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Proton Therapy - In treatment

Gforce
Posts: 21
Joined: Jan 2020

I just finished 9 of my 40 treatments. Had some minor side effects this weekend but nothing to serious. Jump in if you are treating and lets share. 

ASAdvocate
Posts: 139
Joined: Apr 2017

It is good to see some discussion of proton beam therapy here, as both facilities and advocates are increasing every year.

From what I've read, PBT has great non-recurrence stats, although cost and some side effects remain in debate.

If I am allowed to mention another site, there are many PBT posts by patients on inspire.com. 

 

RonOnThePond
Posts: 3
Joined: Feb 2020

ASAdvocate, here's a theory about why PBT threads are lacking here. From what I've seen, most forums tend towards discussion of issues relating to things going wrong. In my experience as a prostate cancer survivor who had proton therapy in 2011, most of us did fine and (my theory) fewer of us participate in forums because there's nothing much to talk about. I am here to see if I can help others, but I'm a bit more proactive about that than many men/survivors who legitimately just want to get on with their normal lives. And after all, they earned it! ... Ron

Clevelandguy
Posts: 591
Joined: Jun 2015

Hi  Gforce,

From what I hear it's an excellent radiation treatment with the fixed beam length.  I know if I ever need radiation I wil be looking into it very closely.  Please post your results both good & bad when you complete your course of treatment.

Dave 3+4

Gforce
Posts: 21
Joined: Jan 2020

The only side effect that kicked in after 8 treatments is that you can feel your urine stream. Definately noticable but really no big deal. If this is the worst, I can handle without even taking Aleve. 

 

I will check out that other site. 

RonOnThePond
Posts: 3
Joined: Feb 2020

Gforce, glad to hear you're doing well with your treatments! I finished my 39 proton zaps in 2011. It's bizarre, but the memories are fond ones. I hope yours will be, too. ... Ron

Gforce
Posts: 21
Joined: Jan 2020

Dr. put me on Flowmax. I now feel perfectly normal. Today will be treatment 16. If this PT does it's job, it will be the best decisiion I have ever made. No side effects so far. Fingers crossed. 

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