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        <title>In Loving Memory — Cancer Survivors Network</title>
        <link>https://csn.cancer.org/</link>
        <pubDate>Sat, 11 Apr 2026 17:49:14 +0000</pubDate>
        <language>en</language>
            <description>In Loving Memory — Cancer Survivors Network</description>
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        <title>MISSING MOMMY DEAR....</title>
        <link>https://csn.cancer.org/discussion/318350/missing-mommy-dear</link>
        <pubDate>Wed, 24 Oct 2018 00:08:34 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>flava106</dc:creator>
        <guid isPermaLink="false">318350@/discussions</guid>
        <description><![CDATA[<p>Hi guys, thnaks for reading. So...my mom lost her battle to breast cancer this October 11th. She's been fighting since May of 2016 and had initally went into remission for 2 years. In May of 2018, she was diagnosed with metastatic breast cancer and it had spread to her brain and other parts of her body. The doctors were able to remove the tumor from her brain successfully; however, thereafter she experienced seizures during the healing period.</p>
<p>The seizures put her back into the hospital 4 times...the last leading to her departure. Since her passing, it's been hell emotionally for my brother and i, my whole family actually. I feel like i'm in a waking nightmare!&nbsp;<img src="https://csn.cancer.org/sites/all/libraries/tinymce/jscripts/tiny_mce/plugins/emotions/img/smiley-yell.gif" alt="Yell" title="Yell" border="0" />&nbsp;I notice sleep and bedtime is the worst. I have some trouble falling asleep, then when i do, i wake every half hour to couple of hours. i was experiencing something where i felt as if somehting was shaking me, like holding onto my arms while I was asleep a few nights ago. i was terrified. Then I heard my Mom's voice; she called my name and i awoke suddenly and all was fine. I prayed to God that would not occur again, and it has not since.</p>
<p>I've felt pressure on the end of my bed as if someone is sitting, so I know she visited me. She also called the house phone the day after she passed. I beleive she was just assuring me that she was ok and had made it over fine. Do you guys believe this? Has anyone else had visitation experiences from their departed loved ones? I feel like i'm numb in a sense now emotionally, my brain is trying to process it all still. any advice, tips, etc appreaciated :)&nbsp;</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
<p>&nbsp;</p>
<p>Blessings</p>
<p>Lisa&nbsp;</p>]]>
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    <item>
        <title>DPD Enzyme Deficiency when taking Capecitabine/Xeloda or 5-FU</title>
        <link>https://csn.cancer.org/discussion/319040/dpd-enzyme-deficiency-when-taking-capecitabine-xeloda-or-5-fu</link>
        <pubDate>Sat, 16 Mar 2019 05:53:50 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>joannemci</dc:creator>
        <guid isPermaLink="false">319040@/discussions</guid>
        <description><![CDATA[<p>My wonderful husband of 51 years died on December 12, 2018, after taking Capecitabine for only 10 days.&nbsp; He was diagnosed in July of 2018 with Bile Duct Cancer, had a successful Whipple surgery and recovery, and was pronounced cancer free by his radiation oncologist (his cancer was Stage 1).&nbsp; His oncologist believed that he needed a course of adjuvant chemo, and prescribed Capecitabine.&nbsp; We were not aware of the early-onset symptoms of a DPD Enzyme Deficiency, critical to metabolize the chemo, and by the time the doctors recognized his symptoms in the first hospital admission, he was beyond the 96-hour window for administering the antidote, uridine triacetate (Vistogard).&nbsp; He had been treated for each individual symptom (body rash, mouth blisters, diarrhea, vomiting) and not for the total systemic breakdown.&nbsp; Most people are not aware of a DPD enzyme deficiency and testing should be mandatory before starting Capceitabine, Xeloda or 5-FU.&nbsp; It is no longer considered a rare or unexpected occurrence.&nbsp; Furthermore, oncology nurses, ER staff, and especially the oncologist need to be aware of these early-onset symptoms and start the antidote within the 96-hour window.&nbsp; His death was preventable.&nbsp; Our family is heartbroken.<img src="/sites/default/files/u298246/SANTORINI%20PICTURE.jpg" width="800" height="600" alt="image" /></p>]]>
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        <title>I miss my mom it&#39;s been 2 months and I am having a harder time now than when she passed away :((</title>
        <link>https://csn.cancer.org/discussion/236194/i-miss-my-mom-its-been-2-months-and-i-am-having-a-harder-time-now-than-when-she-passed-away</link>
        <pubDate>Sat, 25 Feb 2012 02:54:29 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>teenadee</dc:creator>
        <guid isPermaLink="false">236194@/discussions</guid>
        <description><![CDATA[I am just so sad, my head hurts, my heart aches, I miss her so much.  The pain is not getting easier, it's getting harder.  I cannot stop thinking about her every minute of every day.  I just don't know how to cope.]]>
        </description>
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        <title>My sweet Auntie Lou Lou</title>
        <link>https://csn.cancer.org/discussion/316401/my-sweet-auntie-lou-lou</link>
        <pubDate>Tue, 22 May 2018 21:31:14 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>rosebudlisa62</dc:creator>
        <guid isPermaLink="false">316401@/discussions</guid>
        <description><![CDATA[<p>My dear Aunt Lou passed away from complications of lung cancer in July 2015. I think of her so often. Life just hasn't been the same without her in it. I know she is in heaven and not in pain and that's what gets me through. I know I will see her again one day.&nbsp; I feel guilty at times because about a month before her death, I got mad at her for needing me so much. :(&nbsp; How selfish was I? My Mom and I took turns staying with her at her place and caring for her. She ended up getting very ill and had to be hospitalized. She spent her last few weeks in an assisted living facility because she was so weak. She was trying so very hard to get her strength back so she could take another Chemo treatment. It just saddens me so much to think of what she went through at the end of her life. Now both my Mom and I wish we would have brought her home and let her be in her own&nbsp; place. :(&nbsp; I love you, Aunt Lou. I'm sorry.</p>]]>
        </description>
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    <item>
        <title>Life with cancer</title>
        <link>https://csn.cancer.org/discussion/259252/life-with-cancer</link>
        <pubDate>Wed, 22 May 2013 22:34:47 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>AngelaG</dc:creator>
        <guid isPermaLink="false">259252@/discussions</guid>
        <description><![CDATA[<p>A lifelong friend of mine, Christopher Granger, has a blog called "The Bull Pen" and on it he is posting some very heartfelt memories of growing up as a child whose Mother was battling cancer. From the age of three through eighteen he knew no other life. If anyone would like to take a look please visit - <a rel="nofollow" href="http://cwgrange.blogspot.com/">http://cwgrange.blogspot.com/</a> -&nbsp; and read his Living with Cancer posts. I think you might enjoy there honesty. Thank you :-)</p>]]>
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        <title>My Father</title>
        <link>https://csn.cancer.org/discussion/315109/my-father</link>
        <pubDate>Fri, 23 Feb 2018 06:07:57 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>saltycandy13</dc:creator>
        <guid isPermaLink="false">315109@/discussions</guid>
        <description><![CDATA[<p>Dear Father:&nbsp; It's been 15 years but it seems like yesterday.&nbsp; You died on Christmas morning, 2002.&nbsp; You always told me that when you die, "you hurt the people you leave behind."&nbsp; So true.&nbsp; But of course, not intentionally.&nbsp; It was snowing and you just sat there in your chair and left us without warning.</p>
<p>All I knew is that you didn't feel well for about 4 days and you didn't want to go to the doctor or hospital.&nbsp; You died on your own terms.</p>
<p>I visit you at White Haven Memorial Park.&nbsp; You are right where you wanted to be.&nbsp; The crypt by the door.</p>
<p>Till we meet again.&nbsp; I will see you later.</p>
<p>&nbsp;</p>
<p>Samuel R Cariola &nbsp; May 7, 1913 - December 25, 2002</p>
<p>&nbsp;</p>
<p>Love,</p>
<p>Karen</p>]]>
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    <item>
        <title>Traditions- death anniversary.....</title>
        <link>https://csn.cancer.org/discussion/314354/traditions-death-anniversary</link>
        <pubDate>Fri, 12 Jan 2018 14:32:15 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>emilyishbia</dc:creator>
        <guid isPermaLink="false">314354@/discussions</guid>
        <description><![CDATA[<div>Why am I making this so complicated? &nbsp;God it sounded so simple....</div>
<div>&nbsp;</div>
<div>I wanted to do something special each year in memory of my mother. &nbsp;But I wanted it to be as special as she was. &nbsp;Something so amazing. &nbsp;So the whole world would know exactly what it lost when she died. &nbsp;Maybe a walk in her name with millions of people, or a school named after her. &nbsp;Perhaps a&nbsp;hospital with her initials on it. &nbsp;</div>
<div>&nbsp;</div>
<div>But when January 13th circled around that first year I hadn't found a way to do any of those things. &nbsp;So you know what happened.....Instead her memory stayed stuck inside my brain violently banging&nbsp;around needing a way to get out. &nbsp;I couldn't even whisper her name outloud without falling to pieces. &nbsp;I was consumed with sadness daily&nbsp;still so raw from losing her and now to top it off I added&nbsp;disappointment&nbsp;with myself for not doing something enormous in her honor. &nbsp;So what did I do? &nbsp;I am going to tell you but a little&nbsp;background first.</div>
<div>&nbsp;</div>
<div>My mom, Linda Beatrice Clarke was born April 20, 1950.&nbsp;&nbsp; She&nbsp;loved to paint. &nbsp;She got her degree in art education. &nbsp;When I was growing up she taught at the local Naperville park district&nbsp;referred to as the Barn for any Naperville folks reading this. &nbsp;&nbsp;She taught pre-K arts and craft classes and also introduction to painting with adults. &nbsp;She loved it. &nbsp;We always had mounds of construction paper, feathers, markers, and glue at my house. &nbsp;In the evening she would be prepping for her preschool classes making the basics for hand puppets or whatever. &nbsp;On days I would stay home sick from school I would go and hide out in the prep room while she taught her classes at the barn. &nbsp;I loved watching her and the kids in her class. &nbsp;</div>
