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Rare and Other Cancers

Lizy8200's picture
Posts: 1
Joined: Apr 2016

Stage 4 GBC


I was recently diagnosed with Stage 4 Gallbladder Cancer. My oncologist didn't really give me a very high survivor rate, however I am only 33 and I have yet to see anyone else my age with S4 GBC. Anyone out there have any experience with my situation? I am staying positive and I know that I can beat this, but it would be wonderful to hear from someone who has already beaten this. 




Orange County, CA

33yo Woman, Stage 4 Gallbladder Cancer

Posts: 6
Joined: Feb 2016

Polymorphous adenocarcinoma

I am aware that this is a cancer "survivor" forum. And that I will certainly be. There is not a lot of information available for the tumor I was told I had. 

Dreading the aftermath of my surgery, I applaud every single person on here for their strength, encouragement, and confidence. I hope to be able to do the same. 

Posts: 2
Joined: Feb 2016

PanCan Spouse Diagnosed 10/2015

Please go to Rare and other Cancers and look at my thread that I have posted. Please help me out with what I am going through with my spouse. How can I relate to him.

Posts: 5
Joined: Jan 2016

high grade neuroendocrine carcinoma of the stomach

My 33 old husband has been diagnosed with NEC in stomach with mets to liver. As per the biopsy, ki67 index of stomach is less than 10% while the index for the liver is up to 40% (high grade). He cannot have a surgery because it's too invasive.

irishlass258's picture
Posts: 16
Joined: Dec 2015

Neuroendocrine carcinoma of the neck

My husband was diagnosed with Neuroendocrine carcinoma of the neck. Needless to say, this is extremely rare to have in the neck area. So rare, that his oncologist suspected that the pathology report was incorrect. We live in Northeast PA in a middle size city. On his suggestion, we traveled to Memorial Sloan Kettering for a second opinion. They did comfirm the report and stated that this is a fast growing cancer therefore treatment should be started as soon as possible.

Anonymous user (not verified)


I just diagnosed with rare cancer Gastrinoma  Multiple Endocrine Neoplasia 1 (MEN-1) and would like to meet someone with same. I am so scared and I misdiagnosed for 4 years by a few doctors for simple fasting Gastrin blood test.

Posts: 1
Joined: Jan 2016

pheochromocytoma and adrenal cancer

hi everyone

my question is about inherited risk,my mother had this in 2000 she passed away very young at 44,.i am 35 now.

also is adrenal cancer anything to do with thyroid conditons?

she had congential hypothyroidism,i was diagnosed 2 years ago with it.

i am complicated in all his by being adopoted and having no rights to her medical information,.i only know this as i met her shortly before she passed and her nurse gave me the name of her illness and i ordered her death cert.I am in ireland much less access to preventative care medicine.

Posts: 4
Joined: Jan 2016

Immune System Isulins

In 2015 I went through chemo treatment but had to temporary stop my treatment due to my immune system becoming very low at would place me in a life threaten status if I had continue with my chemo. 

Kings Cross
Posts: 3
Joined: Jan 2016

Gallbladder Cancer - Inoperable Due to Blood Vessel Involvement

Happy New Year from England!

My wife (45) has recently been diagnosed with GBC, after going jaundiced. The U.K. Approach to treatment, is to attempt surgery, before employing chemotherapy. This seems to contradict American practice?

Her Attempted liver resection could not be carried out, as it was found that the cancer had spread to become "involved" with the portal vein and arteries near the bile duct. In the judgement of the surgeons, this made it too risky to attempt to remove it. Has anyone come across surgery in America that can tackle such situations please?

Posts: 1
Joined: Oct 2015

Gallbladder cancer stage IV with liver metastasis

My mom, who is 66, was diagnosed with stage IV GBC. Two oncologists stated that an operation is not feasible at this time. She is on Gemzar and Cisplatin (2 weeks on and 1 week off). A few questions for the board... At what point during treatment was a follow up CT scan done? How long did treatment last? Was surgery ever an option post treatment? What experience have you had with facilities in the NY tri-state area? Thank you.


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