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pinky104
Posts: 574
Joined: Feb 2013
pinky104
Posts: 574
Joined: Feb 2013

I got the biopsy result this morning on the ulcerations that were found in my transverse colon.  Unfortunately, they weren't caused by taking Aleve, as I'd thought they might have been.  They were caused by the metastasis of my UPSC again.  I went for my 5th high dose radiation treatment today, which has been going really smoothly.  I'm often out of there in 5 minutes.  I happened to see the radiation oncologist in the hallway as I was leaving, and I told him that the GI doctor had told me that the ulcerations were caused by cancer.  He asked if it was endometrial cancer again, and I told him it was.  He said that was good, as they wouldn't need to be dealing with anything else.  I'll be seeing my oncologist's PA on Thurs. morning, and I'm sure I'll find out then when I'll be starting chemo.  My radiation ends on Tues., so I won't be surprised if chemo starts on Wed. if they have an opening.  The Cancer Center looked pretty busy today, so I'm not sure if they will.  

BluebirdOne's picture
BluebirdOne
Posts: 194
Joined: Jul 2018

So sorry to hear about the news. I was thinking about you all weekend. We are here for you. 

 

xxoo

Denise

derMaus's picture
derMaus
Posts: 558
Joined: Nov 2016

I think you have some cause for optimism. While not the news you wanted, it could be much, much worse: you're already in treatment, you're tolerating it well, and it's just some leftovers of the original cancer in the same general neighborhood. I wish it was nothing at all but so glad it's not more, and pleased to hear that you're doing well with the radiation. Best always, B

Kaleena's picture
Kaleena
Posts: 1944
Joined: Nov 2009

Sorry Pinky that you have to go through this again.    Hugs!!!

Kathy

pinky104
Posts: 574
Joined: Feb 2013

Sorry about the lone letter "b" in here.  I think I typed it in too fast, and then it wouldn't let me type the rest of the word "biopsy" or delete the "b," so I had to type it again on another line.

LisaPizza's picture
LisaPizza
Posts: 208
Joined: Feb 2018

I'm sorry for the news, but hopefully you'll get a good plan from your oncologist. Interesting what the rad onc said. Hang in there :)

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2572
Joined: Mar 2013

oh pinky, I had been hoping for the Aleve is the cause of the issues.  My prayers are for you my dear.  

ConnieSW's picture
ConnieSW
Posts: 1432
Joined: Jun 2012

it stinks that you have to go through all this again. 

Wannabeatit
Posts: 97
Joined: Dec 2017

Awe I was hoping it would be better news. I’m glad to hear that they will be right on top of it. Hugs

SF73
Posts: 257
Joined: Oct 2017

Sorry to hear the news, Pinky. But glad you have a good plan in place. also glad to hear that you are tolerating the radiation well.

KatnHat's picture
KatnHat
Posts: 27
Joined: Jan 2017

Sorry to hear the latest, but I know you probably feel better having a plan. I getting my chemo switched up due to lack of response in a couple areas. Might do radiation to a rogue tumor on my bronchial tube. Or maybe cryosurgery or immunotherapy! I just had meeting with doc today and he pulled Doxil and Avastin from my treatment so I just got Carboplatin. I'm awhirl in information and tentative plans now so I can imagine how you must feel. It's hard to keep ahead of this damn cancer. Good luck to you.

 p.s. I found my original photo so changed it back from the one in the scarf.

SF73
Posts: 257
Joined: Oct 2017

Good luck to you too, KatnHat. Please keep us posted. Good to know your oncologist has plenty of tools in her toolbox. Hope you will reach NED soon!

pinky104
Posts: 574
Joined: Feb 2013

It's not good to hear that your chemo isn't working so well, especially since I'm about to start on the Avastin that you're being taken off.  I guess everyone' journey with this cancer is different, though, and what works for one doesn't necessarily work for another.  I hope whatever they try on you next works.

Thanks for your reply and thank you, everyone else, for your thoughts, too.

 

 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2572
Joined: Mar 2013

KatnHat, good to hear from you.  I can imagine how your head is swirling with information as well.  You are in my prayers. 