<div>&nbsp;</div>
<div>Growing up I loved doing random crafts with her. &nbsp;In the days before Pinterest she was an expert in creative kid projects whether it be a&nbsp;popsicle stick house, lunch bag puppets, or puffy paint. &nbsp;We did it all&nbsp;but as I got older into my teenage years the&nbsp;only art I really connected with was photography which didn't involve a paintbrush or scissors so I wasn't so sure it was even art at the time. &nbsp;</div>
<div>&nbsp;</div>
<div>After the first two anniversaries on January 13th of my mom's death passed and I did nothing&nbsp;outside my own mind to observe it. &nbsp;What exactly does that mean? &nbsp;January 13th was&nbsp;day filled with racing thoughts of&nbsp;anger and sadness&nbsp;mixed with&nbsp;a million of my own tears. &nbsp;By days end I felt depleted and hoping that January 14thwould&nbsp;&nbsp;be a better day. &nbsp;After two years of feeling awful&nbsp;I decided the&nbsp;the next year&nbsp;would have to be different. &nbsp;</div>
<div>&nbsp;</div>
<div>Another year passed and this time the&nbsp;night before I had a plan. &nbsp;I would walk&nbsp;around town taking photos of whatever looked interesting to me. &nbsp;My mom loved art so I would do "art" in her honor. &nbsp;The night before on January 12th the sky opened up and it&nbsp;rained which is unusual in a Michigan winter. &nbsp;But the temperature dropped quickly after the rainstorm and when I woke in the morning everything had turned to ice crystals. &nbsp;It was stunning. &nbsp;What is even more interesting is it has now happened twice on January 12th. &nbsp;Everything looked gorgeous that morning coated in ice. &nbsp;I couldn't take a bad picture if I tried. &nbsp;Fun fact: &nbsp;in my last house I had three large photos hanging when you walked up to the second floor. &nbsp;Two of those photos the objects were coated in ice, they were from that first morning that I went out on January 13th.</div>
<div>&nbsp;</div>
<div>As time has gone on I have been challenged to think of ways to include my children in a tradition. &nbsp;So again I stopped doing anything because I couldn't think of something special enough for my family to do with me. &nbsp;I tried one year doing arts and crafts with my kids&nbsp;but it just felt forced. &nbsp;Then my therapist said why don't you just light a candle. &nbsp;My instinct was "because that isn't special and unique enough." &nbsp;However I thought more about it and decided it was better than nothing and to give it a try. &nbsp;I went to the mall and picked out what I thought was great smelling candle. &nbsp;I told myself it doesn't have to be perfect. &nbsp;It is the idea of bringing attention to my mom on this day. &nbsp;If I wait for finding the perfect candle with the best scent then again I will be stopped in my tracks because nothing will ever be good enough.&nbsp;</div>
<div>&nbsp;</div>
<div>So I found one I liked. &nbsp;You know what on January 13th&nbsp;I lit&nbsp;that candle in the morning with my kids and I decided I would tell them a fun story about my mom&nbsp;as part of the tradition. &nbsp;I did the same exact thing on April 20th her birthday. &nbsp;You know what. &nbsp;I loved it. &nbsp;I have done it for two years now. &nbsp; Is it as enormous and community wide impactful as I originally wanted and needed it to be?&nbsp; No not to the community but in my house it is special. &nbsp;In my heart it is impactful. &nbsp;My children get to learn something fun about my mom and their own history that day. &nbsp;It opens up the discussion about countless topics. &nbsp;So in search for a whale of a tradition I found a tiny Nemo sized one that is just right for us. &nbsp;It is everything I need it to be. &nbsp;</div>
<div>&nbsp;</div>
<div>Do you have a tradition to remember a loved one? &nbsp;I would love to hear what you do. &nbsp;</div>
<div>&nbsp;</div>
<div>If you like this blog I have dozens of others that I post for free to help people going through something huge in their life. &nbsp;All blogs reflect the blunt uplifting tone I now feel about everythign I have been thorugh. &nbsp;www.emilyishbiamodeling.com/blog</div>
<div>&nbsp;</div>
<div>&nbsp;</div>
<div>&nbsp;</div>
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<div>&nbsp;</div>
<div>&nbsp;</div>
<p>&nbsp;</p>]]>
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        <title>15 years later, how I found peace with what was</title>
        <link>https://csn.cancer.org/discussion/314353/15-years-later-how-i-found-peace-with-what-was</link>
        <pubDate>Fri, 12 Jan 2018 14:29:36 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>emilyishbia</dc:creator>
        <guid isPermaLink="false">314353@/discussions</guid>
        <description><![CDATA[<div>January 13, 2003 is a day that will go down in history engraved in my heart forever. &nbsp;It is the day my mom lost her battle with cancer. &nbsp;A battle that started in 1984. &nbsp;A battle that has shaped my life and outlook on everything that happens to me and others. &nbsp;</div>
<div>
<p>&nbsp;</p>
<div>After 15 years without my mom I never could have imagined that the biggest feeling I have today is&nbsp;gratitude for the 22 years I got to have with her. &nbsp;After years of struggling to cope with her sickness today I recognize&nbsp;that her battle has made me appreciate so much more than I ever could imagine in my own life. &nbsp;It is interesting if you read my "Fertility" blog it has the exact same message. &nbsp;Nobody is entitled to anything. &nbsp;We are lucky for anything and everyone we have in our lives. &nbsp;If I could go back in time and take the cancer out of her body I would in a blink but I can't. &nbsp;After years of battling these thoughts&nbsp;I have found peace with what was and what is. &nbsp;Does it mean I never get sad and never miss her?&nbsp; Absolutely not. &nbsp;But it is not all the time anymore. &nbsp; When I do think of her the memory can pop in and out of my brain for a second. &nbsp;I don't hold onto the feeling and never let go like I used to. &nbsp;Do I wish she could meet her grandchildren, play with them, get to love them?&nbsp; 100% of course I do. &nbsp;But the cancer didn't have my family raise our hands and vote whether or not it should enter our lives. &nbsp;It did to us what it does to so many families.</div>
<p>&nbsp;</p>
<div>I wish I could say it was a short journey to find peace with the cancer that aggressively attacked her. &nbsp;It was anything but short. &nbsp;It was filled with ungodly amounts of fear and anxiety. &nbsp;Not just during the years she was alive but after she passed. &nbsp;</div>
<p>&nbsp;</p>
<div>One would think the fear during her living years is expected. &nbsp;Fear of how many more months will we get with her. &nbsp;Fear of the unknown. &nbsp;Fear of will it spread more. &nbsp;Fear what if the chemo doesn't work. &nbsp;Fear of how will I live without the person who loves me more than anything.</div>
<p>&nbsp;</p>
<div>But the fear after she passed consumed my life beyond anything I could have anticipated. &nbsp;Until you have lost such a significant human in your life its hard to explain or even comprehend what that hole in your heart feels like. &nbsp;To NEVER get to see them, call them, talk to them, share some good news, share bad news....whatever it is you NEVER get to do it again. &nbsp;To truly feel and comprehend NEVER is a enormous concept. &nbsp;This is where it gets tricky. &nbsp;Once you know how it feels to experience that kind of pain you really don't ever want to feel it again. &nbsp;At least that is how my brain reacted. &nbsp;What does that mean?&nbsp; Well, it means you stop doing pretty much most things in life out of fear something will happen that will take your day as you know it away from you. &nbsp;After having kids, I was a disaster. (Read postpartum what...) Terrified something would happen to my children&nbsp;if I was not careful enough. &nbsp;Anything and everything you see as a potential fatal situation. &nbsp;It makes living hard. &nbsp;Its hard to get through the day when all you can see is everything that could go terribly wrong. &nbsp;</div>
<p>&nbsp;</p>
<div>Then there was a time after my mom died I did the polar opposite. &nbsp;I said "f*ck it" (this is before I was married) and I did whatever the hell I felt like because I felt I was just going to die anyways so I was going to challenge death and live my life knowing something was going to eventually kill me regardless. &nbsp;I felt at the time&nbsp; "I would rather die living then live my life dying." &nbsp;This is a story for another day.</div>
<p>&nbsp;</p>
<div>I have been writing for many years on this topic of loss. &nbsp;Long before I ever started blogging publicly and&nbsp;sharing these thoughts. &nbsp; Back in the day it was just me and my computer screen. &nbsp;Nobody else ever saw what I wrote. &nbsp;I pulled up a file I wrote in 2009 the other day. &nbsp;6 years after I lost my mom. &nbsp;The entire post is me raging with unapologetic anger. &nbsp;My words like venom on the paper. The tops of my hands getting hit with tears as I wrote back then. &nbsp;Filled with fury. &nbsp;So mad at the cancer, so mad at the doctors that couldn't make her better, mad at the &nbsp;side effects from the drugs that did not work, mad that they did work well enough to destroy whatever healthy cells she had. &nbsp;So mad I could never call her. &nbsp;So mad that she left me in this world without her. &nbsp;So mad the cancer didn't give her a choice. &nbsp;I wanted to tear the hospital down. &nbsp;My blood boiled daily. &nbsp;It took everything I had not to breakdown regulary. &nbsp;I felt entitled to have a healthy mother, I felt it was a part&nbsp;of life. &nbsp;Let me save everyone the suspense.....Living here on this earth healthy is a gift. &nbsp;It is not owed to any of us. &nbsp;It is not guaranteed. &nbsp;&nbsp; So if you are healthy get busy living. &nbsp;Chase your dreams as crazy as they sound. &nbsp;Chase them even if people tell you they are unattainable. &nbsp;Because this I promise you, a day will come and you no longer will be able to. &nbsp;I can't tell you if it will be when you are 90 or in 9 days but it will come. &nbsp;So get busy living!!!</div>
