…
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Has anyone had reactions so fast to treatment?
Larry started treatment at Karmanos. 8 Hour infusion Cistplatin and 96 hour 5FU. He started last Tuesday along with radiation. He will do 3 weeks off, 4 cycles. Then after recovery he will go to U of M, Dr Orringer for surgery. He is already having so many side effects. Nausea, exhausted, mouth sores, and voice is fading.…
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Eating in general
Ok while not an old pro I’ve been dealing with eating conundrums. Ive had the esophgetcomy Can someone give me an idea how much I should be able to eat at a sitting after 4 months? For example to night I was able to get down maybe an oz of meat, a few tablespoons of mashed potatoes and a few bites of fresh fruit. (I’m in…
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Esophagectomy
Glad I found this site and hope someone has experienced some of the same problems I had and can help me with advice or a pep talk at least. :) I was diagnosed with esophageal cancer in December of 2011. Had chemo / radiation and then a esophagectomy on May 1st of 2012. I had a very rough recovery, pneumonia twice and spent…
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Another newly diagnosed
Hello, my husband has been diagnosed with T3 N2 MO EC. We have just started treatment with the university of Penn with daily Proton Therapy and 5FUin a 24/7 pump with oxaliplatin in an IV every two week for 2 hours. Surgery in Jan if all goes well.
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Question for my dad
Hello everyone. My dad had Esophageal Cancer Surgery end of July 2012. He had his surgery at Shands in Gainesville by a great doctor. He was in great hands and I thank god that we caught it and he was able to have the surgery! Since his surgery he has lost (to date) 65 pounds. This is within 3 months. He is not eating at…
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Paralyzed vocal cord
Wonder if anyone else had this problem. I had transhiatai esophgectomy on July 20. Upon waking up I couldn't talk. Tests and evaluations found that my left vocal cord had zero functio. They say the nerve controlling was cut or bruised. Surgeon claims all work was done on other side of throat and if any problems he would…
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CT scan
Tomorrow JR will have another CT scan. He has been having more swelling than usual in his legs and abdomen. He has been on Lasix but it doesn't seem to be working like it was. He has had blood transfusions but not working so he has had two treatments of iron infusions. His blood will be checked tomorrow as well to see how…
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Stage IV, with new found tumor in brain (HER2 as well)
Posting for another. If anyone has had similar can they respond, thx. My husband was diagnosised with EC stage IV in Feb. 2012. He has gone through 6weeks of radiation and 26weeks of chemo. He tested positive for HER2 protein and has been on Herceptin also. First Pet scan three months ago came back clean no cancer. We were…
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EFR444 - We wanted to welcome you to our EC family
EFR444, Welcome to our EC support family. We are sorry you find us under these difficult circumstances for your Dad and your family. We wanted to move you to a new posting topic so you would not get lost in another thread. On Sun, 10/21/2012 - 2:10am you posted: My father was just diagnosed with T3N3 EC My father was just…
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PKolpien - Welcome to our little EC family
Trish, We wanted to move your post to a new thread to insure you did not get lost in the middle of a long thread of posts. On Sun, 10/21/2012 - 12:13am you posted: Still in shock My 50 yr old husband was diagnosed two days ago with Stage IV EC...we are still reeling from the diagnosis. I hope you and I can find the answers…
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Dave update
I have not posted here lately, and I apologize. I just wanted to let those of you not on the FB page or Esophageal Cancer fighters site know what is up with Dave. He had the THE on Monday October 8th. Came out of the gate running, was feeling wonderful, and we thought we had hit a home run. Days 3 and 4 post op we started…
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Pressure following surgery?
My dad had a total gastrectomy and partial esophagectomy at the beginning of August. He was in the hospital for ten days and then came home for a few days before he came down with pneumonia and they found a leak between his esophagus and small intestine. He was in the hospital for another 3 weeks and finally came home…
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blood transfusions not working, what does this mean??
Hey all, I'm sure many of you know about needing blood transfusions. My brother Jr. use to have blood transfusions every so often because of the chemo but now that he is off of chemo he seems to be needing them even more and they are not working like they use to. He is still weak and so tomorrow he goes for iron. Do they…
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What next? Insurance Co. dropped me.
Besides having EC, dealing with an insurance co. is bull crap!! I was on a short term medical insurance policy until I found work. Five days after effective date, I started having swallowing issues...went to Dr. put on meds then went for scope 20 days later. Then DX 4-26. Insurance Co. denied claims initially stating I was…
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scans and patience
At our oncology visit earlier this week, my husband relayed that every meal has ended with hiccups, feeling of stuckness, burping and often vomiting. He is stage 4 and on 5fu and herceptin. He did not have the above problems prior to four weeks ago, so we are feeling that it is not post-radiation problems. His h@h also…
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Hiccups???
Anyone out there have experience with getting rid of the hiccups. Larry has had them for nearly 20 hours now. They gave him prescription for Baclofen. He has taken only 2 doses so far so maybe it will take time to kick in. Just wondering if anyone else has experienced this and if you found anything helpful. Thanks
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help
hello i am from the uk. my mum has recently been diagnosed with oesophageal cancer. She had previously been having difficulty in eating and consistent pain. hence a recent endoscopy highlighted a large tumour on her gullet. The national health oncologist tells us its terminal and she refuses to offer treatment saying that…
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Update on Dave
Finally some good news. Just got the pathology report back, and there was just a tiny little bit of cancer left in the removed esophagus. This means that he had almost total response to the chemo and radiation treatments. No cancer was found in the lymph nodes, and that is good news. Medical oncologist will decide if he…
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High ALK PHOS Level
Mine was 172 today after labs. Not sure what it means, but have to watch it. Onco didn't seem concerned. Thoughts?? Jan
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From Candace, Jimbo's daughter
Dad passed away last night. We are very sad, but at peace because he no longer has to suffer. He passed away peacefully at the hospice center with his family surrounding him. Thank you and everyone on the board for being so helpful and such an inspiration to him.