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NED on my 5th year CT scan!

lobbyist0724's picture
lobbyist0724
Posts: 470
Joined: Sep 2016

Hi all, hope everyone is doing well under this pandemic.

I would like to share my NED result after my 5th year CT scan (but not till Sept to be 5 years). 

Somehow, my scanxiety was much higher than the last couple of years. Maybe because understanding the recurrent time is usually later for the early-stage survivors.

The report also mentioned there are 3 sclerotic bone lesions but they have been stable since 2016 and my bone scan result is normal as well. 

I still haven't talked to my doctor, but the nurse shared the news with me and I read the reports online. I recalled my doctor agreed to continue the follow up on me for another five years. But not sure if it is gonna be yearly or continuing as every 6 months.

 

Take care everyone and good health!

And best wishes to the Class of 2016 on their 5th-year results!

 

Lobby

Biner
Posts: 103
Joined: Apr 2020

Congrats!Stay NED whole life

my scan tommorow 1.5 year i very scaryFrown

misterace
Posts: 31
Joined: Jun 2020

I pray we are both NED. Sending you positive energy Biner.

lobbyist0724's picture
lobbyist0724
Posts: 470
Joined: Sep 2016

I will pray for both of you that Uncle NED will visit! Also, most cystic RCC are indolent, so try not to worry too much (i was very scared too ....)!  

misterace
Posts: 31
Joined: Jun 2020

Thank you for coming on here and sharing the good news with us :)

 

 

eug91's picture
eug91
Posts: 330
Joined: Jan 2019

YES! Congrats!

daisybud's picture
daisybud
Posts: 512
Joined: Jan 2016

Congrats!

Mmoses25's picture
Mmoses25
Posts: 149
Joined: May 2020

Congratulations on the news stay Ned and enjoy your life

stub1969's picture
stub1969
Posts: 920
Joined: Jul 2016

We're on the same 5 year track.  

Stub

Biner
Posts: 103
Joined: Apr 2020

Wish you never see C againWink

lobbyist0724's picture
lobbyist0724
Posts: 470
Joined: Sep 2016

Thank you everyone for the support. 

 

Finally spoke with my doctor, and he will continue to follow up on me for at least 10 years. So CXR+US in 6 months and then CT in one year.

Deanie0916
Posts: 422
Joined: Nov 2016

Here's to many more visits from Uncle Ned. A fellow 5 year survivor.

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