<p>&nbsp;</p>
<p>&nbsp;</p>
<div>What else I can tell you with certainty is if you lose someone in your life it might always hurt when you think of them but as time passes you will get better at coping. &nbsp;I promise you. &nbsp;You will get better at&nbsp;handling the emotions that come with it as long as you work on it. &nbsp;If you want to find a way then you will.</div>
<p>&nbsp;</p>
<div>I try to make my life today as healthy as I can. &nbsp; Hopefully I&nbsp;get to be on this ride of life as long as possible and physically able to do as much as I can for as long as I can. &nbsp;But even with that there&nbsp;is no guarantee. &nbsp;My advice......&nbsp;live, love, enjoy today. &nbsp;Find a balance so if you are lucky and you get to have a long healthy life you can have a body that can move and jump as you age.&nbsp; So you can do more with your life, see more, and be part of more events comfortably. &nbsp;That is my plan but as we all know god may have a completely other path for me. &nbsp;</div>
<p>&nbsp;</p>
<div>Today and every single day. &nbsp;I remind myself of this:</div>
<p>&nbsp;</p>
<div>"God grant me the serenity to accept the things I can not change, the courage to change the things I can, and the wisdom to know the difference"&nbsp;</div>
<p>&nbsp;</p>
<div>I wish you acceptance, courage, and&nbsp;wisdom&nbsp;on your journey.</div>
<div>&nbsp;</div>
<div>If you like this blog. &nbsp;I have a dozens of others about overcoming obstacles in my life on my site. &nbsp;www.emilyishbiamodeling.com/blog. &nbsp;All are readable for free if you want to check them out. &nbsp;I started writing to help other people feel not so alone with what they are going through. &nbsp;I promised myself one day if I ever am in a better place I want to share my struggle and how I found my peace with others. &nbsp;It took me 15 years but I am now able to do it. &nbsp;</div>
<p>&nbsp;</p>
</div>]]>
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        <title>I can&#39;t stop thinking about my mom why it was my fault</title>
        <link>https://csn.cancer.org/discussion/311461/i-cant-stop-thinking-about-my-mom-why-it-was-my-fault</link>
        <pubDate>Thu, 17 Aug 2017 06:32:47 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>ericchan</dc:creator>
        <guid isPermaLink="false">311461@/discussions</guid>
        <description><![CDATA[<p>Ever since my mom got breast cancer she told our 4 person family to not tell anyone else. We followed that rule and the cancer got worse and worse. I was too busy doing my homework and crap and forgetting that my mom needed major help. She did research on all the bullcrap juicing and ozone and all that stuff, but it did nothing but make her slim and weak. No protein, or fat or anything to keep energy. 8 months later when she was skinnier than me, she couldn't sleep, eat or do anything. it spreaded like crazy. She had a big inflamed stomach and my dad and me were researching the nearest hospital for therapies. There was one but they didn't allow us to go because the "doctors" weren't coming. We are in Austin, Texas. So the one that kicked us out was in Houston. The next closest one was Mexico. So my dad and his friend (since I'm 13 years old and can't drive) drove 20 hours to mexico for the therapy. Turns out, my mom was so skinny, she had malnutrition. So they had to bring her to hospital and stablize her. Me and my brother were in New York to "Take our minds off" and I kept saying to myself, "Mom will live" On July 7, 2017 7:49 pm, my mom and dad called. That was the last time I heard my moms voice. Then the next day, my uncle told me we need to get to California fast. So we get there and my mom's cancer was spreaded to the kidneys and livers and everything. My dad called us crying in the phone "Come quick" I never got to say goodbye to my mom. We get back home carrying our mom's ashes. It was my fault. All the bad luck I had. Tiny things. Like in this game where you gamble things away i got 4 of the same thing. And since I'm Chinese, 4 is bad number and means dead in chinese too but different character. It was my fault for not tell the aunts. They had a cancer center in New York that some of them work at. And an aunt that experienced it. My mom never wanted to do Chemo because you lose your hair and feel dizzy and everything, and she cared how she looked. But all her friends didn't because they were true friends and don't care about how you look. I could've done so many things but i didn't. How do I overcome this? (Srry my summary sucks bad)/</p>]]>
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        <title>Lost the fight against breast cancer</title>
        <link>https://csn.cancer.org/discussion/258678/lost-the-fight-against-breast-cancer</link>
        <pubDate>Thu, 09 May 2013 07:38:40 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>Hbphotographer</dc:creator>
        <guid isPermaLink="false">258678@/discussions</guid>
        <description><![CDATA[<p>My moms birthday is today.... It has been a very difficult day and will continue this week with Mother's Day around the corner... I was numb for so long, and now I feel so empty, alone and sad. Sad that she has missed so much... I was only 16 when she left... I wish she could see my now.&nbsp;</p>
<p>&nbsp;</p>
<p><img src="denied:webkit-fake-url://9A6EEC1F-020C-4E47-80C7-2D1A83F4F11A/imagejpeg" alt="image" /></p>]]>
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        <title>Private Message Spam</title>
        <link>https://csn.cancer.org/discussion/307910/private-message-spam</link>
        <pubDate>Wed, 08 Feb 2017 17:27:08 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>CSN_Anne</dc:creator>
        <guid isPermaLink="false">307910@/discussions</guid>
        <description><![CDATA[<p>Hello everyone,</p>
<p>Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.</p>
<p>Jegac1 has now been blocked from the CSN site.</p>
<p>Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.</p>
<p>Best regards,</p>
<p>&nbsp;</p>
<p>Anne</p>
<p>CSN Support Team</p>]]>
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        <title>Losing multiple people</title>
        <link>https://csn.cancer.org/discussion/305580/losing-multiple-people</link>
        <pubDate>Wed, 28 Sep 2016 01:55:56 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>jadednightdragon</dc:creator>
        <guid isPermaLink="false">305580@/discussions</guid>
        <description><![CDATA[<p>Hello,</p>
<p>I lost my grandpa back in 2009 from prostate and lung cancer. It was awful. He completely changed, he refused treatment and just went downhill from there. We placed him in a nursing home (so he could get therapy from the stroke he had.) and he ended up with a very serious lung infection. We brought him home and 3 days later he died, gasping for air in the ER. Just awful.</p>
<p>I also lost my grandmother from lung cancer. She also refused treatment. She also stopped all her medication. And one day she fell asleep and never woke up.</p>
<p>The other day I was posting on a "friends" post because she was complaining about how her hypothyroidism was the worst thing ever. And I replied "You know you sound be grateful it's not cancer, because that's the worst thing world" and she replied that Hypothyroidism was the worse and basically told me that my family members suffering was nothing compaired to hers. It really upset me. THe more I tried to convice her otherwise, the more she tried to prove she was right. I'm just in shock how someone can be so self centered. :'( All of this was posted on her facebook</p>]]>
        </description>
    </item>
    <item>
        <title>Private Message Spam</title>
        <link>https://csn.cancer.org/discussion/292423/private-message-spam</link>
        <pubDate>Sun, 22 Feb 2015 16:39:37 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>CSNSupportTeam</dc:creator>
        <guid isPermaLink="false">292423@/discussions</guid>
        <description><![CDATA[<p><span>Hello everyone,</span></p>
<p><span>Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or share any of your information.&nbsp;</span></p>
<p><span>The user, drjulius, has been blocked.</span></p>
<p><span>&nbsp;</span></p>
<p><span>Going forward, please continue to report any spammers or questionable behavior to us.&nbsp;</span></p>
<p><span>&nbsp;</span></p>
<p><span>Sincerely,</span></p>
<p><span>&nbsp;</span></p>
<p><span>Kim</span></p>
<p><span>CSN Support Team</span></p>]]>
        </description>
    </item>
    <item>
        <title>Discussion Board and Chat Spam</title>
        <link>https://csn.cancer.org/discussion/290802/discussion-board-and-chat-spam</link>
        <pubDate>Fri, 26 Dec 2014 17:28:48 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>CSN_LauraE</dc:creator>
        <guid isPermaLink="false">290802@/discussions</guid>
        <description><![CDATA[<p>Hello everyone,</p>
<p>Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you received a message about a cure for cancer, please do not respond or share any of your information.&nbsp;</p>
<p>This user has been blocked.</p>
<p>Going forward, please continue to report any spammers or questionable behaviors to us.&nbsp;</p>
<p>Sincerely,</p>
<p>Laura E</p>
<p>CSN Support Team</p>
<p>&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>In loving memory of an amazing wife, mother and grandmother Stamatoula</title>
        <link>https://csn.cancer.org/discussion/240196/in-loving-memory-of-an-amazing-wife-mother-and-grandmother-stamatoula</link>
        <pubDate>Sun, 13 May 2012 17:02:28 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>teenadee</dc:creator>
        <guid isPermaLink="false">240196@/discussions</guid>
        <description><![CDATA[Today is mother's day - it's almost 6 months since my mom passed away and this weekend has been by far one of the hardest I have yet to face.  I want everyone to know that my mom Stamatoula Dimitrakopoulos was an incredible human being.  She truly saw the good in everyone and sacrificed very much of her life to give me, my sister and her 4 grandsons the best possible life ever.  She was an amazing wife to my dad.  She was a gem, she was simply perfect in my eyes.  I miss her hugs, I miss her touch, her smile, her laughter, her warmth, her caring, EVERYTHING.  Nothing will bring her back to me but I will do my best to honor her.  I love her so deeply, I miss her so deeply.  I wish her a happy mother's day in heaven.  Her pain and suffering from this awful disease is finished but my pain of losing her will last the rest of my life.

