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Rare and Other Cancers

Posts: 2
Joined: Sep 2016

Primary Peritoneal Mesothelioma

just received this result from the Kaiser oncologist regarding the PET Scan Results via email which does not explain anything in plain english such as the stage of the cancer.  The oncologist said the only 2 options for treatment are either a clinical trial recruiting advanced peritioneal malignant mesothelioma or undergoing chemotherapy treatment using 2 Chemo Drugs.  She did not include surgery as an option. Does this mean the cancer is probably stage III or IV?  Below is the PET Scan results copied from the oncologist email:

Posts: 1
Joined: Sep 2016


Good day all,

abrub's picture
Posts: 1975
Joined: Mar 2010

Appendix Cancer

Dear Friends,

I have always gladly made myself available to help others with appendix cancer.  However, for the next few weeks at least, I won't be answering emails and such, as I have to take care of myself.

I've had a recurrence after 9 years of NED, and am headed to Sloan Kettering for more surgery in a few days.  My anticipated stay is several weeks due to the complexity of the surgery.

Thus, much as I love to help others find the appropriate care, at this point I must take care of myself first.

Posts: 1
Joined: Aug 2016

Non Differential Carcinoma

My Sad story begins, February 2016, as my moms thought processing was played with, her primary doctor did a ct scan and found a baseball sized metasticized tumor in her brain, surgery came and went, but not only did she have a metasticized tumor in her brain, she also had 2 supraclavicular and 3 in her chest....

Posts: 2
Joined: Aug 2016

Cervical Cancer Survivor, if you call it that.

My name is Tina and I am 44 years old.  I have been trying to get some information on what I am going through.

I was diagnosised with cervical cancer back in 2013 but I had all the symptoms since 1990 and the first pap smear was obnormal.  I was turned away by every doctor and E.R. would just leave me out in the waiting (was marked as a drug seeking person).  I was a single mom and if I could work due to the pain and the horrible periods (those were like a faucet and not once a month, happened whenever), the job never offered insurance.

Odeal59's picture
Posts: 1
Joined: Jun 2016

Myelodysplastic Syndrome or MDS

My husband, Rick, was diagnosed with myelodysplastic syndrome (cancer) almost three weeks ago. It is hard to wrap my mind around it. He has RAEB-1, with trilineage dsyplasia. For a long time, we have dealt with a blood disorder, thrombocytosis - a myelproliferative disorder. He has way too many platelets if not controlled by Hydroxurea. Well, he is off the that medication now, and has had six days of Vidaza instead. We are familiar with the inside of a hematology/oncology doctors office.

Posts: 1
Joined: Jun 2016

cancer in the omentum

what to expect, meeting with oncologist on wednesday

Posts: 4
Joined: Jun 2016

HepatoSplenic Lymphoma


I am new to this site.  Just wondering if anyone else has this particular or similar kind of monkey on their back. 

Not trying to be funny but I suppose humour is good...or so I have been told.  Anyway my liver is spiking along with the rest of my bloodwork except my hemoglobins, yay.   

I do not even know how to post tis but I will give it a whirl



Posts: 1
Joined: May 2016

omentum cancer

Hi everyone, before I ask anything I would just like to say thankyou in advance and also wish everyone on the site the best with what they are going through or have survived.

I am looking to speak to anyone male who has had omentum cancer as a metastasis from the bowel or other area as i have been led to believe its very different to people with primary omentum cancer. I know alot of women get it from ovarian but cannot find much information on men who have it or men speaking about having had it.

any information would be very much appreciated.

fighting zebra
Posts: 1
Joined: May 2016

low platelets

Hi everyone. . .I've been on Temador (ONLY) now for 10 monthsfor pancreatic neuro endocrine  and after experiencing the drop in platlet syndrome I did some research and found the power of Papaya Leaf Extract. I buy the tea bags from Amazon and 1 cup a day has lept my platelets in check!!!.  When I travel I substitute payap Leaf Extract Cappsules also from Amazon unless I'm in Hawaii then I just dried the leaves and brewed my own tea.  Anyhow thought I'd share my positive results.  DO your own reserach on Papaya Leaf extract for low platelets.


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