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Childhood Cancers

Posts: 4
Joined: Jan 2018


Did you know that they found the cure for cancer???


Visit the vimeo video mentioned above to learn about a new cure for cancer!!!

Posts: 1
Joined: Jan 2018

Travel After Treatment

Hi guys,

My daughter was diagnosed with All in June 2017. We have been given a treatment completion date od 22 Sept 2019. I was looking at taking

Her on an overseas holiday to the US (We live in Australia) aprrox 5-6 weeks after she finishes treatment. Would this be OK?

Posts: 3
Joined: Dec 2016

Survivors who have excelled

Growing up a childhood cancer survivor I never felt that my cancer defined me, or made me different than other people.  This belief was largely instilled in me by my Mother, who probably did not want people treating me different from other children, but as I have gotten older I have researched more on childhood cancer, and it seems that everything is so negative in relation to long term survival.  According to all the research we are more prone to secondary conditions from our treatments, relapses, or psychological issues, but where are all the positive articles on survivorship.

Posts: 4
Joined: Oct 2017

My 10 year old son has swollen groin lymph node

Hello. I am a Mom to a 10 year old boy. He has a swollen groin lymph node. I noticed it about a week and a half ago by accident. I walked in on him getting ready and bam it was right in my face. I don't know how long it was there for. We immediately went to the doctor and they had him start on antibiotics. It's been 10 days and the lump has not gotten smaller. We went back to the doctor today and got blood work drawn. Once we get the results, the doctor said we will get an ultrasound. He hasn't said what it is or isn't. I'm so scared and worried. What else could it be at this point?

Posts: 1
Joined: Oct 2017


Hi I'm not sure if this is allowed or not but I'd like to give it a go.

Posts: 2
Joined: Aug 2017

wilms tumor doctors

I am a mom of an 8 year old little girl that has wilm's tumor. My daughter was first diagnosed when she turned 5. She relapesed 2 times. First relapse on the liver second on multiple locations(bladder, kidney again and around the liver again). She recived different types of chemo, radation and surgery. She currently is taking t-cell theraphy, and seeing a naturophatic doctor. She stopped her chemo about 2 months ago and her latest scan shows that the tumor is growing back again. I don't know what to do and it seems like her physcians exhusted in options.

Posts: 1
Joined: Jul 2017

Ewings Sarcoma/effects after

I was diagnosed with Ewings Sarcoma at the age of 15.  Went through a year of chemotherpay and a month of radiation.  They told me that they didn't think I would be able to have children but I have two beautiful girls.

At the age of 35 I was diagnosed with Cardiomyopathy and Diastolic Dysfunction and was on medication for several years. 

In 2013 I was diagnosed with a widowmaker blockage of 96% blocked and had no symptoms at all. The cardiologist told me I was a heart attack waiting to happen.

Posts: 2
Joined: Mar 2017

myxopapillary ependymoma

Hi I am new to this site. My 10 year old son maxopapillary ependymoma has returned after he had a gross resection surgury in his L5 to s1 spinal cord when he was 7.

The doctor  said it has hemoraged thats probably when the pain started they operated and were hopeful they got it all. Now it has returned in the same spot in three small tumors. We recently had an MRI of brain and that was clear except for his archniod cyst that has not bothered him. They wanted to make sure there was no other surprises.

CSN_Anne's picture
Posts: 41
Joined: Sep 2016

Private Message Spam

Hello everyone,

Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1 please do respond to it or share any of your information.

Jegac1 has now been blocked from the CSN site.

Again, I am sorry for the inconvenience. Please continue to report any email spammers or questionable behavior you see.

Best regards,

Posts: 15
Joined: Feb 2015

T-Cell Lymphoblastic Lymphoma Treatment

Hi all,


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