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Posts: 1
Joined: Aug 2016

Stage 4 Myxiod Liposarcoma for 11 years

I was on the trial with Docorubicin and Olaratumab. Doctors were convinced I was receiving the real thing. I started Feb 2016. Drs. feel I had a response because my scans decreased in size on the 5 nodules they were following in my lungs by 12%. I started taking the Olaratumab by itself in July 2016. I was just kicked out of the trial because those 5 nodules increased by 22% from the low point. Not sure where to go from here. 

Posts: 41
Joined: Sep 2016

Private Message Spam

Hello everyone,

Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.

Jegac1 has now been blocked from the CSN site.

Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.

Best regards,

Posts: 1
Joined: Jan 2017

65F w/ASSO looking for alternatives to Chemo

I am a 65 year old women, currently with ASSO(adenosarcoma w/sarcomatous overgrowth).

I had a hysterectomy in the February of 2016 after tumors were discovered in my uterus.

In October of 2016 several new nodules were discovered in my abdomen. They decided against biopsying the cyst in fear of puncturing them and spreading the sarcoma.


Posts: 9
Joined: Dec 2016

Undiff Pleomorphic Sarcoma (thigh)

My husband was recently diagnosed with undifferentiated pleomorphic sarcoma. In brief, he had a tiny hard bump on his outer thigh that he just noticed one day. Then after about 4 months it became more noticeable and kind of painful. Within the next two months it really grew fast, was obviously larger, tender to touch and very painful. He had surgery to remove a misdiagnosed lipoma. Biopsy resulted in undifferentiated pleomorphic sarcoma with positive margins.

Recee driver
Posts: 1
Joined: Dec 2016

Chemo or no chemo

i was diagnosed with stage 2 LMS 5 weeks ago. Surgery was 4 weeks ago. Large mass was removed. But they also found a small nodule on the stomach wall. It was not connected to the large mass. Both were removed with clean margins. Dilemma is s how did the nodule get there?  From touching the large mass or from metastasized cells in my blood. Doctors are split on chemo or just monitoring. Anyone else had this dilemma?  Any advice?  Thanks

Shaninani's picture
Posts: 1
Joined: Dec 2016

Synovial Sarcoma

My husband was diagnosed back in Sept of 2010. Sunday he was fine doing yard work and Monday he came home with a limp. By Thursday we were being turned down by our first surgeon.

Posts: 1
Joined: Dec 2016

Undifferentiated pleomorphic sarcoma

My father (age 76) was recently diagnosed with undifferentiated pleomorphic sarcoma.  He had a spot on his forehead where they originally thought it was just a form of skin cancer and cut it out (twice).  It has increased in size very rapidly and he had it checked out to find it was cancerous.  He went in for a MRI and got the results back last week that he has lumps on both of his lungs along with multiple nodules around them.  He finds out next week if it is the same type of cancer as what is on his forehead.  To complicate matters, he had a kidney transplant about 2.5 years ago.  I know

Rob1124's picture
Posts: 1
Joined: Nov 2016

Ossifying Fibromyxoid Tumor

In Feb. of 2016 I was found to have a ossifying fibromyxoid tumor in my left chest wall.  The tumor was removed but they did not get the margins they wanted in order to save my arm.  Has anyone out there ever had this type

of tumor.

Posts: 1
Joined: Oct 2016

Sarcoma Cancer

About six Mponths ago my husband had a Sarcoma Cancer in his right thigh. The doctors said chemo and Radation would not help him as much as them going in and taking it out. They did four surgies on him and finally got it they said it had not got to the bone yet real close but not to the bone. They removed the Gricilic muscle and another muscle but they said he should be fine now. It is time for us to go back for a three month check up and he has been having alot of pain again and I see him limping just like he use to.

Posts: 7
Joined: Oct 2016

Undifferentiated polymorphic sarcoma experience?

Anyone else out there with fast growing undifferentiated polymorphic sarcoma? My husband has it in the thigh. He had surgery and is scheduled for radiation. Wondering if anyone with same sarcoma can share any emperor insight.



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