I got the biopsy result this morning on the ulcerations that were found in my transverse colon. Unfortunately, they weren't caused by taking Aleve, as I'd thought they might have been. They were caused by the metastasis of my UPSC again. I went for my 5th high dose radiation treatment today, which has been going really smoothly. I'm often out of there in 5 minutes. I happened to see the radiation oncologist in the hallway as I was leaving, and I told him that the GI doctor had told me that the ulcerations were caused by cancer. He asked if it was endometrial cancer again, and I told him it was. He said that was good, as they wouldn't need to be dealing with anything else. I'll be seeing my oncologist's PA on Thurs. morning, and I'm sure I'll find out then when I'll be starting chemo. My radiation ends on Tues., so I won't be surprised if chemo starts on Wed. if they have an opening. The Cancer Center looked pretty busy today, so I'm not sure if they will.
I think you have some cause for optimism. While not the news you wanted, it could be much, much worse: you're already in treatment, you're tolerating it well, and it's just some leftovers of the original cancer in the same general neighborhood. I wish it was nothing at all but so glad it's not more, and pleased to hear that you're doing well with the radiation. Best always, B
Sorry about the lone letter "b" in here. I think I typed it in too fast, and then it wouldn't let me type the rest of the word "biopsy" or delete the "b," so I had to type it again on another line.
Sorry to hear the latest, but I know you probably feel better having a plan. I getting my chemo switched up due to lack of response in a couple areas. Might do radiation to a rogue tumor on my bronchial tube. Or maybe cryosurgery or immunotherapy! I just had meeting with doc today and he pulled Doxil and Avastin from my treatment so I just got Carboplatin. I'm awhirl in information and tentative plans now so I can imagine how you must feel. It's hard to keep ahead of this damn cancer. Good luck to you.
p.s. I found my original photo so changed it back from the one in the scarf.
It's not good to hear that your chemo isn't working so well, especially since I'm about to start on the Avastin that you're being taken off. I guess everyone' journey with this cancer is different, though, and what works for one doesn't necessarily work for another. I hope whatever they try on you next works.
Thanks for your reply and thank you, everyone else, for your thoughts, too.
Just wanted to say that I'm thinking of you both and hope that your treatments get you closer to NED. You are both precious members of this wonderful group of women.
Yes not the news you wanted but lets pray the treatment stops the little beasts. This endometrial cancer is a nasty little beast and I am trying to be polite!! All the best to you and to KatnHat. Off we go on another journey in our fight against this disease. Hugs xo
Pinky, I was so hoping that the biopsy would be benign and that the ulcerations would have been due to the Aleve! Sorry that did not turn out to be the case, but it sounds like your treatment team is moving things along and hopefully the chemo will take care of the problem areas in your colon. Wishing you the best as you complete radiation and begin chemo! Good luck to KatnHat also as she embarks on a new treatment plan!
What I want to know is where do you and others who deal with a recurrence find the strength to go through treatment again? Let alone for more than one time. As time goes on since I was in treatment, I just can't imagine how I'd face it again. I know no one has a choice but to do what has to be done, but Dear Lord, how does one cope emotionally? I can't begin to put into words how much admiration I have for all of you that not only cope with these setbacks, but share it with the rest of us so that we can learn from your experiences. Talk about Grace under fire!
My PET scan lite up like a Xmas tree and on paper my prognosis is bad but I am still here and yes I lean on my faith, prayer and family & friends for support.
You ask about strength but what else can you do but move forward and hope and pray that the treatment will stop the progression and give more time. Looking at me you would never know I have cancer and mets (other than my pixie cut after having a bob for 3 decades lol!!).
So I continue on this journey and am thankful I can talk to you all and learn from those of you who also are fighting mets.
I think all of us are strong and show strength just by dealing with this disease 'cancer'. So one day at a time and I am just thankful for every blessed day. xoxo
Pinky, I am also sorry you have to go through treatment AGAIN, but at least no surgery, right?
I echo what MAbound wrote about your strength in fighting this. It is truly amazing how you and others get up and keep fighting. I commend you for that.
I have nothing but respect for you coming to this board to post your updates and struggles admist the physical, mental & emotional turmoil.
