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Rare and Other Cancers

tanagreg
Posts: 2
Joined: Aug 2018

Financial Assistance

My wife was diagnosed with Olfactory neuroblastoma back in March. It is located in her nasal cavity, brain, two lymph nodes in her neck, and behind her throat. She had extreme chemo treatments every 21 days with great results. They started to do the surgery but backed off after cancer cells were detected in an area thay couldn't reach. They are now sending her through 33 treatments of radiation (5 1/2 weeks) accompanied with chemo once a week.

Teresa Watts
Posts: 1
Joined: Jul 2018

Vaginal Cancer

 

Dear Sir/Madam:

 

I have vaginal cancer for which I have had surgery and radiation treatment.  Since this appears to be an unusual form of cancer, there is very little information that I can find on the internet.  Oncologists and gynolcologists have not been very helpful in this regard.  I am 69 years old and have gone beyond the anticipated date of  my predicted death.

 

Would you be good enough to direct me to a website or even a chat room so that I can get more information.

 

Kdlv
Posts: 2
Joined: Jun 2018

Peritoneal Mesothelioma

I’ve just been diagnosed, and I know almost nothnight.  Does anyone out there have the same kind of mesothelioma?

Kdlv
Posts: 2
Joined: Jun 2018

Peritoneal Mesothelioma

I’ve just been diagnosed, and I know almost nothnight.  Does anyone out there have the same kind of mesothelioma?

Kimber715
Posts: 1
Joined: Jun 2018

Pancreatic cancer

Why isn't there a listing for pancreatic cancer? It's one of the most deadly.  How do I get to those discussions?

 

Thank you in advance

1geezer
Posts: 1
Joined: Jun 2018

Early diagnosis of Peritoneal mesothelioma

I have a dear friend (66 year old female) recently diagnosed with Peritoneal mesothelioma. It was discovered incidentally when a urologist was preparing to remove a kidney due to a mass (not biopsied) found on a CT scan. When the camera was inserted into the abdominal cavity numerous flat, white leions were found on her peritoneum. The kidney removal was aborted and a biopsy was taken. The biopsy,after much confusion, was determined to be malignant Peritoneal mesothelioma (low grade, epithelial).

LeoLady
Posts: 27
Joined: May 2018

Gallbladder Cancer Info

Here is some info from an email response I just received in regards to a question I submitted to the Nagourney Cancer Institute regarding their current research and treatment for gallbladder cancer.  This may be redundant for some but thought I'd share it anyway in case it is helpful for others:  

 

Cholangiocarcinoma is quite common in Asia and rising in incidence in the western world. It is broken down into intrahepatic and extra hepatic.

ptldaz
Posts: 1
Joined: May 2018

Sacrum cancer

My husband 57 just diagnosed thru MRI, biopsy tomorrow , I can't find much info.  So scared  

theythink melanoma sacral   No cancer anywhere else in body we know of   Please if someone knows any positive,possible survival let me know   I'm terrifief

 

LeoLady
Posts: 27
Joined: May 2018

Gallbladder Cancer Diagnosis

Hi -

Elizmcar
Posts: 1
Joined: May 2018

Scared Malignant Sacrococcygeal Germ Cell Cancer Surviver

A little background: during my infancy for a year (back in 1989) I was hospitalized at Schneider’s Children’s Hospital (Now known at Cohens Children’s Hospital) in Long Island, N.Y. I was treated for malignant sacrococcygeal germ cell tumor. I had undergone multiple transfusions, chemotherapy rounds, bone marrow transplant, and ultimately reconstructive revision of the colorectal coccygeal area. 

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