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Esophageal Cancer

LorettaMarshall's picture
LorettaMarshall
Posts: 482
Joined: Sep 2012

Esophagectomies vary~See videos below-Transthoracic - Transhiatal - Minimally Invasive - It could help w/your choice of surgeons

Friends:  Below you will see different doctors telling how they perform the anastomosis.  So first here is the definition of the “anastomosis” as it relates to an Esophagectomy.  Believe me, this is only a “condensed collection” of documents I have in my WORD file.  These show how different Esophagectomies are performed.  I have more on file, but for the sake of time, I am placing these here for your “VIEWING PLEASURE!”  Different links will have a warning- “Graphic Video Viewer Discretion Advised”. 

LorettaMarshall's picture
LorettaMarshall
Posts: 482
Joined: Sep 2012

Annie76~In my opinion-pre-op chemo/radiation is like "2 for the price of 1"~tri-modal treatment most often recommended

My dear Annie:

First let me say that I am putting my answer on a completely new topic forum for one reason.  It is so lengthy and detailed that if someone else wants to comment on your original post, they will have difficulty “finding the bottom of all this information.”  And further, it will serve as a primer for other Esophageal Cancer newbies that need to know basic truths about Esophageal Cancer.”  Many of the terms will be “new” to you for the first time, but you will learn to recognize them because it will be “normal speak” for the doctors who will be treating your husband.

Annie76
Posts: 1
Joined: Sep 2017

Change in Treatment

My husband was recently diagnosed with gastro-esphageal cancer.  He was to begin a combination of chemo-radiation next week.  After his radiation simulation and Pet Scan the radiologist determined that the lymph nodes were too large to begin radiation at this time. He will start with chemotherapy only at this time.  This is concerning to us.  Has anyone else experienced this change to their treatment?  What should we expect?

 

Annie76 

helpingsisinlaw
Posts: 6
Joined: Aug 2017

Dr Battafarano at Hopkins

My bil saw Dr B at Hopkins yesterday and got a completed different opinion than University of Penn.  Dr B does the open Ivor Lewis and claims to not have had an anastomosis leak since 2006.   He claims that the neck incision requires that the surgeon pull the stomach up higher and the stomach is post radiation/ low blood supply due to the cut vessels to mobilize the stomach and this all increases the chances of leak.  He keeps his patients in the hospital for 14 days and doesnt introduce anything by mouth until day 9 or so.  He allows for complete healing of the site.

amarh
Posts: 1
Joined: Aug 2017

High grade neuroendocrine carcinoma

hi my mom has just been dignosed with high grade neuroendocrine carcinoma...every thing i have read is very scary... Can some one pls advise what to expect.

helpingsisinlaw
Posts: 6
Joined: Aug 2017

high volume EC surgery hospitals

Hello

LorettaMarshall's picture
LorettaMarshall
Posts: 482
Joined: Sep 2012

CarrieN~Here's my "personal" reply 2 your 8-19-17 ltr re EC recurrence now U R Stage IV!

Oh my dear Carrie ~ Your letter brings sighs of sorrow to my heart.   We’ve talked in the past.  However, I missed reading your post on June 2, this year, but I see that Ed and Paul both wrote to you.

LorettaMarshall's picture
LorettaMarshall
Posts: 482
Joined: Sep 2012

CarrieN~Specific links re chemo drugs in possible clinical trial treatments MDA mentioned

Hello again Carrie ~

CarrieN
Posts: 10
Joined: Dec 2016

Update - It was something

I had an open thoracotomy last Thursday where they removed a portion of my lung for biopsy. Unfortunately, the results show metastatic disease. I am now stage 4. The frustrating thing is that the nodules they tested are the ones that were there last November,  so I have techinally been stage 4 all along. After my chemo and radiation, they just did a Pet, and  not a ct scan, so any potential growth of the nodules weren't seen bc they are too small to light up in a pet scan. I am so frustrated with myself for missing this. I could have been on a more effective treatment this whole time.

Kickingcancersasss's picture
Kickingcancersasss
Posts: 3
Joined: Aug 2017

New member, stage IV esophageal cancer

48 yr old male, retired military, current civilian government employee, father of 5, married 27 years, originally from upstate, New York but currently residing in Kentucky.

Stage IV endocarcinoma Esophageal Cancer, lower section, clinical trial chemotherapy at Siteman Cancer center in ST Louis, Missouri.

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