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Rare and Other Cancers

ginger
Posts: 2
Joined: Feb 2001

Last scan showed 2 tumors are half the sz. they were;

But the Adrenal tumor is the same. At least it has not grown. I am going for my 5th Chemo treatment 3/23/01 , after the 6th ,will have another scan.

I am having allot of bone pain 2 days after Chemo and it has almost reached the point to where I can hardly walk and also I am out of it for 9 to 10 days. The DR.is having me try a herb called "Glutamine" Sure hope it helps as I am not looking forward to that overwhelming pain again.

I am looking forward to those tumors being zapped though :) so just need to go with the flow here and be thankful for the 11 days that I feel human again.... the Last visit with Dr.said we looking forward to Xmas now instead of April ( thats how long he gave me to live if Chemo did not work). I am already planning my Easter meal and having all the kids and grandkids over :)....Ginger

ksprague
Posts: 1
Joined: Mar 2001

Pseudomyxoma Peritonei

Hello friends!
I am new to this site and am very interested in hearing from others with this rare cancer which I was recently diagnosed. It started with a surgery a few weeks ago for what we thought was ovarian cancer. They removed my ovaries, uterus, omentum, appendix and several cancer nodules. I am home recovering and have been camped out on the computer finding as much info as possible re. this disease. Much of what I've found seems contradictory which is why I'd like to hear from others. I don't meet with my doc until the end of this week to discuss treatment options, where we go from here, and have him answer a whole list of questions that my husband and I have! Because this cancer is so rare there is really no standard form of treatment, as I'm sure many of you can empathize with. My personal email is ksprague2000@yahoo.com
You can write me there or here. I hope to hear from someone soon as the unknown is making me crazy!! Thanks--Kim

physio
Posts: 2
Joined: Mar 2001

hidradenocarcinoma

Hi People,

I'm a physiotherapist.
I'm looking for information about hidradenocarcinoma or sweat gland cancer. It's very important as I really wish to help my patient in the best way possible and this type of cancer is apparently very rare.

Please help me ASAP. My email is osa@maltanet.net

Regards,

Owen

ojbonnie
Posts: 2
Joined: Jan 2001

Bartholin's Gland Sarcoma

Does anyone else out there have this diagnosis? I haven't met anyone who knew what the Bartholin Gland is! Imagine that's the same feeling for others of the "rare cancer" sort. Interesting category to be in for all of us.

I am just starting in this group and with this diagnosis (2 surgeries so far) and there is much to learn, I can see. Bonnie

ginger
Posts: 2
Joined: Feb 2001

I have cancer of the pancreas,lung and adrenal ;

In Dec.of 99,I was told I had maybe 6 months to live.This was after I went Jaudice 7 days after getting out of the hopital from a pancreas attack.The mass in the pancreas shut it down. They put a stent in and the bowel and kidney started working again,Thank God:)
One Dr. wanted to do radiation on the mass in the lung and set me up for that. The day that I was suppose to start that they phoned me and said they could not do me, that as the person that made the sheilds would not be there.( As many prayers were being said for me by my loving family and friends I felt God had a hand in this:) I also had my 1st appointment with oncologist. He said he wanted to start me on aggressive chemo treatments as the chemo would work on all three cancers not just one at a time as that was what the radiation would do, made sence to me! After I had 3, once a week, 8 hour treatments I did a cat-scan. The mass in the lung went from walnut size to grape size. The mass in the pancreas also decreased in size almost to half...the adrenal stayed the same. So I will do more chemo and then another scan.
On the first day my oncologist told me that he wanted to do chemo , I ask him how long did I have to live at this point in time ,he said, maybe 2 months.....

On the day ( this last Monday) he told me the good news on the shrinking of the tumors,
I was too excited to ask him any other questions but plenty of them are sure popping up now. I could call him I suppose and ask him the biggie " does this mean I am going into regression?" and others... but I am going to wait until after the next scan, Some of the The reasons? Counting off the days of those 2 months would make around my 64th birthday, Not Having all the kids over for Easter and on and on. All that might not make any sense to whoever reads this but it works for me:) at this point in time.It also helps me endure the treatments and everything that goes with them afterwards. Thats all for now ,so hugs and prayers to all of us cancer victims, Ginger

cherylt
Posts: 6
Joined: Jan 2001

mucoepidermoid salivary gland

If there is anyone with this type of cancer, please contact me. My mom was just diagnosed stage II.
Please reply.

half
Posts: 1
Joined: Nov 2000

coping with treatment

my husband was Dx with pancreatic ca in August, 2000
and had 80% of his pancreas removed. he is now in
treatment. the problem is his complaining of the
smell of the radiation and chemo. i was wondering
if anyone else has that problem and i need any
help for remedies?? please help, he says he can smell it
all over the house.

sara's picture
sara
Posts: 1
Joined: Nov 2000

AML7

Hi! I am a survivor of AML7 (Megacariosidic Lukemia) ok i sort of spelled that wrong. But anyways i'm 15 and was diagnosed at age 3mo. I am interested in talking with other survivors in order to really understand my disease since i do not remember ever having it. ~Sara~

luckyelsie
Posts: 1
Joined: Oct 2000

Teratoma

I am a survivor of teratoma, and I am interested in talking with another survivor of the cancer.

vickin
Posts: 2
Joined: Jul 2000

liposarcoma

I am interested in hearing from someone who has been diagnosed with liposarcoma in the past 5 years.

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