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Melanoma Cancer Survivors: An Online Community Perspective and Prevention Effort

Thursday, September 10, 2020 - 2:30pm
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Survey:Melanoma Cancer Survivors: An Online Community Perspective and Prevention Effort

You are invited to take part in an on-line research study about the efforts of melanoma cancer survivors for health maintenance and melanoma prevention efforts. This form is part of a process called “informed consent” to allow you to understand this study before deciding whether to take part. This study is being conducted by a researcher named Lisa Chung who is a Ph.D. student at Walden University. 


Background Information:


The aim of this study is to collect information from an on-line community of melanoma cancer survivors’ perspective on their health maintenance and prevention efforts. This research will be conducted through the American Cancer Survivors Network site, where the required steps to complete the on-line survey are posted.



 To participate in the study you need to meet the following: 18 years old and above; English speaking; melanoma cancer diagnosis

 After receiving your on-line consent, you will be asked to complete an anonymous on-line survey

 The survey will take approximately 15-30 minutes to complete.

You have the option to opt-in or out of the research and terminate being in the research at any time.

These are some examples of the questions of the survey: How often in the past year have you visited any physician for a skin examination? How often do you wear a hat with a wide brim all the way around?


 Voluntary Nature of the Study:

  This study is voluntary. You are free to accept or turn down the invitation. If you decide to be in the study now, you can still change your mind later. You may stop at any time. There will not be a need to follow-up with you after you have completed the survey. Once you have completed the survey and select the finish button at the completion of the survey, the responses will be kept confidential for analysis by the researcher.



Risks and Benefits of Being in the Study:

  Being in this type of study involves some risk of the minor discomforts that can be encountered in daily life, such as fatigue from completing all the responses, or becoming upset thinking about having had melanoma and your concerns about it. Please note participating in this study would not pose risk to your safety or well- being.There is no direct benefits by participating in this study, which aims to provide information on the health maintenance of melanoma cancer survivors in an online community health maintenance and prevention efforts.



 There are no payments or gifts for taking part in this study.



 Reports coming out of this anonymous on-line study will not share the identities of individual participants. Even the researcher will not know who you are. The researcher will only collect and analyze the data without any identifiable information of the individual participants. The researcher will not use the participants personal information for any purpose outside of this research project. Data will be kept secure by the researcher by a password protection data secure measure. Data will be kept for a period of at least 5 years, as required by the university. After this period, all data will be destroyed.


 Obtaining Your Consent

 The responses from the survey are confidential and will be used for research data only and all participants’ information will be anonymous. Please do not write any identifying information on your survey. Surveys will be numbered only with a unique anonymous study identification code.


Participants can save or print a copy of the consent form for their records.


Please click on the link to access the survey. If you cannot open the survey with this link: https://www.surveymonkey.com/r/W98WZR6 please cut and paste the link into your browser. After completing each survey question, you will click OK, to continue with the next question until you complete the survey.


Thanks you for your participation,

Lisa Chung, MS, MBA



 The above research study announcement posted on Cancer Survivors Network is intended to be informational in nature. The American Cancer Society does not warrant or guarantee the accuracy of the information provided and will not oversee or otherwise be involved in the conduct of the actual research study.  We recommend that you consult with your health care provider if you have concerns about your health before participating in any research study.  Any information you obtain through CSN announcements should not be used as a substitute for consultation with your health care provider.


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