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Rare and Other Cancers

Posts: 1
Joined: Sep 2001

My Mother was recently diagnosed with pancreatic cancer

My mom was recently diagnosed. Last week, they attempted to do the whipple procedure. However, were unsuccessful due to the fact that the tumor was on 2 of the arteries. In approx 2 weeks, she will be starting chemo and radiation which will last approx 6 months to hopefully shrink the tumor so it will be operable. Any info would be greatly appreciated.

Posts: 1
Joined: Sep 2001

failed whipple

my mother had an attempted whipple as she seemed to be a good candidate, but the surgery was not completed due to blood vessel encapsulation. the surgeon did palliative bypasses and closed her up. she now faces 5-6 weeks of recovery and then chemo/radiation is being recommended. all i see in the literature is that chemo/radiation are palliative and do not extend life. any thoughts from anyone?

thanks, ann

Posts: 1
Joined: Aug 2001

Any help?

My brother has been diagnosed with adenocarcinoma cancer. He is not in the United States. He is in very healthy condition overall and they can not find any tumor. He has cancer cells in his lung lining. The doctors are baffled, never seen anything like this before, don't know what to do. I am hoping someone else has had this experience and can direct me in some direction so I can help. I'm hoping that cancer research here in the United States has seen something like this and that there is hope.

Any comments would be appreciated.

Thank you.

Posts: 1
Joined: Aug 2001

Lipoid Cancer

Does anyone know anything about this type of cancer? I had this diagnosis and am looking for information.


Posts: 3
Joined: Mar 2001

tonsilar cancer

I was wondering if anyone out there would have any information about this type of cancer. I can't find anything out about it, and it's driving me crazy!!! I was diagnosed with this type of cancer in March, 2001. Also if anyone else has even had this type of weird cancer, please e-mail me at birdbrain@csinet.net Thank you, Sherry

Posts: 1
Joined: Jun 2001

Pancreatic Cancer/Whipple procedure

My mother was diagnosed last month with pancreatic ca, and underwent the Whipple procedure to remove the tumor. All of the duodenum was removed, 2/3 of the stomach and 1/3 of the pancreas. The tumor was growing in such a way as to occlude the common bile duct causing jaundice. The tumor did not show on any CT scans, and the ERCP was not completed due to the tumor occluding the bile duct. The common bile duct was also punctured during the ERCP. Now, just over three weeks post op, she is facing a "failure to thrive" in that she is unable to eat much due to the 2 to 3 ounce pocket left of the stomach, and the lack of taste in any and all foods. What tastes good once does not the next time, and most foods have no taste at all.
Does anyone have any suggestions on improving the taste of foods, or alternative feeding methods? She does have a J-tube in place for tube feedings, but these were causing diarrhea and nausea and vomiting. The tube feedings were stopped about two weeks ago.
She is down from 146 lbs to 117 in less than two months since the illnes began showing symptoms. An abscess did form secondary to the puncturing of the common bile duct during the ERCP, which has been drained, and antibiotics given, Keflex 500mg QID for 10 days (one dose left).
I have tried various foods, wasted a lot of food items along the way, along with Carnation INstant Breakfast milkshakes, breakfast bars, etc...
With the low survival rate of pancreatic ca victims, any and all help is greatly appreciated.

Posts: 1
Joined: Jun 2001


My 76 year old Dad just finished radiation and chemo for pancreatic cancer. The Doctor is thinking of starting him on Gemzar. Has anyone had any experience with this? What does it do? The side effects don't sound good at all. My e-mail is etchr@aol.com

Posts: 10
Joined: Jun 2001

My second best friend blew me off my feet with the news of her diagnoisis

After my mother died, I almost died of a broken heart. I was in a state of shock, never in my life did I experience that kind of pain. I became bitter and welled in self pity, pushing everyone and everything that cared for me away. I was in such denial and anger I didn't see depression, and I mean deep deep depression, (for I am a psych nurse)I didn't see it coming. I lost alot of friends except 2. They kept coming back for more abuse I could sling, and I thank God they did. I guess I was so heartbroken and in such pain from loosing my mom that I felt if I pushed everyone away, I was really saving them from the pain that goes along with the loss of a loved one. Did that almost backfire. My 2 best friends, true friends, both have recently been diagnoised with cancer. One, a fellow nurse(who are the worst patients,I know for I am horrible as a pt)with breast ca and recently had surgery and my younger friend the strong gorgeous X Marine, who is raising her 2 strong young boys herself as well as going to school to better herself career wise. An extremely strong willed fighter and great mom as well as friend. This girl use to drag me out of bed literally, no matter how horrible I was to her, she was always there. When I found out about her news I was shocked, as usual she was the fighter, with a positive attitude and not showing any fear(on the outside of course). I didn't know what to do, things were happening too quick, she already had her port a cath in. I was loosing my mind, How could this be happening, (sadly I was thinking how could this be happening to me.) How horrible I feel that I could be so selfish. To heck with me how could this be happening to the strongest person I know and how brave she is. I needed her more than she was letting on that she needed me. I was dazed. I needed to do the right thing, I knew I needed to buck up and stop thinking about me,I needed to be there for her for as strong as she is she is also I imagine, so so scared. I'm scared to death of losing her, I'm scared that I'll get that feeling again that here I am a nurse and I couldn't save someone, someone I love and need. All those "what if I did this or that" just watching without being able to save her.
I wear this gold medal that was my mom's all the time. I went over to her house and took off the medal and put it on her neck for that is what my mom would of wanted(I told her it was a loan only) she was also close to my mom, and she knew how much that metal means to me that she cried for she now knew how much she means to me.
how can I help my friend, who is so strong, how can I break that exterior and let myself in and let her know that I can be the strong one right now till she gets back on her feet. I'm open to any suggestion
thanks sue

gdpawel's picture
Posts: 538
Joined: May 2001

Ovarian Metastasis

Brain metastasis is a rare complication of ovarian cancer with only 67 well documented cases in literature. A multi-institutional study of 4027 ovarian cancer patients over 30 years identified only 32 cases while an autopsy study of ovarian cancer reported an incidence of 0.9%. Leptomeningeal metastasis is also a rare complication of ovarian cancer with only 14 cases reported by 1994.

Posts: 1
Joined: Apr 2001


Hi everyone! I suffer pleural mesothelioma arising from past asbestos exposure. Is there anyone out there?


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