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Hand and foot syndrome

Kazenmax's picture
Kazenmax
Posts: 415
Joined: Feb 2016

Hi all

While on Xeloda, I developed terrible hand and foot syndrome. I could barely walk.

i belong to Stage 4 colon cancer group on Facebook. I saw this today:

https://www.ncbi.nlm.nih.gov/m/pubmed/29095653/

I wish I had known this. I want to share for anyone on Xeloda now.

Cheers

k

SandiaBuddy's picture
SandiaBuddy
Posts: 1059
Joined: Apr 2017

Interesting.  Thank you for sharing this.

SnapDragon2's picture
SnapDragon2
Posts: 270
Joined: Nov 2019

Thank you for sharing.  I took (still do) tumeric/curcumin all through presurgery chemo with 5FU pump and had mild rash on palms.  I guess it must have worked pretty good.

NewHere's picture
NewHere
Posts: 1171
Joined: Feb 2015

I have been taking tumeric now for awhile.  The chemo I may have to go on seems to have a very high incidence of HFS.  Will definately keep this in mind and maybe increase dose when the time comes.  Thanks for this.  

abrub's picture
abrub
Posts: 2130
Joined: Mar 2010

I just completed my first cycle of Xeloda, and am starting Hand-Foot Syndrome.  My hands and feet are tingling and dark already.  I've been taking a turmeric supplement for months.  (Granted I was on IV 5FU for 8 cycles, the last one ending on Jan. 2.)

I'm probably going back to IV 5FU this week.

Alice

abrub's picture
abrub
Posts: 2130
Joined: Mar 2010

One cycle of Xeloda was enough.

SnapDragon2's picture
SnapDragon2
Posts: 270
Joined: Nov 2019

Hi abrub,  Im also on 5fu (folfox).  Before surgery it was just 5FU for 6 wks.  I take tumeric/curcumin with my coffee.  I have read it works better when mixed with hot foods so I figured coffee works for me.  I don't know if it really does but I haven't had H/F yet, knock on wood.

abrub's picture
abrub
Posts: 2130
Joined: Mar 2010

I've had no problem (so far) on the 5FU pump.  One cycle of Xeloda, and my hands and feet were discolored and tight.  I definitely keep my hands and feet well moisturized, and I am taking a turmeric supplement as well.  Xeloda was stopped after one cycle, and I'm back on the pump.  So far, so good.

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