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Rare and Other Cancers

Posts: 1
Joined: Jul 2017

Duodenal adenocarcinoma

My dad, age 83, was just diagnosed with duodenal adenocarcinoma in the top section.  He is not a candidate for whipple or for chemo, only palliative radiation.  The adenocarcinoma is bleeding, now controlled, but has not spread beyond the duodenum. They have said 6 month survival, but it is moderately diffused and they said if they had to stage it, it would be 2 or 3.  Does anyone have any insight as to what we we should expect??

Doug D
Posts: 2
Joined: Sep 2016


Posts: 6
Joined: Jul 2017

Adrenal cancer stage 4

Hi all friends! My husband is going through treatment for ACC stage 4 since 2015 October. First he has severe back pain and light fever than after a month the general physician found the 7cm tumor in adrenal left. It spread to liver with many spots and in back L2 bone. After six cycles of chemotherapy his liver tumors responded and shrink in size but in very very mm level.After this he continued with radiation for his back bone tumor 1.x cm.

Posts: 27
Joined: Jul 2017

Septum nasel cancer

Just wondering if anyone has been diagnosed with cancer of the septum in the nasel cavity? What were you early symptoms? How were you diagnosed? I am thinking I may have this as I have many of the symptoms. It is rare but happens. I am in contact with 2 other who have had this cancer. 

Posts: 2
Joined: Jun 2017

Olfactory Neuroblastoma


Our son has been diagnosed with an Olfactory Neuroblastoma.  He's currently living in New York and plans to be treated at Mount Sinai. Anyone possibly have any information on treatment of this type of cancer at Mount Sinai?

I see from other forums that UVA, Pittsburg and Johns Hopkins seem to be the 3 recommended hospitals that have experience with this type of cancer.

candicea's picture
Posts: 5
Joined: Jun 2017

Gallbladder cancer

hi my name is candice, my mom brandy 43 a mother of 7 we are all in are 20s and she has a 1 and 3 year old she was recently diagnosed with stage 4 gallbladder cancer this past 2016 Christmas. Probably the worst Christmas of are lives, but still happy where able to have are mother here. She was put on chemo witch seemed to be working but her lasted MRI results indicated that she had 11 new tumors on her liver and surgery wasn't a option.

Posts: 24
Joined: Jun 2017

Rectal cancer stage 4 and cancer on the abdominal wall

Hi guys,

Last year my husband had been fighting with rectal cancer stage 4, he been in the clear stage for couples months. Today when he had another surgery for his crohns dieses that he have for 38 year (4th Surgeries), the doctor just found that his cancer is back, and now is spread to his abdominal wall. We still don't know what stage of the cancer, are the cancer is aggressive or not. Doctor said that we can't do any treatments while he still have new wounds on his abdominal.

My questions is,if you guys knows or had been through..

Posts: 3
Joined: Jun 2017

Signet cell carcinoma found

Hi everyone! This is my first post because I didn't know where else to turn to. I had an appendectomy and the pathology report show grade 3 signet ring cell carcinom. I still have some tests to complete but wondering if anyone knows about this? Could it have started in my appendix and remain encapsulated since my appendix didn't rupture, or does this usually start somewhere else? It's giving me a lot of sleepless nights because I have 3 small boys, a wonderful wife and am only 37 and have so much to do and see. Everything I try reading shows it starts elsewhere and can cause appendicitis.

Posts: 2
Joined: Jun 2017

Any survivor of duodenal/cholangiocarcinoma?


kisherwood's picture
Posts: 1
Joined: Jun 2017

Olfactory Neuroblastoma


My husband just had surgery to remove a polyp in his nose/sinuses. It was a tumor originating from the Olfactory nerve cells. The biopsy could not confirm whether it was benign or cancerous. He is scheduled for an MRI this week. The doctor said there will need to be more surgery to make sure all of the tumor was removed. What do we do now? Should we request another opinion of the biopsy. Will the MRI tell us if it is cancerous or not. I am concerned it will not be treated aggressively enough if they can't tell if it is cancer or not. Did anyone else have this experience?


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