Treatment 1 Done...thanks to u all getting me through it!
I can't thank you all for helping me get through my first treatment! Thanks to all your support and encouragement as well as what to expect I was able to walk in the Center and receive my treatment. Not to say there wasn't many tears out in the parking lot. And a plea with my husband to take me to the ocean and not inside. He said he would take me anywhere I wanted to go but we both knew where we needed to be so reluctantly we walked in together hand and hand.
As many of u said treatment day should be as comfortable as possible.The nurses were all sweet. I wish I could have slept through it but to the nurses surprise the Benadryl unfortunately did not help me sleep. The day went by faster than we anticipated though we were there 7 hrs. I tried not thinking about the treatment dripping into my body.
I was sure to ice though they said there is no science behind it working. I told them about all of u have said 1st hand that it helps minimize the neurapathy.
I was happy when my husband could finally take me back home. Our door yard never looked so good!
We had dinner,relaxed and I SLEPT 5 OR 6 HOURS. BOY THAT FELT GREAT!
Day 1 home I felt great....until 5 p.m . Then my body said ok I'm tired now. Prior to that I went for a short walk, local vegetable stand, made zucchini bread and visited a neighbor. By dinner time I was tired and started feeling cramps in my leg. Ice and elevated it . Helped.
Day 2 Very tired today! Slight tingling in left hand in the a.m. but as the day as gone on it subsided.
No nausea as of yet and hoping it stays away!
Many emotions and wonder what to expect next followed by moments of calm. It's a roller coaster ride for sure and I've never been one for roller coasters.
This staying out of the sun is hard and not being able to do all the things I enjoy and not having the strength to get all my usual tasks done is hard. I long for my life to be back to normal but the treatment is going to be until December and then I realize once it stops my body will need much recooperating. Still scared of how my body or anyones body can tolerate all the treatment . Hoping to get through it all and feel good and be NED!!!!f
For today I'm thankful for only feeling tired.
Again thank you all for your support, encouragement and advice! It has meant the world to me!
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