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Rare and Other Cancers

Posts: 2
Joined: Jan 2018

Ct scan and pancreatic cancer


Im 47 and from the UK. Im not sure if i should post this as i havent yet been diagnosed with pancreatic cancer.

Around a year ago i started getting mid back pains on and off. Then i noticed 6 months ago i also had back pain inbetween my shoulder blades continuously.

Around 4 months ago i started getting a pain just below my left ribs and also bad indigestion after a meal for a few hours. During this time my stools went light brown and I noticed undigested food in my b/m's.

Posts: 1
Joined: Jan 2018

Lymphomatoid Granulamatosis

I have recently been diagnosed with grade III lymphomatoid granulamatosis (LYG), it is in both lungs. Pathology report also indicated diffuse large B cell lymphoma. I am a rare case. I am starting 6 rounds of chemo (R-CHOP) tomorrow. I am reaching out as there is not a lot of information online regarding LYG and I see the most recent time this was discussed in this forum was years ago. If anyone has had this in the past or know someone with it and has any suggestions regarding what worked or didn't work as far as treatment please let me know. Thanks in advance.

Posts: 2
Joined: Dec 2017

Adenocarcinoma ex goblet cell carcinoid - signet type

Hi everyone - My mom was recently diagnosed with Stg III adenocarcinoma ex goblet cell carcinoid w/ signet type. Very rare and even more confusing. Mom had hemicolectomy and had 2/16 lymph nodes. The surgeon is recommending 6 months chemo.

Any appendix cancer specialists in the PA/DC/MD area?

Not sure what to expect with this diagnosis at this point. Anybody know or has experience with this type of CA?

My email is aew175@gmail.com. Any information appreciated! 

Posts: 4
Joined: Dec 2017

cholangiocarcinoma/Bile duct cancer Chemo options


My name is Danbee and my Dad was diagnosed with Stage III cholangiocarcinoma July 2017.

They told him the tumor is too "long" to be completely removed so doctors planned to go through 3 months of chemo to hopefully "shrink" the tumor and go through 5 cycles of radiation/chemo together and then surgically remove it.

Posts: 3
Joined: Nov 2017

Sacrum cancer

  Hi! MY name is Mike.

seslie johnson
Posts: 7
Joined: Nov 2017


has anyone had this surgery

dp's picture
Posts: 1
Joined: Nov 2017

Neuroendocrine cancer ovarian origin

Hi, in February of this year I was diagnosed with stage 3  Neuroendocrine  cancer ( small cell ) poorly diffenrentiated high-grade tumor (23cm) of ovarian origin. I find it very difficult to find information on this type of cancer. I had three cycles of chemo ( 3 days each cycle of cysplatin and etoposide)then surgery, then another 3 cycles of chemo. On November 7th I will be attending for my 3 month checkup. Is there anyone else with this kind of cancer? 

Posts: 2
Joined: Oct 2017


i am 10 days out of surgery and this is no fun. any advice out there?

Posts: 1
Joined: Oct 2017

My Mother has Soft Tissue Leiomyosarcoma in Thigh 35+cm tumor

Hi, I really don't know what to say so I'll just start at the beginning. 

My siblings and I all have a strained relationship with our mother for different reasons, and we've all had to distance ourselves, not only for ourselves but for our children's mental well being.

Posts: 20
Joined: May 2017

Signet Ring Cell Adenocarcinoma of Rectum

I opened a new forum topic on this type of cancer in the Colorectal Cancer Discussion group.


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