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1month treatment of radiation proctitis

sylvia_mae
Posts: 84
Joined: Oct 2018

Hi.. sorry i was not able to come back here for a while. I went on a short vacation just to unwind.

I am more than a month treatment of radiation Proctitis. Just recently i have notice that my bowel is no longer normal and i have a terrible tenesmus (urge to defecate but nothing will come out)

Until now i have not had my bowel though i really want to. When i went to the cr to have my bowel i just cant only fart will come out and water i think from my sucralfate enema.

Has anyone had the same symptoms?

ellend's picture
ellend
Posts: 110
Joined: Apr 2016

Radiation treatment resulted in issues with my bowel as well. Sometimes bowel movements were at a pain level 7 or 8. I was literally crying because it hurt so much. The radiologist prescribed suppositories that helped the pain, but didn't completely resolve the tenesmus. He and the surgeon also gave me various creams to help. The surgeon said that radiation changes the tissue so it isn't as pliable and I think that is part of the issue. It gets better over time, but I was told my bowel will never be the same and I've had to learn to live with a "new normal". i still deal with the tenesmus issue as well as clustering, but am able to manage it better.

Please talk to your radiologist. He or she may be able to give you something that helps. Good luck.

Ellen

sylvia_mae
Posts: 84
Joined: Oct 2018

Thank u. I just noticed it recently. Slowing all side effects has been showing and right i am having a hard time going to the toilet. I am also worrying that this might cause another problem. Been drinking more water but nothing has come out only the urge to defecate

Annabelle41415's picture
Annabelle41415
Posts: 5899
Joined: Feb 2009

You're bowels will change after all this and yes for me crying was a huge part of trying to get over it.  I'd actually bawl and say that never again was I'd be going the bathroom again because of the pain.  Make sure that you keep your bowels going though even if it is liquid.  You don't want to constipate yourself in anyway as you could end up with a blockage and that is also very painful.  Talk to your doctors about this situation if you aren't expelling what you think you should.  No need for a backup of anykind. Hope you feel better.

Kim

sylvia_mae
Posts: 84
Joined: Oct 2018

I am scared right now kim. Nothing is coming out and i don't know what to do. My doctor is not availabke at the moment

Annabelle41415's picture
Annabelle41415
Posts: 5899
Joined: Feb 2009

You might consider a mild laxative.  Don't take too much because sometimes it can be overwhelming, but when you are constipated that is an option.  Make sure the doctor knows what is going on though.  Hope you feel better soon.  It's a terrible cycle to be in - going to much and then not going enough at first.

Kim

sylvia_mae
Posts: 84
Joined: Oct 2018

What i did yesterday was i use the enema for my sucralfate. instead of the medicine i put some water in it until i was able to have my bm. i did the crying too. don't know yet what laxative to take. been sending message to my doctor but i havent got any replies maybe she wanted me to come to her clinic and set an appointment.

 

many thanks kim

Annabelle41415's picture
Annabelle41415
Posts: 5899
Joined: Feb 2009

I'm glad that you at least had a BM and hope it was a good enough one where you felt better afterwards.  A good laxative to try is Miralax or Senna.  Actually the Senna works pretty good for an overnight laxative and the Miralax for use for a couple days and gives more gentle.  I'm surprised you haven't heard from your doctor yet - I'd be pretty upset about that.  Call the office and express your concerns.  Hope you feel better soon.

Kim

LSU2001
Posts: 23
Joined: Dec 2017

Syliva_mae, I still have some symptoms of pain, pressure, and tenesmus two years after I had chemo-radiation treatments.  The radiation totally killed my primary rectal tumor so for that I am grateful, but after the acute symptoms of the radiation eased up, (3-5 weeks after finishing) I was left with recurring bouts of inflamation, pain, and tenesumus.  My oncologist prescribed flexiril muscle relaxers to help with the rectal spasms I was getting and that helped but what helped more than anything was proctofoam.  It is a little can of foam that can be shot into the rectum. My insurance would not cover it though and the little can costs around $100.00 for about 10 doses. My  Primary care doctor found some cortisone enemas to take the place of proctofoam and they work great.  Just a little more aggravating than the proctofoam.  It eases pain but also reduces the inflamtion and makes the pain and tenesmus almost go away completly until the next bout. Another thing that helps a bunch is sitting/soaking in very warm water eases up the pain for awhile.  Sometimes I will have to soak 3-4 times a day.   I have found that takinhg a colace stool softener in the evening before be and a half dose of miralax every morning in my coffee helps me to to without straining much.  If I have to strain, the spasms start up and the pain and tenesmus get going and it takes a few days for it to ease up.  I know it has gotten better since the acute symptoms eased up but, in my case, the symptoms have still not gone away.  I guess this is my new normal.

Tim

sylvia_mae
Posts: 84
Joined: Oct 2018

thanks tim.

 

i am going to set an appointment for my doctor. this is really a terrible feeling plus the pain makes it hard for me to manage. yesterday i just tried water enema for the meantime. having doctor's appointment is also a financial and emotional burden. waiting sucks. going inside her clinic cost 500 (in peso) for less than 15 minutes plus the prescribed medicine. so i need to be ready on how much i would bring.

sylvia_mae
Posts: 84
Joined: Oct 2018

Hi i would like to inform you that i went to my gp today and she prescribe laxative to "normalize" my bowel movement. well i guess this is my new normal and to stop the sucralfate for the meantime.

next week il be on my 1 cycle of chemo too :(

 

thanks everyone

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