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SBRT

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Well a week from today I will be starting radiation treatment to my lung nodules. I'm really nervous. My goal is to stay off systemic treatment for as long as I can. 

Has anyone undergone this? I am a little worried about long term effects. My left side is in a tricky spot. Any insight would be appreciated.

Hope you all are well and happy!

Cin

Manufred's picture
Manufred
Posts: 239
Joined: May 2017

Can't help with any personal experience, but stay strong - you can do this and win.

Best Wishes, Fred

Allochka's picture
Allochka
Posts: 865
Joined: Nov 2014

Good luck, Cin, we'll keep fingers crossed for you. It's great that no systemic treatment is required at this point!

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Can't offer any insight today. But am glad to see your Post Cin. As always hope your having a better day and sending some positive thoughts your way.

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Aww.... i hope you get answers soon. If not here, maybe try Smartpatients.com 

Did you lookon CSN under lung cancer too?

Keep posting here, you never know. IN fact, make your title of your post here more specific maybe?

But I am here for you ALL the WAY!!

Sending you, gentle, healing hugs!!!!!

Jan

donna_lee's picture
donna_lee
Posts: 894
Joined: Feb 2009

And send lots of hugs and love and good wishes and sweet dreams.

Gotta cheer on the West Coasties.

Take care.

donna_lee

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Thank you all for being so supportive. I'm a little nervous..ok a lot nervous! Everyone keep their fingers crossed for an easy, non eventful 10 sessions (5 to each side)

Hope you all are well and happy!

Cin

eug91's picture
eug91
Posts: 142
Joined: Jan 2019

It'll be over before you know it. Sending you good thoughts! 

a_oaklee
Posts: 437
Joined: Nov 2013

My husband had sbrt as you described to his shoulder.  Another time to his hip.  He did not have it to his lungs.  He left work to go to the treatment, and went back to work afterwards.  He didn't have any problems.  Told me it was like getting a long xray, and only complained about the uncomfortable table he was lying on.  During the two week treatment plan he did complain of being tired, but that could have been from anything.  My husband's mets were in his bones and the treatment was successful in completely getting rid of pain, and also it killed the cancer.

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Dr said side effects would be fatigue, rib discomfort and maybe some esophageal discomfort. However pneumonitis is common which worries me. Most cases resolve themselves. In other cases steroids are required...let's hope that doesn't happen.

a_oaklee
Posts: 437
Joined: Nov 2013

I sincerely hope that none of those things happen to you.  I can understand that lung tissue has got to be different than bones.  Especially the location of my husbands treatment being shoulder and hip.  He also had cyberknife twice to his spine.  We were told a host of possible side effects that included paralysis.  That was scary, but none of the terrible side effects happened to him.  You will find more people on smart patients who have undergone advanced treatments.  There is alot of really great information on treatment for lung mets.  One of the participants works in the field and her support and information re treatment is phenomenal.  Let us know how you are doing. 

penitent
Posts: 79
Joined: Jun 2016

My son-in-law had SBRT and I can fill you in on quite a bit about it.  Private email me with any questions.

 

Penitent

a_oaklee
Posts: 437
Joined: Nov 2013

Penitent.  I really appreciate you being here and posting.  I certainly can appreciate wanting to keep things private via a private email.  I've done it myself, but if you have any general helpful ideas, warnings, suggestions, I sure would appreciate knowing.   Being Stage 4 is really a tough place to be.  Advice and experience are greatly appreciated.  Thanks.

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