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Joan M & Butt- any news

Trubrit's picture
Posts: 5417
Joined: Jan 2013

Last on the forum July - Butt and Joan in August. 

Anyone heard any new from either of our lovely forum members? 


Butt's picture
Posts: 355
Joined: May 2018

I am still alive. I have multiple Mets to lungs. I was put on Sticages and Opdivo. The second Stivages cycle knocked me off. I was pretty much bedridden with a rather poor cognitive functions and some other issues. They are not sure what to do next. Blecausr I don t have any family here it puts another layer of complexity. Butt. 

beaumontdave's picture
Posts: 1130
Joined: Aug 2013

Hard to know how to reach out or comfort someone stuck so far from home and family, Butt. Your not in Southern California are you? I hope you have someone else advocating for you. You're in my thoughts.......................................................................Dave

NewHere's picture
Posts: 1329
Joined: Feb 2015

Sorry to hear about the issues.  FOLFORI stopped working for me a year ago.  At the time, I was looking at Lonsurf or Stivaga.  Tried to get in a trial in Janaury, did not qualify, and other trials were shut down due to Covid.  Went with Lonsurf because my oncologist found it easier (less adverse reactions) than Stivaga.  Anyway, started Lonsurf in May.  My August scan showed all the cancer was shrinking.  Last month showed a couple growing a tad, but most stable and some still shrinking.  

Trubrit's picture
Posts: 5417
Joined: Jan 2013

It is good to hear from you, Butt.  Not happy about all the mets, and I can't even imagine how hard it must be, going through all this, so far away from family.  Not just the Cancer stuff, but the whole COVID and lockdowns and restrictions 

Thank you for replying. 

Now, if only we could find out about Joan.  I sent her a message but no reply. I will reach out to the mods, who have a little more information than we do. 

Chin up, Butt. We're here for you. 


Annabelle41415's picture
Posts: 6694
Joined: Feb 2009

Sorry Butt to hear that you've got more mets and no family near you.  Hoping that this new medication starts working for you and your other issues start improving.  We are always here to be your "other" family.  It's not the same, but we do try to be your comfort and support.  Thank you for checking in and letting us know how you are doing.


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