I LOVE YOU SO MUCH MAMA SO SO SO SO MUCH.

To all the mother's I wish you a wonderful day today, to all the son's and daughter's that have lost their mom's, I know exactly what you are feeling.  To all the mother's fighting for their lives, I pray for you all to be here and win this battle.  

To anyone that is mad at their mom's DON'T BE, DO NOT HAVE THIS REGRET IN YOUR LIFETIME.  Call your mom and tell her every single day I LOVE YOU.  thank you]]>
        </description>
    </item>
    <item>
        <title>Private Message Spam</title>
        <link>https://csn.cancer.org/discussion/288374/private-message-spam</link>
        <pubDate>Thu, 02 Oct 2014 16:29:53 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>CSN_Kim</dc:creator>
        <guid isPermaLink="false">288374@/discussions</guid>
        <description><![CDATA[<p><span>Hello everyone,</span></p>
<p><span>Thank you to those who've alerted us to the PM spamming from earlier today and sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money, please do not respond, or share any of your information.&nbsp;</span></p>
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<p><span>Sincerely,</span></p>
<p><span>Kim</span></p>
<p><span>CSN Support Team</span></p>]]>
        </description>
    </item>
    <item>
        <title>What is your testimony?</title>
        <link>https://csn.cancer.org/discussion/266249/what-is-your-testimony</link>
        <pubDate>Fri, 24 Jan 2014 20:45:51 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>Strykset</dc:creator>
        <guid isPermaLink="false">266249@/discussions</guid>
        <description><![CDATA[<p style="text-align: center;"><strong><em>Cancer: A True Story…</em></strong></p>
<p style="text-align: center;"><strong><em>&nbsp;</em></strong></p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>Millions of people throughout the world are currently fighting for their lives; fighting against a disease that far too often claims the lives of those it infects. Cancer is atrocious. It is a disease of insurmountable power and like the armies of the north and the south during the Civil War, it has unlimited potential to wipe out its victims. Not having battled cancer personally, I cannot relate to the shear pain and anguish this horrific disease causes to its victims; however, I can relate to the feelings and situations of the families that have a loved one currently battling cancer. Thus begins the true story of a woman who fought a hard battle with cancer and eventually lost the battle after 5 years. This article and blog entry is dedicated to the American Cancer Society and to all those people who are currently battling cancer, as well as the families of those who are infected by the disease. My heart goes out to all of you….</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>My Grandmother, Jeanette Wraa, was an eternal optimist; a woman who never complained a day in her life and who lived life with a carefree attitude. She was a woman who seemed to do everything right and who touched the lives of all those who ever had the pleasure of making her acquaintance. My Grandmother was and always will be my hero. She was a tender-loving person who was always quick to smile and laugh; she had such an infectious and memorable laugh. Her smile could light up even the darkest of places like the summers sun rising high above the mountains in the distance. She had this special way about her that everyone recognized and appreciated, as she could always find a way to put a positive spin on every situation. One specific instance always stands out in my mind, which sheds light on my Grandma’s level of optimism: I was in sixth grade at the time and I had a bad day at school, as I was suspended for flinging my pencil across the room and hitting a teacher in the forehead. I remember making the “walk of shame” back to my Grandparent’s house, which was less than a mile away from my middle school. I walked in the door and tears were streaming down my face. My Grandmother answered the door and immediately reached out her arms and embraced me right there in the doorway. She wrapped her arms around me and consoled me, telling me that we all make mistakes and that the best thing to do when we face troubling situations is to learn from the mistakes that we make. She may have been displeased with my behavior; however, she was able to overcome her frustration in order to provide me with support and love. Such was my Grandmother’s personality and level of kindness. She had such a unique way with words and she always knew how to make me smile, even amidst life’s pitfalls.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>My Grandmother was and always will be a special person. She was quick to forgive and even quicker to forget. She did not hold grudges and she was always willing to listen. Days spent with my Grandma were like days spent in a magical place, a place like Disneyland, where smiles are prevalent and laughter can be heard for miles and miles. When I think about my Grandma today, I always recollect and relive one specific moment I had with her when I was two years old: I was on a family trip in Tahoe during the Christmas holiday. My family had rented out a cabin up in the hills near Heavenly Ski Resort and several members from my Dad’s side of the family came up to join in the celebration. I was an adventurous young lad back in my “glory days” and I remember begging my Grandma to take me out to the edge of the lake so that we could walk on the ice and play with the snow. She grabbed my jacket from the hook over the fireplace and bundled me up nice and tight so that I wouldn’t freeze. She made sure that my gloves were tightly fastened and that my scarf was wrapped around my neck, then we head out into the icy paradise that is Tahoe during the winter season. The temperature outside must have been in the low 20’s and it was snowing. The visibility was low and the sun was beginning to set. The moment we stepped onto the porch outside, she took my hand and placed it in hers, holding me tightly, warming my hand in the process. We walked for what seemed like an eternity and made our way to the edge of the lake, which was completely frozen over and covered with fresh snow. The one thing I remember most about this particular memory is that she allowed me to lead the way and trusted me enough to stay by her side. Although I know she wouldn’t have let go of my hand even if I tried to pull away, I remember that I appreciated having her by my side during our journey, so much so, that I continued to hold her hand regardless of the urge I felt to let go and run ahead into the distance. We walked along the shore of the lake together, with our hands clasped tightly together, laughing and talking as we ventured out into the unknown. This particular memory serves as an example of the bond that my Grandma and I shared from the time of my birth to the moment of her untimely passing nearly 22 years later. We shared a connection unlike any other and even during times when I was not physically with my Grandma, I could always sense that she was thinking about me. My Grandma was a special lady and I will never forget the day when I heard “The News…”</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>It was a normal school day. I was in middle school at the time and I remember walking in the front door of my Grandparent’s house and placing my backpack next to the kitchen table. My Grandparents were in the family room and they were watching “Law &amp; Order,” my Grandma’s favorite TV show. I walked into the room to greet them and they beckoned for me to sit down. My Grandma looked me in the eyes and told me that she had just paid a visit to the doctors that afternoon and had found out some disappointing news. She told me that the doctor had found some lumps in her breasts and that she had been diagnosed with cancer. I will never forget that moment. My heart skipped a beat and my eyes began to tear up. My Grandma immediately took me in her arms and told me that everything was going to be okay. She said that lots of people get cancer and that the last thing I needed to do was worry about her wellbeing. She told me that I had more important things to focus on and that she didn’t want me feeling bad for her. Her humility altered the course of my life in that moment and from that moment on, I never once heard her complain about her condition or the excruciating pain she was in half the time.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>She progressed normally, living life the same way she always lived it, with a carefree attitude and a huge smile on her face. The one thing I remember from her first round of cancer is that she never spoke about it in front of me. When my Mom would come and pick me up from my Grandparent’s house, they would chat about my Grandma’s hospital visits, but the conversation never lasted for more than 10 minutes at a time. I was only maybe 11 years old at the time so I didn’t remember being overly concerned about the cancer because in my mind, I thought that the chemotherapy would wipe it out and that eventually it would just disappear.<span>&nbsp; </span>My Grandma fought her first round of cancer for over a year and eventually her treatment began to effectively wipe out the cancerous cells that had invaded her body. After several months of treatment, I remember the day when my Grandma came home from her surgery. I of course was not kept in the loop about anything that was going on with her treatment because my Grandma didn’t want me worrying, so when she came home one day without a breast, it was in that moment that I realized that she had gone through surgery and had gotten a mastectomy. The surgery altered the course of the cancer, as it wiped out a large proportion of the cancerous cells; so much so, that the cancer eventually went into remission.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>On the day of “victory,” when my Grandmother broke the news to the family that the cancer had been thwarted, we were OVERJOYED and ECSTATIC. The feeling was unlike anything any of us had ever experienced before. We cheered as loud as 49er’s fans after their victory during the ’94 super-bowl against the San Diego Chargers. We threw our hands in the air and breathed a deep sigh of relief; the cancer was gone and my Grandma was officially free from needles, treatment, and constant testing. Once the cancer was wiped out, my Grandparents took several trips and decided to travel around the world together. They visited Australia, New Zealand, Scandinavia, Europe, Hawaii, etc. My Grandma had fought the hard fight against a disease that usually wins and would live to see another day. The moments I spent with my Grandma after her victory were extra special because every time I was with her, I knew in my heart and in my mind that she was going to live a long life and that I wouldn’t have to grieve for her loss. I knew in that moment that I would always have her by my side and that one day when I had kids that she would get to meet her Great Grandchildren and shower them with the same level of love she showed me and everyone she met. My Grandma was a cancer survivor and although she was a short woman with a gentle personality and persona, she sure as Hell showed the cancer who was boss. I give credit to her Italian side, that stubborn side, that just wasn’t willing to give up or to succumb to the ailing effects that cancer can have on the body. She refused to let herself go and because she had the utmost will to live and survive, she won the fight against cancer and continued to live life according to the highest standard possible.