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Rare and Other Cancers

Posts: 2
Joined: Apr 2017

Blood Cancer - Polycthemia Vera


I'm a 51 y/o female just diagnosed with polycthemia vera. Was told by the doctor this is most commonly found in 60+ y/o men. But doing research I found out ANYONE can develop this. Does anyone else have this rare blood cancer who can tell me how they manage & live with this rare cancer? Any information provided would be most grateful. 

Pattie R
Posts: 5
Joined: Mar 2017

Leiomyosarcoma of the Inferior Vena Cava

I have just been diagnosed with Leiomyosarcoma of the Inferior Vena Cava (IVC). The MRI indicated the mass has invaded and occluded the IVC. There is no evidence of metastatic disease. Does anyone have experience with this type of rare cancer? 

Posts: 1
Joined: Mar 2017

It came back

I am new to this site and wondering if there may be others out there like me. I was diagnosed with extrahepatic bile duct cancer and had it surgically removed with chemo after for 6 months (gemzar and cisplatin).  I thought I had beat it but two years later, cancer marker went up and it looks like a small spot in a lymph node.  I had a biopsy done and sure enough there were cancer cells.  My appt. with the oncologist is next week.  I had really started to research this but I am so confused with the number of articles and theories and opinions out there.   How do I kill this thing.

Jennifer SJ
Posts: 1
Joined: Mar 2017

Whipple procedure recovery

My Friend had the Whipple procedure several weeks ago. She has pancreatic cancer. The surgery was successful but the recovery is very difficult. Can people share their experiences with recovering from the Whipple and what helped them get through?

Posts: 2
Joined: Mar 2017


I thought I would start a new thread for mesothelioma, since most of the posts appeared pretty old.  My Dad was recently diagnosed with mesothelioma.  Our extended family has quite a few cancer survivors.  I can't seem to find anyone that has had mesothelioma.  It is a very isolating feeling.  He is going to well known hospital for treatment.  I don't think we have a handle on how far it has progressed.   Sometimes it is just nice to hear from someone that is in the same boat. 

Posts: 6
Joined: Feb 2017

Signet Ring Cell Carcinoma

my wife was diagnosed with this last month. She has had 2 surgeries and is starting chemo next week. Anyone have this diagnosis and have been through this? Thanks, Tim

Posts: 3
Joined: Feb 2017

Ovarian mass/appendix originated?

I am 32 years old.. always been pretty healthy.. starting in dec 2016, I began to have some right lower quadrant discomfort... but I had been having bouts of constipation/diarrhea so I didn't think much of it.. in January i started my menses and just never stopped.. I had always been consistent. 3 days done.. so I scheduled an appt for my gyno.. on feb 14th she sent me for an ultrasound because she thought my uterus felt enlarged.. also some labs.. ultrasound revealed a right ovary mass measuring 7.5x4.5 and labs CA-125 -141 and CEA 7.5.. I was referred to a gynecological oncologist.

Posts: 1
Joined: Mar 2017


Diagnosed with uveal melanoma in December.  Radiation plaque therapy in January.  Now looking t clinical trials.  Anyone else with this diagnosis?

Posts: 1
Joined: Mar 2017

Lessons from My Father’s Experience (Pancreatic Cancer)


It's been two years since my father's passing. I packed everything up and had to move across the country to get away from it all. Now that I can finally face what happened without going into a dark place and blaming myself, I'd like to share the lessons and specific experiences my family learned with you all. I sincerely hope you won't make the same mistakes we did.


Marie B's picture
Marie B
Posts: 1
Joined: Mar 2017

Pancreatic Cancer

I was given 1 years to live in September 2016. Pancreatic mass was 2/3 of the pancreas. I have been doing chemo and was told yesterday that the mass is gone. I want to share this to give others hope. I am still on chemo. I still have some inflamation in and around the main blood vessel. I am so happy! My doctor said we now dont have an experation date. She even looked surprised. All I read on the internet was so terrible. Seems everyone with Pancreatic cancer dies within 1 year and even the lucky ones no more than 5. I was diagnosed in April 2016. I feel great!


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