CSN Login
Members Online: 9

You are here

Rare and Other Cancers

Thish1007
Posts: 1
Joined: Jun 2017

Gallbladder cancer stage 4

Hi everyone,

I am Thishanth from Switzerland. I have read your comments on this cancer website. My mother has been diagnosed for a stage 4b gallbladder cancer. Here the doctors say that there is no other options than palliative one (chemotherapy: Gemcitabin/Cisplatin).

First, I wanted the doctors to remove the gallbladder or somehow to do a surgery, but they refused telling me that there was no use. I read on the website that there were lots of survivors of this kind of cancer who did the surgeries.

peachie60
Posts: 2
Joined: Jun 2017

Mesonephric Endometiral Adenocarcinoma

I am wondering if anyone has had or know someone that had Endometrial Adenocarcinoma?  I am trying to find a survivor of this very rare cancer, but so far I have not had any success.  I was diagnosed in August 2015 with this very rare cancer.  I was misdiagnosed for 6 months from various doctors treating for a UTI even though my cultures were normal.  This particular cancer mimics a UTI, the burning when you pee, pain, and lastly spotting in urine. It wasn't until I finally changed GYN doctors again, and this doctor did an endometrial biopsy.

Anorth88
Posts: 2
Joined: Apr 2017

Angiosarcoma of the heart

Hi everyone. 

On April 1st my mom found out she had cancer for the 3rd time

 Shortly after we found out she had a primary angiosarcoma with mets to the liver. Unfortunately,  she died April 27th, and I got custody of my little bother. I am having a super hard time dealing with this, and was wondering if someone has went through this and needed to talk. 

Its extremely hard to find anything out about this cancer,  so i figured I would create a board to help others out also. 

Thank you.

BumbleBea
Posts: 2
Joined: May 2017

NET - Hoxsey Tonic & Rigvir Immunotherapy

Has anyone here had any success using Hoxsey Tonic or Rigvir Immunotherapy for the treatment of NETs during the critical stages.  I hope there are some positive stories to share. Thank you very much.

Westnp1
Posts: 4
Joined: Mar 2017

bartholin gland carcinoma

If anyone has this diagnosis please let me know. We are a rare breed and if anyone had vaginal estrogen prior to diagnosis, Id love to hear from you.

BumbleBea
Posts: 2
Joined: May 2017

Hoxsey Tonic / Rigvir Immunotherapy / Essiac Tea

Urgently reaching out to anyone that has personal experience of using these alternatives to fight cancer; Hoxsey Tonic / Rigvir Immunotherapy / Essiac tea.  
Particulary in relation to neuroendocrine carcinoid during critical stages.  At this stage I am interested in honest personal stories, as time is of the essence. Please do PM me. Thank you.

 

MsLivingLife4Now
Posts: 2
Joined: Apr 2017

Blood Cancer - Polycthemia Vera

Hello,

I'm a 51 y/o female just diagnosed with polycthemia vera. Was told by the doctor this is most commonly found in 60+ y/o men. But doing research I found out ANYONE can develop this. Does anyone else have this rare blood cancer who can tell me how they manage & live with this rare cancer? Any information provided would be most grateful. 

Pattie R
Posts: 5
Joined: Mar 2017

Leiomyosarcoma of the Inferior Vena Cava

I have just been diagnosed with Leiomyosarcoma of the Inferior Vena Cava (IVC). The MRI indicated the mass has invaded and occluded the IVC. There is no evidence of metastatic disease. Does anyone have experience with this type of rare cancer? 

racjaa
Posts: 1
Joined: Mar 2017

It came back

I am new to this site and wondering if there may be others out there like me. I was diagnosed with extrahepatic bile duct cancer and had it surgically removed with chemo after for 6 months (gemzar and cisplatin).  I thought I had beat it but two years later, cancer marker went up and it looks like a small spot in a lymph node.  I had a biopsy done and sure enough there were cancer cells.  My appt. with the oncologist is next week.  I had really started to research this but I am so confused with the number of articles and theories and opinions out there.   How do I kill this thing.

Jennifer SJ
Posts: 1
Joined: Mar 2017

Whipple procedure recovery

My Friend had the Whipple procedure several weeks ago. She has pancreatic cancer. The surgery was successful but the recovery is very difficult. Can people share their experiences with recovering from the Whipple and what helped them get through?

Pages

Subscribe to RSS - Rare and Other Cancers