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>I wish I could tell you that this story has a happy ending. I wish I could continue writing about my Grandmother’s adventures or tell you that she is currently on a cruise-ship somewhere traveling the world with the love of her life, my Grandfather. I am sure many families wish that their personal experiences with cancer were a success, but according to the statistic on the American Cancer Society’s website, <a rel="nofollow" href="http://www.cancer.org">www.cancer.org</a>, over one million people are diagnosed with cancer each year in the US alone. Out of those million, only 49% are expected to survive their cancer. Currently, approximately 1, 600 people die from cancer everyday, which amounts to nearly 580, 350 deaths every year in the US alone. The reason so many deaths occur in the US on an annual basis is that far too many Americans are uninsured. According to facts posted on the American Cancer Society’s website, approximately 50 million Americans were uninsured in 2010. What this reveals to us is that cancer would not have a snowflakes chance in Hell to wipe out as many people as it does if it weren’t for those people who can’t afford health insurance. More people would survive if health insurance were made more affordable to Americans. Period. If more people who are currently battling cancer were afforded cheaper health insurance, there is a good chance that they would win the fight against their disease; however, because many American’s cannot afford to pay for proper treatment, the cancer far too often wins the fight and comes out as the victor. In my Grandmother’s case, health insurance was not the problem. In fact, my Grandparent’s were fortunate enough to be able to afford the best coverage imaginable. And even though my Grandmother went to every appointment and never missed a single day of treatment, the cancer eventually got the best of her; thus begins part two of her story…</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>Just when my family thought that the cancer had been completely wiped out, I got “the phone call.” My Dad called me and he told me that he had some very bad news. He said that Grandma had recently gone to the doctors and that the doctor had found cancerous cells in her brain, her spine, her bones, her stomach, and her remaining breast. To make a long story short, the cancer came back with a vengeance. Nearly ten years had passed from my Grandma’s initial “victory” and for all those who have ever experienced cancer or for those people who know someone who has battled cancer, I am sure that you can relate to the emotional toll that cancer can have on a person. I was only 11 years old when my Grandma went through cancer the first time and to find out that the cancer had come back even worse than before was like the feeling of having a thousand daggers stabbed into my heart, piercing me deeper than I could have ever imagined. I was devastated. I began to question the evidence because in my mind I thought that once cancer was “wiped out” or sent into remission that it meant that it wouldn’t show up again. My theory was wrong and my Grandmother was now facing yet another battle, except unlike the first round, this battle was more like a war. Her percentage for survival plummeted and the doctor told her that there was a good chance that they would not be able to forestall the cancer this time around because it had spread to multiple parts of her body. Being that my Grandma is a fighter, she went through the motions again in order to keep on keeping on: She went to the hospital twice per week for radiation therapy to start things off. Then once the radiation no longer worked, she moved into chemotherapy treatment. Then, once the chemo stopped working, she moved into another form of treatment, which I like to call, “Prayer, Hope, and Belief.” And just like the first time around, her optimism and will to live persisted. Although she was in more pain and was literally drained of every ounce of energy she had left, my Grandma never complained. She kept smiling. She kept laughing. She maintained her spirit. My Grandma fought a hard fight for the second time in her life and she never lost hope.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>I went through a lot of emotional ups and downs the second time around because I was trying to ignore the inevitable. I tried so hard to block the thought of her perishing from her second round of cancer from my mind that I often found myself in fits of uncontrollable sadness and despair. I went into a period of denial and didn’t want to believe that she was suffering again or that she may not live through this. I couldn’t imagine a life without her by my side. I couldn’t fathom calling my Grandparent’s house and not having my Grandfather pick up the phone and hand it directly to her, as was the typical case whenever I contacted my Grandparent’s. I didn’t want to think about holidays spent without her sitting on the couch at my Great Aunt’s home, holding one of the younger members of the family on her lap and laughing joyfully. I had a lot of flashbacks of times we spent together in my childhood during those last few years of her life. I remembered the times when we would take the dogs on a walk in the creek that was located behind their house in San Jose. I remembered times when we would be shopping in a store in Capitola and I would see something that I liked and would sweet-talk my Grandma into buying me something. I remembered the times we would sit and talk for hours on end about anything and everything. I remembered the times when my Grandma and I would hop in her red Ford Explorer and head to her work at good ole’ Prospect High School, where she was an administrator. I remember those times as if it were yesterday because when I would go to school with my Grandma she would always have country greats like Alan Jackson, Garth Brooks, Brooks &amp; Dunn, and Trace Adkins playing on the radio. My Grandma and I had such a special connection and it will always remain that way until my dying day.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>For all those who have ever had a loved one who suffered or is currently suffering from cancer, I’m sure you can relate to this article. This article is being offered up to you and it is my hope that you will take some time to reflect on your personal experience with cancer. I chose to share the story of my Grandma because she inspired me to my core. She knew me better than I know myself and she recognized the good in me. She recognized the good in everyone. My Grandma was such a unique and beautiful woman inside and out and her legacy will live on, just as the legacy of your loved ones will continue to burn brightly throughout the years. We can keep our loved ones in our hearts forever by sharing their stories and by being open about discussing what they went through because for anyone whose ever experienced what I’ve experienced, as I watched my Grandma go from being a fully functioning human being to someone who eventually lost all motor functions, I am sure their story will inspire people. My Grandmother was an inspiration to everyone who knew her. She touched the lives of everyone in my family in ways that I can’t even explain in words. Her love and compassion for others flowed through her like the Siberian wind. We all knew how much she loved us and her sincerity was as thick and as real as the wood of a Sequoia Tree: her passion was the water that flowed up through the trunk and into the branches; her tenderness were the branches themselves; and her kindness was the trunk of the Sequoia that stands tall and firm, like a Queen in the forest. She was my tree, my rock, the feet that I stand on and the legs that hold me up.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>To continue the story, my Grandma was re-diagnosed with cancer in 2009. The doctors revealed to her that the chances for survival were much lower the second time around and that there was a good chance that the treatment would not work. As I said previously the cancer had spread to several areas of her body with the “red flag” areas being in her brain and in her stomach. I will never forget my Grandma’s second round of cancer because it went back and forth like the changing of the ocean’s tide. There were months where the tumor in her stomach would shrink, creating the illusion that her cancer was being forced back into remission; however, just when hope seemed to shine through, the cancer would pop up in another area of her body, thus requiring treatment in that specific area. And then like the stop and go traffic one might see on interstate 405 in Los Angeles, the tumor in her stomach would swell up and then it would shrink and then it would swell up and then it would shrink again. My Grandma was in so much pain the second time around: She could barely walk without assistance; she had to have her stomach drained through a tube every other day because of the amount of fluid that was produced by the tumor; she had to live with the notion that she may not pull through the second time around; she had to take a medicine cabinet full of pills ranging from pain killers to antibiotics; and she had to cope with everything as a whole. I still to this day cannot fathom what must have been going on in her head: I wish I could sit down with her once more and ask her: Grandma, what is going on inside of your head about all of this? I wish I could tell her that she is my Earth-Angel and that I love her so very much. There are a lot of things I would say to my Grandmother at this exact moment if she were still physically present in this world.</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>I remember the second round of her cancer more vividly than her first round and although I was not around her nearly as much as I was when she had breast cancer, I always felt as though my heart and my mind were with her at all times. I’m sure for anyone who has a loved one currently fighting for their life that you experience the same thing. It’s like that moment when you are doing one thing, but thinking about something completely different than what you’re doing. For instance, there were moments when I would be sitting in my classes back in college and the teacher would be lecturing about something important and although I would be taking a copious amount of notes, my brain was not fully committed to the teacher’s lesson. My body was physically present in the seat and at the desk and in the classroom at California State University, Los Angeles, but my mind and heart were sitting next to my Grandma in her home back in Sacramento. The experience of watching my Grandma deteriorate more and more throughout her last few years was like the most painful form of torture imaginable. I watched her go from walking around as if nothing was wrong with her at the beginning of 2009 to watching her lose complete control of her motor functions in October of 2013.