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Member Resource Library

CSN_Elena's picture

Policy Lab Clinical Trial Tool

Type: 
Organization
Description: 

"Our goal at Policy Lab is to bridge the information gap between government sponsored clinical trials and patients, and are excited to assist in solving that problem via our clinical trial listings on our new website."

Policy Lab was created to help connect patients with high-quality clinical trials across the country. Our aim is to educate those interested in learning about clinical trials, as well as offer helpful information on various health topics.

Policy Lab has created informational guides and analysis on clinical trials through a variety of online mediums. Our goal is to be the leading resource for information on clinical trials for both patients and clinical professionals. In an effort to support this goal, we provide an array of educational services and resources from news and analysis to a large collection of trial listings in order to connect patients with providers.

The website has condition focused pages that will update automatically whenever a new clinical trial is available. The website also features international based clinical trials for individuals who do not reside within the United States. 

 

 

 

Source: 
Robert-Organization Contact
WardE's picture

The Mesothelioma Center

Type: 
Organization
Description: 

The Mesothelioma Center at Asbestos.com is an amazing resource that anyone battling an asbestos-related disease should consider checking out. I was diagnosed with pleural mesothelioma in 2012, and I didn't know much about this cancer other than what you see in the TV commercials. When I started looking for information to help me understand this rare diagnosis, I came across Asbestos.com, and I’m so thankful that I did. The resources and support they were able to provide absolutely changed my life. I was able to connect with their on-staff registered nurse, Karen Selby, who helped answer many questions about my treatment options and where the best cancer centers are for my specific diagnosis. The Mesothelioma Center also has tons of information about the latest treatment options, clinical trials and nutrition tips that can help empower you throughout your battle with this rare cancer.

Source: 
https://www.asbestos.com/
Contact information: 
Phone: 866-933-0342 Email: patientadvocates@asbestos.com
Author/Speaker/Performer: 
Emily Ward
Publish date: 
Friday, December 6, 2019

Mesothelioma Cancer Alliance

Type: 
Organization
Description: 

The Mesothelioma Cancer Alliance has been building its encyclopedic cache of information since 1996. We provide honest, factual, and helpful information to the people affected by asbestos-caused health complications like lung cancer, asbestosis, and mesothelioma. Asbestos is a mineral used mainly throughout the 20th century to strengthen materials and provide them with resistance to heat and electricity. However, it is extremely dangerous when inhaled or ingested, causing many people who worked with the mineral to receive difficult diagnoses. Information included on the MCA site is HONcode certified for medical veracity and reviewed by a team of experienced writers, medical journalists, and doctors. At the MCA, we connect these affected communities to information, support, and legal help to rebuild their lives.  

Source: 
Mesothelioma.com
Contact information: 
Phone: 1-203-265-2424 Fax: 1-203-269-4914 Email: webmaster@mesothelioma.com By Mail: 35 Thorpe Avenue, Suite 101 Wallingford, CT 06492
Ginny_B's picture

Prosthetic Breast Forms

Type: 
Organization
Description: 

We provide handmade custom prosthetic breastforms that are knitted and/or crocheted. Our breast forms are made by volunteers and are provided at no cost to anyone who has had a mastectomy or lumpectomy. Our generous volunteers buy the yarn, lovingly donate their time to produce beautiful custom forms, and pay the shipping costs. We do not accept monetary donations. All we ask is that recipients share our website information with others who may need our beautiful and truly awesome breastforms.

Only the highest quality 100% cotton fiber yarn is used, which is cooler, lighter and much more comfortable than traditional silicone prosthetics. There are color options available and recipients may choose a breastform with or without nipples. 

Contact information: 
Ginny Bender ginnybender@gmail.com
Author/Speaker/Performer: 
Ginny Bender
Publish date: 
August 17, 2015
CSN_Lena's picture

Hope Connections for Cancer Support

Type: 
Organization
Description: 

Hope Connections for Cancer Support helps people with cancer and their loved ones deal with the emotional and physical toll that comes with a cancer diagnosis.  We provide, free of charge,  support groups, educational workshops that provide learning opportunities and  and mind and body classes help rebuild strength and reduce the high level of stress that comes with a cancer diagnosis to cancer patients, their caregivers and survivors.

Our programs are available to anyone affected by cancer regardless of the cancer diagnosis, stage of disease, age, economic status , race, religion, sex or where they receive/received  their medical care.  We do not provide medical treatment or advice.

Publish date: 
July 17, 2015

Cancer and Careers

Type: 
Organization
Description: 

Cancer and Careers now offers a free Resume Review Service to help you gain confidence and put your best self forward after your cancer diagnosis.  Click here for more information about the service and get started.  A career coach will send you personalized feedback on your resume to help you stand out to an employer. 

Cancer and Careers offers comprehensive information and services for cancer survivors who are looking for work (including Ask the Experts teleconferences, a Career Coaching Center and Job Search Tools) to  help them get back to work and regain confidence in the process.  

PhillieG's picture

Fight Colorectal Cancer

Type: 
Organization
Description: 

Not to knock THIS site at all, it provides a VERY important service as far as interactive support but the Fight Colorectal Cancer Website is very informative. Links on what WE can do as far as being our own advocates to get more funding for research.

rickoshea711's picture

Bikers Against Cancer

Type: 
Organization
Description: 

https://www.facebook.com/#!/groups/200519283369933/

Leukemia and Lymphoma Society

Type: 
Organization
Description: 

A very helpful and friendly organization. I recommend talking to them if you're having any financial issues with your treatment.

Adenoid cystic carcinoma

Type: 
Organization
Description: 

Wonderful foundation with current updated information for survivors dealing with adenoid cystic carcinoma. Also sister site that is international for survivors to connect with others for good sound information on what to expect, and new trials others are in. We also just chat to see how each other are doing. Can actually call them on the phone to ask questions, and yes you talk to a real person !

Source: 
n/a
Contact information: 
accrf(foundation) or accoi (sister site) I found them using yahoo search.
Author/Speaker/Performer: 
adenoid cystic carcinoma organization@yahoogroups.com
Publish date: 
2000 ?

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