It appears my tongue cancer is back

till you see your doc. You may be reading it wrong. And I would think they have to take a biopsy before it is verified as cancer. May just be a lesion that is suspect. God bless

wbcgaruss said:

Steven I would wait

till you see your doc. You may be reading it wrong. And I would think they have to take a biopsy before it is verified as cancer. May just be a lesion that is suspect. God bless

Steven like many on here have said its not cancer until they say its cancer. Praying you have a good report.

You have been thru hell like Me.  I truly hope it’s NOT.  I’ve been lucky that way, 3 yrs Ned here but so many, many other issues from treatments.  I honestly feel they over did treatment so they would really knock it out but all the other side effects have left Me bedridden most of the time.  I will keep you in My thoughts with positive outcome.  And yes it’s not Cancer till the Drs verify it.  Hang in, We went through it at the same time and just like you started out doing fairly well but bam out of the blue it all changes.  Hang in We are all rooting for you!  Please keep Us all posted on your Dx.  Big hugs, Lisa 

stevenpepe said:

Soooo....

The technician writes cancer but doc says no. No biopsy. No reason for  follow up. I think I'm just gonna stop reading my scans and just wait until they call me. The saga continues...

Hi Steven, we were praying for you last night when we read your post and Praise God our prayers have been answered we are so happy for you not having to go thru biopsy.  Thank you for sharing your news.  We were so worried. God Bless Us All and Keep Us All Cancer Free!

From a fellow "C" member from the summer of 2016 I am so happy this turned out to be a false positive.  Dealing with the lingering effects of surgery and treatment are bad enough; but, then having to deal with false reads makes it worse.  Again, I am glad this was just a bad read.

Best wishes for your days ahead.

Freddie

stevenpepe said:

Soooo....

The technician writes cancer but doc says no. No biopsy. No reason for  follow up. I think I'm just gonna stop reading my scans and just wait until they call me. The saga continues...

This is great news.  I have followed your battle with the beast and so happy you don't have to go through this again.

I had a simialr experience with a nurse  "Dr. Wantabe" but fortunately, my RO walked in and corrected her immidiately.

Good luck and keep us posted

and I agree, take the tech out back - he or she can keep company with the one that said I have a normal looking appendix..... My appendix was removed in the UK when I was 17...

stevenpepe said:

Soooo....

The technician writes cancer but doc says no. No biopsy. No reason for  follow up. I think I'm just gonna stop reading my scans and just wait until they call me. The saga continues...

Hello Stevenpepe,

I'm curious to learn more about what your diet looks like.  What kinds of foods are you eating and how are they being prepared.  What I have found out and you can look it up it has been documented for many years that there are people who live to be over 100 years old with never experiencing not one disease. Most people of today are getting cancer from their diet and life style.  People who were raised in or around a farm like environment seems to live longer with fewer health problems.  I'm a firm believer in plant base foods to help heal your body and working in the garden touching the soil with my hands to relax my mind.  Some people can find another way to relax their mind if gardening wont work.  Maybe take hikes in the woods or find a lake. If you eat any manufactured food - STOP immediately

tbret said:

It happens

I haven't told it before this minute, but the last time I was declared NED by my oncologist, they sent the scan to my ENT who said, "Oh #$@%," and called the radiologist and got some specific numbers and they went over my scan and I got a call from the ENT to come in **immediately**, which I did, knowing nothing about WHY.  I only knew my PET scan showed "asymmetry" and my oncologist said, "Go home, you're fine."  I learned that the ENT thought it was back just before he examined me.  That was freaky.

A very long story later the ENT tells me "there's nothing there" when *he* expected to find something on examination.  It seems a lot of things can make a PET glow "wrongly."  He wants me to just go have CTs from now on.

I have my three year scan in about 6 weeks.   I'm not living in fear of this one because I'm getting fat.  Ok, truth be told I am getting fatter because I had already gotten a little fat again.  I can taste "sweet" and so I tend to eat too much sugar, but that's a whole different discussion.  I was losing weight with cancer, soooo, I'm hope an expanding waistline is a good sign.

Congratulations on dodging the bullet again this time.  I trust it will be the same this time and every time from now on.  (As I asked my oncologist when she told me I had NED at 90 days after treament, "I guess this means I will have to die of something even more horrible later, does it?"  She just chuckled a bit and said, "I guess it does.  My what an optimist!" <or words to that effect>)

 

One of the things I think we all "get" as survivors is that one day someone will eventually say, "I'm sorry," and that's gonna be it.  I still love standing at the kitchen sink looking at the flowers I planted. Until recently I would not have been a flower appreciating fella.

And salt things pretty good too. every time I visit my ENT he says "Is your weight Holding OK?" Like you I am gaining since sweets intake is up so that's what I tell him. Yes holding and increasing a bit. He always says "This is one place we don't fuss about some weight gaining. I guess seeing his share of cancer patients he is glad when they start gaining again. Don't get me wrong there is a limit to this but for many of us, a weight gain is part of the recovery as it means we turned a corner. God Bless