<span>&nbsp; </span></p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>To conclude this article I want to describe to you the final two months I had with my Grandma, as I’m sure many of you who’ve ever lost a loved one to cancer or a serious illness can relate. This article is being offered up to you. It is my way of reaching out to all those who are currently facing difficult times. My heart goes out to you and your families. I know exactly what you are going through and if there is anything I learned from my personal experience with having a loved one suffering from a serious illness, it’s that we should never take life for granted. These were the words of a dying woman who I always recognized as being one of the strongest and most positive people I ever met in my entire life. These were the words of a woman who recognized from a very early age that life is a precious thing, the most precious thing of all and that a life lived with happiness, fulfillment, and love is a life well lived. My Grandmother taught me so much about life through her actions. Had she chosen to never utter a single word about how life should be lived, I would have known every single day of my life that she was a person who truly valued life and who possessed the utmost will and desire to live…</p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; </span>I went to China for 10 months back in 2012 and that was one of the most difficult transitions I’ve ever made in my young life because it meant that I would be leaving my Grandmother and my family behind. I knew that I would not be able to connect with my Grandparents as frequently as I was accustomed to and I felt guilty for leaving. I thought that my decision to travel abroad was selfish because there I was, a healthy 23-year old who was taking off to have the experience of a lifetime, while my Grandma was practically ailing day by day. To make a long story short, I believe to this day that my Grandma waited for me to come home from China in July of 2013 before passing away nearly two and a half months later. She was one of my biggest supporters from the get go and although I was 10, 000 Kilometers away, I was always sitting right beside her, holding her hand, and embracing her. When I returned to the US on July 22, 2013, I found out some very disturbing news: My Grandma had been taken off her treatment because it was no longer working. It was in that moment, that I knew that my Grandma was going to die. I was floored. I felt like I could barely walk, as my legs turned into rubber at that moment. Words cannot describe the emotional state I was in for the last two months I spent with my Grandma because how does one really feel when they have to live with the inevitable that someone close to them isn’t going to live for much longer? I don’t think there’s any way to cope with that feeling. I was fortunate enough to be there for her last few moments: I was there to hold her hand during her last week of life. I was there to kiss her forehead and to feel the warmth of her smile as it lit up the family room. I was there to witness her last few words. I was there to listen to her last song, as she lip synced “Music of the Night” and “Wild Horses.” And although I was not there to witness her final breath, I could feel her in my heart and in my mind at the exact moment when she passed from this world into the next. I knew My Grandma lost the fight to cancer on October 5, 2013. She was 71 years old.</p>
<p>    </p>
<p><span>&nbsp; &nbsp; &nbsp; &nbsp; &nbsp; &nbsp;&nbsp;</span>If you are a person who is currently battling cancer or another serious disease or if you are a family member of friend of a person who is battling a serious disease, my prayers are with you. I share this story because it’s similar to what others have gone through. It is my way of keeping the fire-the energy-of my Grandma alive. I chose to share my personal experience in hopes that it will serve as an inspiration for all those who are going through the same thing. You are not alone and there are people in the world who are thinking about you and who are praying for your well-being. The American Cancer Society is a foundation aimed at spreading the word about the effects that cancer can have a person and on how to recognize the signs and symptoms of cancer so that you can catch the disease before it’s too late. I myself am no expert on cancer, but I am a person who believes that cancer is one of those diseases that can be stopped before it starts. I believe that with a positive outlook, proper treatment, and a will to live, that anyone currently suffering from cancer will have a much greater chance for survival. I would like to conclude by thanking the American Cancer Society for all of its efforts in keeping us in the loop. By visiting the website, <a rel="nofollow" href="http://www.cancer.org">www.cancer.org</a>, you can read a variety of different articles and educate yourself about cancer and about the possible treatments that are available out there. Health insurance may be unaffordable for many Americans, but with organizations like the American Cancer Society, there are ways to afford treatment and there are people out there who live their lives in service to those people and families who are battling cancer together. Lets spread the word and come together as a community so that we can fight the fight against cancer as a team and provide aid to those who don’t have anyone to support them. Volunteer or donate to the American Cancer Society today! With your generosity, more people will survive and live to see another day!</p>]]>
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        <title>Private Message Spam</title>
        <link>https://csn.cancer.org/discussion/282265/private-message-spam</link>
        <pubDate>Tue, 08 Jul 2014 20:07:47 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>CSN_Rowan</dc:creator>
        <guid isPermaLink="false">282265@/discussions</guid>
        <description><![CDATA[<p><span>Hello everyone,</span></p>
<p><span>Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from sarah989888 prompting you for money, please do not respond, or share any of your information. This user has been blocked.</span></p>
<p><span>Going forward, please continue to report any email spammers or questionable behaviors to us. We apologize for the inconvenience, and thank you for alerting us!</span></p>
<p><span>Rowan</span></p>
<p><span>CSN Support Team</span></p>]]>
        </description>
    </item>
    <item>
        <title>All CSN members are invited!</title>
        <link>https://csn.cancer.org/discussion/276358/all-csn-members-are-invited</link>
        <pubDate>Fri, 30 May 2014 01:25:01 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>CSN_Nick</dc:creator>
        <guid isPermaLink="false">276358@/discussions</guid>
        <description><![CDATA[<p><span>It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN.&nbsp; It is NOT Java-based and it DOES support members using mobile devices.</span></p>
<p><span data-mce-mark="1">To access chat, you must be a CSN member and logged on.&nbsp; Once logged on, all you have to do is click chat in your left navigation menu. No waiting for the chat application to load, clicking the link opens up a CSN page with the chat widget embedded in the page.&nbsp;</span></p>
<p><span><span>For more information about how to use the new chat, please go to the technical board FAQ's:</span><br /><br /><a rel="nofollow" href="http://csn.cancer.org/node/276321"><span>http://csn.cancer.org/node/276321</span></a><br /><br /><span>Thank you everyone for your patience!</span></span></p>
<p><span><br /><span>CSN_Nick</span></span></p>]]>
        </description>
    </item>
    <item>
        <title>In memory of Axel Cierpinsky</title>
        <link>https://csn.cancer.org/discussion/257727/in-memory-of-axel-cierpinsky</link>
        <pubDate>Tue, 16 Apr 2013 21:56:23 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>Alexandra</dc:creator>
        <guid isPermaLink="false">257727@/discussions</guid>
        <description><![CDATA[<p>A dear friend and classmate passed away yesterday in Italy after&nbsp;2 year long fight with stage 4 colon cancer.</p>
<p>He was a great guy, a loving husband, a father of 2 children. He was 47 years old.</p>
<p>It's unfair. I am angry.&nbsp;Tomorrow I have to call his widow and I don't know what to say. Words are meaningless</p>
<p>&nbsp;<img src="http://cs164.vk.me/v164183/3d8/bRdm54PO45Y.jpg" width="359" height="480" alt="image" /></p>
<p>PS. I just called another classmate in Denver to tell him about Axel. He told me that 2 weeks ago his mother passed away from pancreatic cancer.</p>
<p>Cancer be damned. I can't handle any more suffering and death.</p>]]>
        </description>
    </item>
    <item>
        <title>so mad so upset so sad</title>
        <link>https://csn.cancer.org/discussion/263617/so-mad-so-upset-so-sad</link>
        <pubDate>Sun, 13 Oct 2013 04:06:55 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>goofygirl34</dc:creator>
        <guid isPermaLink="false">263617@/discussions</guid>
        <description><![CDATA[<p>My mom passed away Oct 13, 2012 and I am still so upset. &nbsp;My heart feels as if its been ripped in two. &nbsp;She was taken from us way too soon. I'm 37 and I am so angry all the time. &nbsp;What the cancer did to her was so horrific, and will be burned into my memories forever. Nobody deserves to sufferthe way she did. &nbsp;I haven't been to the mausoleum since the funeral and I dont think i can. Am I a bad person because of this...I loved my mom she was the best! Just hard</p>]]>
        </description>
    </item>
    <item>
        <title>In Loving Memory of Gabe N Abby&#39;s Mom...</title>
        <link>https://csn.cancer.org/discussion/261996/in-loving-memory-of-gabe-n-abbys-mom</link>
        <pubDate>Mon, 19 Aug 2013 02:18:48 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>Christmas Girl</dc:creator>
        <guid isPermaLink="false">261996@/discussions</guid>
        <description><![CDATA[<p><span>Linda Simmons, from the BC Board here, recently lost her three-year battle with inflammatory breast cancer. Remission was far too fleeting. Linda left behind two teen-aged children, Gabe and Abby, whom she absolutely adored. And devoted husband, Karl. Linda will always be remembered with great affection and sorely missed by all who knew and loved her, including me.</span></p>
<p><span>Kind regards, Susan</span></p>
<p><span></span>&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>Memorial Tattoos??</title>
        <link>https://csn.cancer.org/discussion/191180/memorial-tattoos</link>
        <pubDate>Thu, 29 Apr 2010 06:42:09 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>AKAngel</dc:creator>
        <guid isPermaLink="false">191180@/discussions</guid>
        <description><![CDATA[I don't know when my mom's going, but with liver cancer spreading to her lymph nodes, they say she won't last through the year. I am an artist, and several months ago I had drawn a tattoo design for her memorial. I know people get memorial tats all the time, but I was just wondering if anyone on the board has gotten one, and how they feel about it, how long they've had it, etc.]]>
        </description>
    </item>
    <item>
        <title>My Wonderful Husband</title>
        <link>https://csn.cancer.org/discussion/257915/my-wonderful-husband</link>
        <pubDate>Sat, 20 Apr 2013 12:41:57 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>joann p</dc:creator>
        <guid isPermaLink="false">257915@/discussions</guid>
        <description><![CDATA[<p><span>My name is Jo-Ann Schumell and on Feb 5th,2013, my husband Frank lost his battle with Extra Pulmonary Small Cell Poorly Differentiated Neruoendocrine Cancer of the Colon. It is a daily struggle for me to be without him, he went so fast, diagnosed on April 11th, 2012. While I miss him dearly, I know he is cancer free where he is!!!!! Swwetpea, I love and Miss you!!!</span></p>
<p><span>&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp;&nbsp; Jo-Ann</span></p>]]>
        </description>
    </item>
    <item>
        <title>I feel you here, Little Edna</title>
        <link>https://csn.cancer.org/discussion/261500/i-feel-you-here-little-edna</link>
        <pubDate>Fri, 02 Aug 2013 02:58:26 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>Hen</dc:creator>
        <guid isPermaLink="false">261500@/discussions</guid>
        <description><![CDATA[<p>Dear Mom,</p>
<p>I'm so glad your cancer happened before mine and I was blessed with a couple of years to love and care for you.&nbsp; Shortly after John and Jesus welcomed you home, I sat in your chair for chemo and felt the comfort of you near me.&nbsp; I could feel your hand on my old bald&nbsp; head as I slept in the recliner - you were and are always near.&nbsp; Thank you, Lord, for Little Edna.&nbsp; She had 88 years and never stopped smiling and looking for a chance to dance.&nbsp; Give John a big hug for me</p>
<p>Love,</p>
<p>Hen</p>
<p>&nbsp;</p>]]>
        </description>
    </item>
    <item>
        <title>I miss you, Dad</title>
        <link>https://csn.cancer.org/discussion/218318/i-miss-you-dad</link>
        <pubDate>Thu, 12 May 2011 17:58:50 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>malaka1076</dc:creator>
        <guid isPermaLink="false">218318@/discussions</guid>
        <description><![CDATA[I lost my Dad 6 weeks ago to Esophageal cancer.  I miss him so much, more and more everyday.   My Dad was the best man I knew.  At 34, I still felt like his little girl.  He and I got along great, and he always listened.  He never judged me.  I am so much like him, and I am so proud to be his daughter.  