Your journey educates, soothes & gives hope to others.
I told my husband after my last surgery (and after my second six day hospitalization) that I wasn't going to go through this again. I was referring to the surgery. I can deal a lot better with chemo, at least with the ones I've previously had, than I can with surgery. I'm not sure how I'll be feeling about it now that I'm having a third chemo drug added. I hope I don't have more severe reactions.
To be honest, at first I thought about not wanting to go through any of this again. I had the greatest urge to just run away somewhere, but I knew it would just follow me there. But when I thought about the alternative to treatment, being 6 foot underground in a coffin in the cold ground, and having a lot of pain before I ended up there, treatment seemed like the better alternative. I hope I haven't offended anyone whose prognosis isn't good by that comment. We all have to die sometime, but we'd all rather have it be somewhere way off in the future rather than now.
Joined: Feb 2013
Biopsy Result
I got the biopsy result this morning on the ulcerations that were found in my transverse colon. Unfortunately, they weren't caused by taking Aleve, as I'd thought they might have been. They were caused by the metastasis of my UPSC again. I went for my 5th high dose radiation treatment today, which has been going really smoothly. I'm often out of there in 5 minutes. I happened to see the radiation oncologist in the hallway as I was leaving, and I told him that the GI doctor had told me that the ulcerations were caused by cancer. He asked if it was endometrial cancer again, and I told him it was. He said that was good, as they wouldn't need to be dealing with anything else. I'll be seeing my oncologist's PA on Thurs. morning, and I'm sure I'll find out then when I'll be starting chemo. My radiation ends on Tues., so I won't be surprised if chemo starts on Wed. if they have an opening. The Cancer Center looked pretty busy today, so I'm not sure if they will.
Joined: Jul 2018
Pinky,
So sorry to hear about the news. I was thinking about you all weekend. We are here for you.
xxoo
Denise
Joined: Nov 2016
I think you have some cause
I think you have some cause for optimism. While not the news you wanted, it could be much, much worse: you're already in treatment, you're tolerating it well, and it's just some leftovers of the original cancer in the same general neighborhood. I wish it was nothing at all but so glad it's not more, and pleased to hear that you're doing well with the radiation. Best always, B
Joined: Nov 2009
Dang!
Sorry Pinky that you have to go through this again. Hugs!!!
Kathy
Joined: Feb 2013
Excuse the "b"
Sorry about the lone letter "b" in here. I think I typed it in too fast, and then it wouldn't let me type the rest of the word "biopsy" or delete the "b," so I had to type it again on another line.
Joined: Feb 2018
I'm sorry for the news, but
I'm sorry for the news, but hopefully you'll get a good plan from your oncologist. Interesting what the rad onc said. Hang in there :)
Joined: Mar 2013
oh pinky, I had been hoping
oh pinky, I had been hoping for the Aleve is the cause of the issues. My prayers are for you my dear.
Joined: Jun 2012
Pinky,
it stinks that you have to go through all this again.
Joined: Dec 2017
Awe I was hoping it would be
Awe I was hoping it would be better news. I’m glad to hear that they will be right on top of it. Hugs
Joined: Oct 2017
Sorry to hear the news, Pinky
Sorry to hear the news, Pinky. But glad you have a good plan in place. also glad to hear that you are tolerating the radiation well.
Joined: Jan 2017
That stinks
Sorry to hear the latest, but I know you probably feel better having a plan. I getting my chemo switched up due to lack of response in a couple areas. Might do radiation to a rogue tumor on my bronchial tube. Or maybe cryosurgery or immunotherapy! I just had meeting with doc today and he pulled Doxil and Avastin from my treatment so I just got Carboplatin. I'm awhirl in information and tentative plans now so I can imagine how you must feel. It's hard to keep ahead of this damn cancer. Good luck to you.
p.s. I found my original photo so changed it back from the one in the scarf.
Joined: Oct 2017
Good luck to you too, KatnHat.
Good luck to you too, KatnHat. Please keep us posted. Good to know your oncologist has plenty of tools in her toolbox. Hope you will reach NED soon!
