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"Breast Cancer" For Dummies

Type: 
Book
Description: 

Want to know about breast cancer but find it confusing? This book walks you through the process in easy-to-understand step-by-step fashion. Underline the parts you're interested in, then take this book with you to your doctor, and empower yourself to ask questions. With this book, you can do it.!

Survivor's Secrets (advice to you from women who have walked this path before and have not only survived but thrived) are included throughout the book. Who knows better than another breast cancer survivor what you're going through? Let these survivors guide you on your way, and always know that you are not walking alone!

Source: 
Wiley and Sons
Author/Speaker/Performer: 
Ronit Elk, Ph.D. and Monica Morrow, M.D.
Publish date: 
July 2003

After Breast Cancer Answers to the Questions You're Afraid to Ask

Type: 
Book
Description: 

Through the voices of 42 breast cancer survivors, Musa Mayer discusses the uncertainty and fear individuals commonly face after treatment. She also reviews scientific literature on survival statistics and explains what is known about follow-up visits and testing. (These words are excerpted from the book jacket.)

Source: 
O'Reilly
Author/Speaker/Performer: 
Musa Mayer
Publish date: 
2003

Office of Minority Health (OMH)

Type: 
Web site
Description: 

The Office of Minority Health (OMH) was created by the U.S. Department of Health and Human Services (HHS) in 1985 as a result of the Report of the Secretary's Task Force on Black and Minority Health. Under the direction of the Deputy Assistant Secretary for Minority Health, OMH advises the Secretary and the Office of Public Health and Science (OPHS) on public health issues affecting American Indians and Alaska Natives, Asian Americans, Native Hawaiians and Other Pacific Islanders, Blacks/African Americans, and Hispanics/Latinos.
The mission of OMH is to improve the health of racial and ethnic populations through the development of effective health policies and programs that help to eliminate disparities in health.

trounstinej's picture

Almost Home Free

Type: 
Book
Description: 

This is a book of poetry about the journey of breast cancer. Real, honest but upbeat, reviewers have said "blessed by the language of healing," "an extraordinary collection of poems." Anyone who reads this book will certainly think of their own life and how very precious each moment is.

Source: 
Pecan Grove Press
Author/Speaker/Performer: 
Jean Trounstine
Publish date: 
Feb. 1003

National Coalition of Hispanic Health and Huan Service Organizations (COSSMHO)

Type: 
Organization
Description: 

The National Alliance for Hispanic Health is the oldest and largest network of health and human service providers servicing over 10 million Hispanic consumers throughout the U.S. Since 1973 we have grown from a small coalition of visionary mental health providers to a large, dynamic, and strong group of organizations and individuals.

Contact information: 
1501 16th Street NW Washington, D.C.
pandora68's picture

Don't Sit in the Shade Forever

Type: 
Article
Description: 

A "survival guide" of sorts for neck and head cancer patients going through radiation therapy. Part of the BC Cancer Agency's Library.

Source: 
n/a
Contact information: 
phone: 604-732-4580 (Vancouver, BC Canada)
Author/Speaker/Performer: 
Ann McCutcheon

Multiple Myeoma Research Foundation

Type: 
Organization
Description: 

A website devoted to research and finding a cure for multiple myeloma. It offers support to patients, families and caregivers. It responds to the questions of newly diagnosed patients as well as keeps them informed of clinical trials and breakthroughs. The contributing editor is Kathy Guisti, herself a multiple myeloma survivor. Dr Ken Anderson, from the Dana-Farber Cancer Institute is on the board of directors, and is a leading researcher in finding a cure for this deadly disease.

Contact information: 
3 Forest Street New Canaan CT 06840 phone: 203-972-1250 fax: 203-972-1259 themmrf@themmrf.org

AdenoCarcinoma of Unknown Primary Online Support List

Type: 
Support group
Description: 

Free, unmoderated discussion list for patients, family, friends, researchers, and physicians, to discuss clinical and non-clinical issues and advances pertaining to cancers of unknown primary. This includes information about patient experiences, psychosocial issues, new research, clinical trials, and discussions of current treatment practices as well as alternative treatments. The quality of the exchanges is based on the monitoring of the list by a group of experienced volunteers. Information about ACOR (the Association of Cancer Online Resources, Inc), a highly respected 501 (c) (3) non-profit organization, incorporated in New York State, may be found at http://www.acor.org.

Contact information: 
Association of Cancer Online Resources (ACOR) NY NY joanmed@pacbell.net

VADguard

Type: 
Web site
Description: 

website shows a cushioning device that protects an inplanted chemotherapy port from pressure by an automobile seatbelt/shoulder strap.

Cancer, Shmancer

Type: 
Book
Description: 

If justice delayed is justice denied, the same can probably be said for health care. Early diagnosis is the key to effective treatment of most diseases. In TV star Fran Drescher's case, an accurate diagnosis came just in time. Cancer Schmancer is Drescher's fascinating, first-person account of her two-year battle with uterine cancer.

If you are expecting a woe-is-me recitation of a celebrity's encounters with an uncaring and evil healthcare system, this is not the book for you. It is, instead, a medical case history told in a frank and wonderfully humorous style. And it is a call to arms to any woman or man who anticipates seeking medical care in the future.

Drescher describes her visits to a series of healthcare professionals in an attempt to deal with recurring gynecological symptoms. Good and competent doctors failed to screen her for uterine cancer because Drescher fell outside the statistical parameters for the disease ? she was too young and too slender to be at risk. Uterine cancer was finally identified after a relatively simple test.

Her encounter with cancer is placed in rich context, interwoven with stories about her close-knit family, her dissolving marriage, career challenges, a new romance, her beloved dog, and the comforts and importance of close friendships. This is important material. It's a reminder that context is important when dealing with disease. Anyone who has ever experienced the modern healthcare system knows that as patients, we are rarely viewed in context. Yet our life stories, our fears, our hunches and our observations are as important to effective diagnosis and care as the medications and surgical intervention we receive. Unless we learn all that we can about our bodies and advocate for ourselves, we may miss out on the genuine benefits that modern health technology has to offer.

In that sense, Cancer Schmancer is as much a book for health care providers as it is for patients and their families. It serves up a gentle but clear warning to medical professionals: pay attention to what your patients say; pay attention to what your patients know.

As writer of non-fiction, Drescher is no Joan Didion. But she is the ideal messenger for this sometimes-discomfiting subject. Over the past decade, she has managed to craft an accessible and self-deprecating image that belies her beauty and comic talent. With this book she has succeeded in producing an entertaining read from a traumatic and life-changing experience. Most important, Drescher has done some important homework for all of us. As future patients, we should all pay attention to what she has to say.

Source: 
Warner Books
Author/Speaker/Performer: 
Fran Dreschler
Publish date: 
May 2002

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