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Keytruda/Lenvima ---- DAY 1

Little Annie
Posts: 28
Joined: Jul 2018

 

 

Well, I was hoping that Donna Faye would be first to report any side effects from this

Keytruda/Lenvima treatment. 

 This combination was FDA approved for some Endometrial Cancers on September 17, 2019

so I would have thought several ladies would have been on this treatment

 

My timeline:

December 2017 - Hysterectomy and UPSC stage 3A

January 2018 + 6 Taxol/Carboplatin

May 25 external pelvic radiation

June 2018 – January2019 - Herceptin only maintenace.

April – second opinion to discuss recurrence

May 2019– trial olaparib (28 days only -could not tolerate)

June 2019 – Dec. Doxil and Avastin

January 2020 – Avastin only (CA-125 climbing)

February 21, 2020 – DAY 1 Keytruda/Lenvima

maybe a little nausea - will keep you posted

BluebirdOne's picture
BluebirdOne
Posts: 375
Joined: Jul 2018

I have been following your progress. You and Zsa Zsa have the USPC that herceptin can help. I think all of us are rooting for you and Donna Faye with your Keytruda combo, so keep us posted. 

Denise

Fridays Child
Posts: 204
Joined: Jul 2019

Yes, we're all pulling for you all and hope the treatment isn't too rough. 

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

As I wondered how your first day went. What dose did you start on the Lenvima? Looks like I may be a month behind you as having to clear up some other things before I begin. Hope all goes well!

Little Annie
Posts: 28
Joined: Jul 2018

I took the full dose of 2 pills each 10mg........I saw where you wanted to start on only 10mg and I hope to get to that if side effects are as bad as I am expecting......88% of patients require dose reductions or discontinuance due to side effects!   so I'm hoping my oncologist will agree to lower dose ASAP.   A little fuzzy headed tonight.

zsazsa1
Posts: 553
Joined: Oct 2018

Here's hoping minimal side effects and maximum efficacy.

jan9wils's picture
jan9wils
Posts: 152
Joined: Mar 2017

I am interested in your experience with this drug as I may be prescribed it (pending outcome of March PET scan). Thank you for sharing your experience with it. 

Jan

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

Hoping you are managing well, Little Annie.

I am awaiting the result of my BP keeping to see if I will be able to start the treatment. I am rather frustrated that I was offered this as hypertension has been on my records for 10 years, yet it was not a problem until we asked what it might do.  I meet with the doctor on March 3 to discuss but treatment may be several weeks away or we may have to drop back and punt. GRRRRRRRR

dgrdalton's picture
dgrdalton
Posts: 151
Joined: Jun 2017

Hope you are doing well on the L/K treatment. I am very interested in side effects as I may be put on this treatment after my PET scan the 23rd.

Let us know how you are. Prayers!

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