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1523
Joined: Jun 2015

Just wanted to say that I'm thinking of you both and hope that your treatments get you closer to NED. You are both precious members of this wonderful group of women.

Love and Hugs,

Cindi

Lulu7582's picture
Lulu7582
Posts: 112
Joined: Jun 2018

Yes not the news you wanted but lets pray the treatment stops the little beasts. This endometrial cancer is a nasty little beast and I am trying to be polite!! All the best to you and to KatnHat. Off we go on another journey in our fight against this disease. Hugs xo

evolo58
Posts: 293
Joined: Dec 2017

Seems to be good news, bad news, and bad news/good news. 

I hope the treatments knock everything nasty out.

MoeKay
Posts: 202
Joined: Feb 2004

Pinky, I was so hoping that the biopsy would be benign and that the ulcerations would have been due to the Aleve!  Sorry that did not turn out to be the case, but it sounds like your treatment team is moving things along and hopefully the chemo will take care of the problem areas in your colon.  Wishing you the best as you complete radiation and begin chemo!  Good luck to KatnHat also as she embarks on a new treatment plan!

MAbound
Posts: 854
Joined: Jun 2016

What I want to know is where do you and others who deal with a recurrence find the strength to go through treatment again? Let alone for more than one time. As time goes on since I was in treatment, I just can't imagine how I'd face it again. I know no one has a choice but to do what has to be done, but Dear Lord, how does one cope emotionally? I can't begin to put into words how much admiration I have for all of you that not only cope with these setbacks, but share it with the rest of us so that we can learn from your experiences. Talk about Grace under fire! 

Wannabeatit
Posts: 97
Joined: Dec 2017

I feel the same way MAbound. Well spoken. I have nothing but total admiration for these gals!

 

Lulu7582's picture
Lulu7582
Posts: 112
Joined: Jun 2018

My PET scan lite up like a Xmas tree and on paper my prognosis is bad but I am still here and yes I lean on my faith, prayer and family & friends for support.

You ask about strength but what else can you do but move forward and hope and pray that the treatment will stop the progression and give more time. Looking at me you would never know I have cancer and mets (other than my pixie cut after having a bob for 3 decades lol!!).

So I continue on this journey and am thankful I can talk to you all and learn from those of you who also are fighting mets. 

I think all of us are strong and show strength just by dealing with this disease 'cancer'. So one day at a time and I am just thankful for every blessed day. xoxo

BluebirdOne's picture
BluebirdOne
Posts: 194
Joined: Jul 2018

I just want to give you a big hug. We are here for you and everyone else.

xxoo

Denise

 

Kathy G.'s picture
Kathy G.
Posts: 202
Joined: Dec 2012

Pinky, I am also sorry you have to go through treatment AGAIN, but at least no surgery, right?

I echo what MAbound wrote about your strength in fighting this. It is truly amazing how you and others get up and keep fighting. I commend you for that.

I have nothing but respect for you coming to this board to post your updates and struggles admist the physical, mental & emotional turmoil.

Your journey educates, soothes & gives hope to others.

I wish you nothing but peace & recovery.

Kathy

 

 

 

pinky104
Posts: 574
Joined: Feb 2013

I told my husband after my last surgery (and after my second six day hospitalization) that I wasn't going to go through this again.  I was referring to the surgery.  I can deal a lot better with chemo, at least with the ones I've previously had, than I can with surgery.  I'm not sure how I'll be feeling about it now that I'm having a third chemo drug added.  I hope I don't have more severe reactions.  

To be honest, at first I thought about not wanting to go through any of this again.  I had the greatest urge to just run away somewhere, but I knew it would just follow me there.  But when I thought about the alternative to treatment, being 6 foot underground in a coffin in the cold ground, and having a lot of pain before I ended up there, treatment seemed like the better alternative. I hope I haven't offended anyone whose prognosis isn't good by that comment. We all have to die sometime, but we'd all rather have it be somewhere way off in the future rather than now. 

derMaus's picture
derMaus
Posts: 558
Joined: Nov 2016

Always good to hear from you, Pinky, and glad that the treatment is thus far tolerable. Best always, B

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