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Wreck_Tangle's picture
Posts: 3
Joined: Jun 2017

Head is itchy and scabby while hair is growing back..??

My last chemo was in December of last year.

My hair is growing back but it's also getting very itchy and scabby.

Has anyone gone through this or going through it now?

If so, any products to reccomend besides the common head and shoulders?

I also have an autoimmune disorder, Sjogren's. It dries the skin and body from within and I'm not sure if this might possibly be the case.

Any info would be appreciated. 

Thank you

Posts: 2
Joined: May 2017

Hair Regrowth

Hey guys,

I had a bone marrow transplant last year and my hair is taking a long time to grow back.

The doctors say that most peoples come back thinner, another colour and really curly.

Before my hair loss I had very thick, long wavy hair.

It has since grown back a bit darker and straight. The top part of the hair still has missing gaps, I have seen an improvement but I was just wondering if there is anyone similar to me? And if there is anything I can do to help growth...

I have since shaved it twice to help improve growth. Not sure if it does though.

Posts: 1
Joined: Apr 2017


I was dignosed in December with cll. I have had ct scans and shceduled for pet scan in June. My dr was going to start chemo last week but since I'm still feeling ok decided to wait.

Posts: 1
Joined: Apr 2017

BMA versus BMB result

Hi, please, can you give me explanation-bone marrow aspiration  twice showed hypercellular bone marrow with overgrowth of WBC and megakariocytes with all stages of maturing including micromegakariocytes. But the same time as second BMA made bone marrow biopsy showed normocellular bone marrow. Is something like that possible or is there a question of seriously mistake during reading of BMB sample?

MuadDib's picture
Posts: 2
Joined: Feb 2017

Looking for LTS support groups in South Jersey/Philly Area

Hello everyone,

My name is Matthew. I am 38 years old and a survivor of ALL Leukemia and Non-Hodgkin's lymphoma, dx'd when I was 5 and in remission since age 8. I also contracted Hepatitis-C via transfusions (though I am doing well with that, and about to begin treatment--something I have been dreaming of for more than a decade as I awaited the latest treatments to reach FDA approval), and septic-shock (which I experienced in 2012, a complication unrelated to my other experiences).

Bravemama's picture
Posts: 15
Joined: Oct 2016

CLL immunoglobulin treatment questions

Last June I was diagnosed with CLL, I was told they caught it early and since I am only 37, my dr assumed I would be fine for years to come.  I quickly moved to a stage 1 and my last blood work showed that my immunoglobulins have dropped significantly.  My new oncologist says that if this trend continues I will have to be on treatment after my next appointment (in May).  I asked about what kind of treatment it would be, she said that it depended on what that day's blood work showed.  Does anyone know what this might look like.

Posts: 41
Joined: Sep 2016

Private Message Spam

Hello everyone,

Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.

Jegac1 has now been blocked from the CSN site.

Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.

Best regards,

Posts: 1
Joined: Feb 2017

32 yrs old diagnosed with LGLL. anyone else out there?

Just found out a few days ago I have LGLL. It's devastating for me because I just turned 32.  I was feeling extremely healthy other then some on and off anxiety issues...now more then ever I'm feeling super anxious..apparently it's very rare and a chronic form. Anyone else been  diagnosed? Feeling very overwhelmed but trying to stay positive. Reading peoples posts about being able to live with LGL for many years with no issues is extremely uplifting for me. if anyone with this form would like to reach out that would be Wonderful 

Posts: 1
Joined: Feb 2017

ALL ph+ at 65yrs

Hi - new to this group as my mum has just been diagnosed & stared chemo on a 21 day cycle. I would love to hear of others in a similar age group who have battled this. My mums prognosis isn't good due to her age but she seems to be handling the chemo fine. The main issue seems to be the steroids making her manic and has caused insomnia so she has no strength to fight as she's not slept in days. 

Posts: 2
Joined: Dec 2016

Aml leukemia

i was dianoosed with aml leukemia with flt 3 mutation in septemer 2016.I was imediatly admitted to local hosptial for induction. chemo. I stayed in the hospital from september2016 to october2016.I am still in remission since late october2016. I have had 2 rounds of cosildation(november and decemeber2016) to prepare for a possible bone marrow transplant.I have to find out if the hospital will take me as a patient then find a match. My questions are :           when did you paint your nails/wear jewelry( i was told you have to wait a time period before painting nails)


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