Dad, I miss you more than words can ever say.  There is not a moment that goes by that I dont think about you.  I would give anything to have you back. I cant believe I have to go through life without you.  I miss everything about you - your advice, our trips to the casino, your dry sense of humor, your intelligence &amp; wisdom, cooking for you, making you dips, buying you honey mustard dressing, making fun of you with the computer, you correcting my grammar and spelling.  You were the best man I ever knew and that will never change.  I hope you are at peace and enjoying being with your family again.  I cant wait to be with you again someday, I got a lot of shit to tell you!  Give Baley a pat and bone for me.  Love you.]]>
        </description>
    </item>
    <item>
        <title>Miss Mom &amp; Dad a lot</title>
        <link>https://csn.cancer.org/discussion/258162/miss-mom-dad-a-lot</link>
        <pubDate>Fri, 26 Apr 2013 18:11:41 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>survivingsu</dc:creator>
        <guid isPermaLink="false">258162@/discussions</guid>
        <description><![CDATA[<p>I lost my Dad a year before my cancer diagnosis, and my Mom a couple years after my treatment.&nbsp; I miss them both terribly!&nbsp; They were so special.</p>]]>
        </description>
    </item>
    <item>
        <title>Neuropothy</title>
        <link>https://csn.cancer.org/discussion/257983/neuropothy</link>
        <pubDate>Mon, 22 Apr 2013 17:50:12 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>zigman</dc:creator>
        <guid isPermaLink="false">257983@/discussions</guid>
        <description><![CDATA[<p>Do any of you have problems with neuropothy from chemo?&nbsp; If so, does it improve?&nbsp; What have you done to help?&nbsp; I am taking 300mg of gabapentin 3 times a day but the burning in my feet is worse.&nbsp; Any comments would be most appreciated.</p>]]>
        </description>
    </item>
    <item>
        <title>My mother&#39;s scent</title>
        <link>https://csn.cancer.org/discussion/221107/my-mothers-scent</link>
        <pubDate>Wed, 22 Jun 2011 16:35:31 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>Tracy P</dc:creator>
        <guid isPermaLink="false">221107@/discussions</guid>
        <description><![CDATA[My mother passed on November 20, 2010 from T-Cell Lymphoma (sezary syndrome).   I’ve been dealing with it the best that I can.  Back around mother’s day of this year, I would often sit on my couch and pick up a strange scent.  At first I thought it was from the couch, or I thought maybe the kids spilled something on the floor.  It wasn’t a bad scent, just a really unusual smell.  I just couldn’t put my finger on it.  I asked my family if they smelled something strange or if it was just me (they said it was just me ).  But I could swear that I smelled something.  One night it was so pervasive, that I actually went to my vent on the floor to see if the scent was coming from the vent.  I was apparently the only one who could smell it.  
Earlier this month, I was watching a ghost show on Biography and someone was talking about smelling tobacco smoke whenever this ghost appeared.  Then I had an epiphany… the scent that I had been experiencing, must have been my mother!  I only smelled the strange scent around Mother’s day.  I had been crying and melancholy around that time.  And, I would smell the scent whenever I was sitting on the couch, usually alone.  Every so often, the smell would return.  But, the strange thing is that once I had this epiphany that this could be my mother, the smell ceased, and I have not smelled it since.  I’m thinking it was my mother sitting next to me on the couch and comforting me.  I still can’t identify the scent.  Has anyone else had this experience of a scent?]]>
        </description>
    </item>
    <item>
        <title>My Mum</title>
        <link>https://csn.cancer.org/discussion/248710/my-mum</link>
        <pubDate>Mon, 22 Oct 2012 10:34:54 +0000</pubDate>
        <category>In Loving Memory</category>
        <dc:creator>TeresasGirl</dc:creator>
        <guid isPermaLink="false">248710@/discussions</guid>
        <description><![CDATA[My mum passed away aged 63 from NSCLC Stage 3 B but progressed to Stage 4 on September 14th 2012 at 3:30am. I'm coping ok.  She was my only family as my dad passed away in 2007 (after years of hard drinking and basically being so violent he had to, by court order, stay away from us) and I have no brothers or sisters. She was my world, my best friend, my support - my mum. 

