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Rare and Other Cancers

Posts: 1
Joined: May 2016

Neuroendricine Cancer

I was diagnosed late Feb this year and have had my 2 treatment by

 injection. Was looking for further formation and discussions with other Net sufferers.

Posts: 2
Joined: May 2016

New here and wondering if anyone else had choriocarcinoma??

I was diagnosed last February with ovarian choriocarcinoma after a miscarriage. Very rare cancer. It's been one year since my treatment and I feel pretty good physically. I haven't really talked much about what I went thru last year. People just don't understand. They try..but they just can't. So was just hoping someone out here could relate to me just a little bit:). 

Gulzar's picture
Posts: 10
Joined: Apr 2016

Zollinger Ellison Syndrome

Anyone has ZES, MEN-1 or Gastrinoma.

Gulzar's picture
Posts: 10
Joined: Apr 2016


I have diagnosed with Gastrinoma last january in midgut and metastasis to liver on Octreotide LAR injection treatment, I was on PPI (Pantoprazole) for long time and I believe PPI caused the cancer, I would like to hear from other patients if they have same symptom and causes of the cancer. 

Posts: 4
Joined: Apr 2016

Spindle Cell Sarcoma of the Kidney

At the end of 2015 my dad who is only 54 years old was diagnosed with a rare form of kidney cancer called Spindle Cell Sarcoma. In October of 2015 he went for a check up and was told there was a mass on his kidney over the next few months he was going back and forth to the hospital for different checks. In February 2016 he finally had his kidney removed and the mass which turned out to be bigger then his kidney, after the surgery he felt normal again but we waited nervously to find out the results on the tumor turns out it was cancerous...

Lizy8200's picture
Posts: 1
Joined: Apr 2016

Stage 4 GBC


I was recently diagnosed with Stage 4 Gallbladder Cancer. My oncologist didn't really give me a very high survivor rate, however I am only 33 and I have yet to see anyone else my age with S4 GBC. Anyone out there have any experience with my situation? I am staying positive and I know that I can beat this, but it would be wonderful to hear from someone who has already beaten this. 




Orange County, CA

33yo Woman, Stage 4 Gallbladder Cancer

Posts: 6
Joined: Feb 2016

Polymorphous adenocarcinoma

I am aware that this is a cancer "survivor" forum. And that I will certainly be. There is not a lot of information available for the tumor I was told I had. 

Dreading the aftermath of my surgery, I applaud every single person on here for their strength, encouragement, and confidence. I hope to be able to do the same. 

Posts: 2
Joined: Feb 2016

PanCan Spouse Diagnosed 10/2015

Please go to Rare and other Cancers and look at my thread that I have posted. Please help me out with what I am going through with my spouse. How can I relate to him.

Posts: 5
Joined: Jan 2016

high grade neuroendocrine carcinoma of the stomach

My 33 old husband has been diagnosed with NEC in stomach with mets to liver. As per the biopsy, ki67 index of stomach is less than 10% while the index for the liver is up to 40% (high grade). He cannot have a surgery because it's too invasive.

irishlass258's picture
Posts: 16
Joined: Dec 2015

Neuroendocrine carcinoma of the neck

My husband was diagnosed with Neuroendocrine carcinoma of the neck. Needless to say, this is extremely rare to have in the neck area. So rare, that his oncologist suspected that the pathology report was incorrect. We live in Northeast PA in a middle size city. On his suggestion, we traveled to Memorial Sloan Kettering for a second opinion. They did comfirm the report and stated that this is a fast growing cancer therefore treatment should be started as soon as possible.


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