Joined: Feb 2013
To KatnHat
It's not good to hear that your chemo isn't working so well, especially since I'm about to start on the Avastin that you're being taken off. I guess everyone' journey with this cancer is different, though, and what works for one doesn't necessarily work for another. I hope whatever they try on you next works.
Thanks for your reply and thank you, everyone else, for your thoughts, too.
Joined: Mar 2013
KatnHat, good to hear from
KatnHat, good to hear from you. I can imagine how your head is swirling with information as well. You are in my prayers.
Joined: Jun 2015
Pinky and KatnHat
Just wanted to say that I'm thinking of you both and hope that your treatments get you closer to NED. You are both precious members of this wonderful group of women.
Love and Hugs,
Cindi
Joined: Jun 2018
Darn it!
Yes not the news you wanted but lets pray the treatment stops the little beasts. This endometrial cancer is a nasty little beast and I am trying to be polite!! All the best to you and to KatnHat. Off we go on another journey in our fight against this disease. Hugs xo
Joined: Dec 2017
This journey
Seems to be good news, bad news, and bad news/good news.
I hope the treatments knock everything nasty out.
Joined: Feb 2004
Sorry about the biopsy results
Pinky, I was so hoping that the biopsy would be benign and that the ulcerations would have been due to the Aleve! Sorry that did not turn out to be the case, but it sounds like your treatment team is moving things along and hopefully the chemo will take care of the problem areas in your colon. Wishing you the best as you complete radiation and begin chemo! Good luck to KatnHat also as she embarks on a new treatment plan!
Joined: Jun 2016
Strength
What I want to know is where do you and others who deal with a recurrence find the strength to go through treatment again? Let alone for more than one time. As time goes on since I was in treatment, I just can't imagine how I'd face it again. I know no one has a choice but to do what has to be done, but Dear Lord, how does one cope emotionally? I can't begin to put into words how much admiration I have for all of you that not only cope with these setbacks, but share it with the rest of us so that we can learn from your experiences. Talk about Grace under fire!
Joined: Dec 2017
I feel the same way MAbound.
I feel the same way MAbound. Well spoken. I have nothing but total admiration for these gals!
Joined: Jun 2018
Faith!
My PET scan lite up like a Xmas tree and on paper my prognosis is bad but I am still here and yes I lean on my faith, prayer and family & friends for support.
You ask about strength but what else can you do but move forward and hope and pray that the treatment will stop the progression and give more time. Looking at me you would never know I have cancer and mets (other than my pixie cut after having a bob for 3 decades lol!!).
So I continue on this journey and am thankful I can talk to you all and learn from those of you who also are fighting mets.
I think all of us are strong and show strength just by dealing with this disease 'cancer'. So one day at a time and I am just thankful for every blessed day. xoxo
Joined: Jul 2018
Lulu
I just want to give you a big hug. We are here for you and everyone else.
xxoo
Denise
Joined: Dec 2012
Pinky, I am also sorry you
Pinky, I am also sorry you have to go through treatment AGAIN, but at least no surgery, right?
I echo what MAbound wrote about your strength in fighting this. It is truly amazing how you and others get up and keep fighting. I commend you for that.
I have nothing but respect for you coming to this board to post your updates and struggles admist the physical, mental & emotional turmoil.
Your journey educates, soothes & gives hope to others.
I wish you nothing but peace & recovery.
Kathy
Joined: Feb 2013
Strength
I told my husband after my last surgery (and after my second six day hospitalization) that I wasn't going to go through this again. I was referring to the surgery. I can deal a lot better with chemo, at least with the ones I've previously had, than I can with surgery. I'm not sure how I'll be feeling about it now that I'm having a third chemo drug added. I hope I don't have more severe reactions.
To be honest, at first I thought about not wanting to go through any of this again. I had the greatest urge to just run away somewhere, but I knew it would just follow me there. But when I thought about the alternative to treatment, being 6 foot underground in a coffin in the cold ground, and having a lot of pain before I ended up there, treatment seemed like the better alternative. I hope I haven't offended anyone whose prognosis isn't good by that comment. We all have to die sometime, but we'd all rather have it be somewhere way off in the future rather than now.
Joined: Nov 2016
Always good to hear from you,
Always good to hear from you, Pinky, and glad that the treatment is thus far tolerable. Best always, B