She was taken into hospital on 3rd September 2012 with breathing difficulties and after 1 week they had identified that the cancer had spread once more and that her palliative cancer care drug Tarceva should be stopped.  I was told she would have weeks and not months left. by that point my once feisty, positive, strong mother was so ill she could barely speak and was on 94% oxygen 24/7. 

Battling to get her home was the next step but I managed it and on September 13th she was discharged from Hospital into my care amidst warnings that she could pass away in the ambulance, bags of drugs being thrust into my hands and what felt like garbled instructions on what to do when the inevitable happened.  

I had set her bed up in the livingroom and when she got placed into her bed she couldn't speak but managed to write down with her frail and tender hand that "I love you" and "Home". She loved her home - always so warm and filled with love and laughter and I knew then  that she was truly happy to be out of that sterile hospital and to be back in the room where only a few weeks prior we had sat and laugher and spoke in that way that is now such a precious memory to me.

I had the priest visit - he came twice and my mum being a devout Catholic took great solace from this even managing to bless herself at all the appropriate points.  It was a (coincidently) a stormy wet night that seemed to have been orchestrated specifically for the situation my mum was in. Looking at her I can remember thinking how porcelain like she was - how beautiful...

And now here is my biggest regret - something from which I will never forgive myself for.  After many hours of holding her hand, wetting her lips and thanking her for being the greatest person in my world. Thanking her for teaching me how to be a strong woman and letting her know that if I could be half the person/mum that she was then I would be very lucky indeed. 

I had pulled the chair over to her bed so i could hold her hand and through the sound of the wind and rain outside I drifted off to sleep at 2:30am.  I awoke at 3:30am to my mum kneeling beside me.  She was dead. How she managed to get the energy to slip out of bed, how I never heard her is something I will never be able to understand or forgive myself for.  She died alone and I was right there!! The only thing I ever wanted out of this inevitable nightmare was to at least be able to held her had, look into her eyes and tell her it’s ok mum, I'll be ok, you need to go - its ok to go mum.  I wanted to sooth her passage into the next world and I will forever hate myself for not being able to do that.

My mum had such a hard life (lost her mum when she was 24, married an alcoholic who was extremely violent, worked hard to pass her Diploma at age 52 and strived so hard for everything she ever gained in life) and I feel that I made her exit from this world has hard as any day she endured any hardship.

So I suppose I've used this space here to document what was the most heartbreaking and horrific thing in my life so far. 

Letter to my mum:

Dear Sweet Mum,
I love you mum.  I'm so very very sorry for not being there for you at the very end. I'm so lonely without you. But I'll try to be strong for my daughter the way you were always so strong with me.  

I wish I could believe that I'll see you again one day but though all this I have no idea what to believe in anymore. Life has lost its rose coloured lens and everything is just too hard looking - the warmth has gone out of the sun and without you I'm lost at sea. 

I'll love you forever and more. 

xxx]]>
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