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Rough 2 yrs

Bryn1108's picture
Bryn1108
Posts: 94
Joined: Jul 2017

Hi,

I joined our group in 2016, 

9 cm tumor accidentally found,  radical nephrectomy,  no evidence,  stage 2.

Then in Aug 2019 a 4 cm RCC tumor in L5 vertebrae, extending into mussel. 

 

I had noticed changes how my body was different in 2018, but was informed each scan I was cancer free.   Good scan I was told.

Had 2 choices, severe 2 day surgery removal of L5 vertebrae with cage replacement,  or Radiation. 

My husband and I chose radiation first,  from second day of radiation I was hurting even worse, after 3 scans and 9 months later, I had nightmare surgery.

Oncologist gave us 40% chance chemo may help.

There is no way to describe what I have been through. 

If I could go back,  I would not have had surgery,  just let God take me home 

 

 

Driving now for 3 month scan,  plus getting a SI Joint Injection , saying all this,  I do have best Doctors,  Mayo 

And I do seek to find joy in everything 

Don't let my story scare you,  everyone is different. 

Blessing to all

 

 

stub1969's picture
stub1969
Posts: 896
Joined: Jul 2016

I'm sorry to hear of your struggles, but I'm inspired by your attitude.  You're right, this cancer is different for everybody.  BUT, that is why it is so important for us to reach out to support each other and gain knowledge from others.  

As a fellow 2016(er), I wish you only the best!

Stub

eug91's picture
eug91
Posts: 317
Joined: Jan 2019

Hope your scan and healing goes well. We're here for you. 

Mmoses25's picture
Mmoses25
Posts: 118
Joined: May 2020

Im to a believer in the Lord I believe that he's with us always your story did not scare me because I trust in the lord to see me thru this and he and he alone will decides what happens to me I'm sorry you had to go thru this and I will make sure I pray for you to feel better

Deanie0916
Posts: 403
Joined: Nov 2016

Hope you have some good results from your injection and good news from your scan.

a_oaklee
Posts: 567
Joined: Nov 2013

My heart aches for you.  I watched my husband go through making those choices and the long recovery.  He had a thoracic vertebrae removed and a titanium cage placed, along with rods and screws along his spine for 12 vertebrae.  This was back in 2012.  The radiation was cyberknife.  He still takes targeted therapy and also monthly shots of demosamub.  I cant believe its been 9 years.  There is hope for you.  There is the hope that you are now cancer free.  Also, with a good medical team you can be pain free too.  I wish the very very best for you.  You are a remarkable person, brave and strong.  

Bryn1108's picture
Bryn1108
Posts: 94
Joined: Jul 2017

It has been a tough road , but I know so many others have suffered worse. 

Lifting each other up truly helps.  I pray through this experience I can help others suffering one day.

Thank you for sharing your experience. 

BIG HUGS 

Max57's picture
Max57
Posts: 174
Joined: Mar 2015

It's tough, you sound like a strong person I really hope your next scan will bring you great news, sorry you had to go through all this as others said you not alone we all with you side by side-by-side in this journey. 

Allochka's picture
Allochka
Posts: 951
Joined: Nov 2014

Bryn, I hope you had a good scan!

You are so strong! PLease do not regret treatments. Your cancer was discovered in 2016. Your treatments already gave you 5 more years to be with loved ones. And there are more years to come!

Definitely your grandchildren are so happy to have you around.

 

Good luck with scans, you are amazing!

 

 

Bryn1108's picture
Bryn1108
Posts: 94
Joined: Jul 2017

Thank you so much for your kind words. 

I did have my new scan and they found a 1.3cm tumor in my only kidney. 

My wonderful doctors at Mayo are talking with me about ablation.

And yes, I am thankful to have this time.

 

 

icemantoo's picture
icemantoo
Posts: 3336
Joined: Jan 2010

Besides the Ne[h I also had my Gallbladder out. Unltke you having the surgery the same day, they waited until the next evening. 12/31/19 at 5:30 PM. Woke up after surgery a year later.

 

 

 

 

 

icemantoo

lobbyist0724's picture
lobbyist0724
Posts: 454
Joined: Sep 2016

Sorry to hear about the new tumour, hopefully, the ablation with take away the small bugger completely and bring you a long-term NED. Take care.

jazzgirl's picture
jazzgirl
Posts: 202
Joined: Nov 2017

Hi Bryn, another 2016-er here. I plan to keep your words in front of me daily - for me, for you, for all of us. Take care ~

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