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Ablation vs removal

Sheila Mc
Posts: 14
Joined: Sep 2020

i am back again after three years, I had a small tumor in my kidney and had an ablation which appeared successful. My yearly MRI showed the tumor had returned; as before it is less than an inch in size. Another ablation a month ago was unsuccessful. The radiology department, after reviewing the MRI, has stated the tumor is next to my drainage and the Warmth likely prevented the complete freezing of the tumor.

A partial nephrectomy is not an option because of the location so I can have another, more aggressive, ablation or removal of the kidney. 

Will you share your experiences regarding removal or has anyone had an aggressive ablation? 
thanks in advance 

Biner
Posts: 53
Joined: Apr 2020

I'm no doctor but I bet for removal!

Deanie0916
Posts: 320
Joined: Nov 2016

I don't know anything about ablations. Just wanted you to know I'm sending good thoughts, vibes and prayers your way.

Bay Area Guy's picture
Bay Area Guy
Posts: 449
Joined: Jun 2016

Tough question.  I've not heard of aggressive ablation before.  However, instead of cryoablation, perhaps radio frequency ablation, which uses high energy waves that heat the tumor, might be an option.

Sheila Mc
Posts: 14
Joined: Sep 2020

I haven't heard of it either. I had a cryoablation three years ago which appeared to be successful until my latest MRI. Unfortunately my HMO changed hospitals and I was sent to a different group for my latest procedure, which was unsuccessful. They were aware of my history and seem surprised that this didn't work, but are stating they have a more aggressive treatment plan. 
I don't know if I want to go that route again or just have the kidney removed since the tumor is in an awkward place to reach. Trust is important. 

icemantoo's picture
icemantoo
Posts: 3279
Joined: Jan 2010

Mine was 18 years ago and I'm still kicking.

 

 

 

 

icemantoo

AliceB1950's picture
AliceB1950
Posts: 70
Joined: Jun 2019

I had a total nephrectomy two years ago.  They're actually less complicated than a partial.

Sheila Mc
Posts: 14
Joined: Sep 2020

Alice B, will you answer a question or two? 
how long was your hospital stay?

what was your recovery time?

thanks in advance

AliceB1950's picture
AliceB1950
Posts: 70
Joined: Jun 2019

I was in the hospital one night after surgery, went home the next day.  I walked a lot around the house, slept on a fairly firm futon in sofa mode so I wouldn't turn over (and used a lot of pillows).  I was hiking (slowly) in a park the next week.  I was 65, flabby, and a couch potato, so it's not like I was in great shape.

Sheila Mc
Posts: 14
Joined: Sep 2020

Thank you so much for sharing that. 

misterace
Posts: 19
Joined: Jun 2020

Hi Shiela, 

 

Maybe it's worth getting a few opinions especially from urologists that specialize in RCC? Might help give you an idea of the best approach.

As laypersons, we only know so much, but I am wishing you the best possibel scenario :)

 

My Partial was done by an RCC specialist and it was a very difficult one that most Urologists wouldn'e have even bothered with. Having said that, my recovery was tough and I prior to my diagnosies I was a relatively healthy and active 33 year old. 

donna_lee's picture
donna_lee
Posts: 963
Joined: Feb 2009

Let's get that sucker our of there.  It had already mets to liver, and as they found a set of nodes.  When it reoccured in other nodes over the next 2 years, I had the same quick decision, get them out ASAP.  I was 63 the first time...and am now 77.  Yeah, open surgery takes a longer recoverly (none of mine were able to lap surgeries because of the locations).  Recovery wasn't fast, but I did get better and live to encourage others on this board.

Where you live may limit your source of treatment and insurance may limit your referrals.  But I encourage you to bite the bullet and have the whole kidney out before it starts shedding more cells.

Hugs and Best Wishes,

donna_lee

Allochka's picture
Allochka
Posts: 922
Joined: Nov 2014

Hello,

Donna is right - get it out! 

I've read somewhere that ablation has a bit higher recurrence rate than surgery (both partial or total). Also, after surgery you'll be able to biopsy it and know exactly what are your dealing with. Subtype, agressiveness. This is a very important info.

Lots of people with full nephrectomies here, and all is well.

Good luck to you!

 

Sheila Mc
Posts: 14
Joined: Sep 2020

I had a consultation with the Radiology group last week to discuss possible next steps. I decided to bite the bullet and have it removed. My urologist is planning a laparoscopic procedure to minimize recovery time. 
thank you so much for your honesty. 

Sheila Mc
Posts: 14
Joined: Sep 2020

I appreciate all of your input. I have decided to go with a laparoscopic removal of the kidney.

I had Breast Cancer 21 years ago and as treatment we decided on a mastectomy and reconstruction. The reconstruction was a disaster and I ended up having a second procedure. So, in hindsight, I think I have been trying to avoid more trauma and go with less invasive procedure. But of course the tumor is in a unique spot..... so, take that sucker out and move on. 
thanks again to everyone

Bay Area Guy's picture
Bay Area Guy
Posts: 449
Joined: Jun 2016

Best wishes for a totally boring and uneventful surgery.

eug91's picture
eug91
Posts: 254
Joined: Jan 2019

Sorry you had to join us, but we know what you're going through. We got through it, so we know you will, too! 

I had my laparoscopic radical nephrectomy in 2018. If you haven't already, you can read my overly-long description of everything here- https://csn.cancer.org/node/318416

Let us know if you have any questions/concerns. You've got this!

 

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