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Shipley Prostate Cancer Research Center

Type: 
Web site
Description: 

The Shipley Center's website offers easy-to-follow, impartial information on practically everything anyone needs to know about prostate cancer. There’s “Prostate 101,” an overview about the prostate, information about prostate cancer and getting a second opinion, and a checklist of symptoms; information on screening; treatment options; and the state of research.

Source: 
Boston University School of Medicine
Contact information: 
mpober@bu.edu
Publish date: 
September 19, 2017

CMS Begins Reporting on Hospital Return Days!

Type: 
Web site
Description: 

What are the Hospital Return Days?

Hospital Return Days are the average number of unplanned days patients who are hospitalized for certain conditions spend back in the hospital soon after they are discharged. Hospital Return Days include time spent in the emergency department, under observation, or in an inpatient hospital unit. CMS (the agency behind Medicare & Medicaid) recently updated its Hospital Compare website to provide information on hospital return days for patients who visit the hospital for a heart attack or heart failure. A video, which is available on www.corevideos.org, provides more information on hospital return days, and why they’re important!

How is this information useful to me or my family?

This information can help you, or a loved one, learn more about your local hospital and make an informed decision when it comes to your medical care.

What other information is available on Hospital Compare?

Hospital Compare provides you with a lot of interesting information. For example, it can tell you how often people die after visiting a hospital for a certain condition, how often complications occur after certain surgeries, and how likely patients are to return to a hospital for unplanned medical care within 30 days of leaving the hospital.

Information is available for a variety of medical conditions and surgical procedures, including:
*  Chronic Obstructive Pulmonary Disease (COPD)
*  Heart Attack
*  Heart Failure
*  Pneumonia
*  Stroke
*  Coronary Artery Bypass Graft (CABG)
*  Hip or Knee Replacement
Using this information, you can choose the hospital that is best for you.

For example, you can see how hospitals in your area compare with each other--and with the nation as a whole—when it comes to treating a heart attack. 

Why does CMS publicly report this information?

CMS’s goal in reporting this information is to improve health care. CMS evaluates hospital quality of care and gives incentives to hospitals to make improvements that result in better care.

How do I find this information on Hospital Compare?

You can access the website, for free, at www.medicare.gov/hospitalcompare/search.html. Enter your zip code, select a hospital (or hospitals) to compare, and view the Complications tab, Readmission & Deaths tab, or the Payment & value of care tab to see updated results.

Don’t pass up the opportunity to take advantage of this valuable information!

My Adult Brain Stem Tumor Story

Type: 
Web site
Description: 

I am 37 year old and on May 27th, 2016, I was diagnosed with a Brain Stem Glioma C71.9 .Since this is a very rare tumor to find in adults, I decided it'd be a good idea to share my story and experiences.

Source: 
www.brainstemtumorlady.com
Author/Speaker/Performer: 
Angelica B
CSN_Lena's picture

Free pillows for port site

Type: 
Web site
Description: 

This charity mails free port pillows that clip onto the seat belt and protect the port from being rubbed by the seat belt.  

The port pillow also feels really good over a tender sentinel node incision site for breast cancer patients. 

There is a form on the site for ordering the pillow either for yourself or for someone that is getting a port.

Puffin2014's picture

Free pillows for port site

Type: 
Web site
Description: 

 

https://www.gofundme.com/Portpillows

This charity mails free port pillows that clip onto the seat belt and protect the port from being rubbed by the seat belt.

The port pillow also feels really good over a tender sentinel node incision site for breast cancer patients.

There is a form on the site for ordering the pillow either for yourself or for someone that is getting a port.

Source: 
https://www.gofundme.com/Portpillows
Publish date: 
June 2016

My Careful, Joyful Life...after cancer

Type: 
Web site
Description: 

Hello Community,
October 11th will mark 2 years since my stage 2B breast cancer diagnosis. In the last year I've spent a lot of time thinking about what kind of survivor I want to be and putting my professional experience as a researcher/writer and yoga teacher to work developing strategies to prevent a reoccurrence and deal with the fall out from chemo, radiation, surgery, lymphodema, and reconstruction. I started a blog to help myself stay on track and provide a resource for other survivors. I would be so honored to hear what other survivors thought about it. Please visit and comment if you can and pass on to anyone else you think it might help. I'm sure many of you can understand how much the project means to me. I had such a hard time finding resources that were valid, geared towards a younger audience, and didn't upset me once I got to the other side of treatment and really dove in. The resource I've tride to create is my solution to that. The blog web address is carefuljoyful.com the blog is called My Careful, Joyful Life...after cancer.

Source: 
www.carefuljoyful.com
Contact information: 
sszeglowski@gmail.com
Author/Speaker/Performer: 
Sara Szeglowski

Cervical Cancer Survivor Stories and Information

Type: 
Web site
Contact information: 
You may contact Lisa for information
Alexandra's picture

Smart Patients

Type: 
Web site
Description: 

Smart Patients is a website where cancer patients and caregivers can learn from each other about treatments, clinical trials, the latest science, and how it all fits into the context of their experience. At Smart Patients, the term “patients” includes family members and friends, patient advocates, and survivors who use the website on behalf of patients. They are all part of the patient community.

It is currently focusing on cancer, because patients with different cancers can learn a lot from each other, especially when they are taking similar drugs, have similar complications, etc. Cancer, treatments and side effects, where to find help, how to cope with disease, clinical trials, research into disease and treatments, prevention, recurrence, end of life, grieving, and related topics are all important topics members can help each other with.

breastcancer.org

Type: 
Web site
Description: 

Website that has informational pages on breast cancer, and discussion board forums divided into categories. I use this on a lot for post mastectomy pain, LE, DCIS, and Mastectomy without reconstruction.
I highly recommend anyone new read the informational about cancer and breast cancer.

Sooze3821's picture

Small Cell Cancer (Non-Lung ) People with all types of cancer are welcome.

Type: 
Web site
Description: 

Another place to chat with others. Share ideas and interesting articles. We are collecting a lot of information, please stop by.

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