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Still NED but---

icemantoo's picture
Posts: 3317
Joined: Jan 2010

Had my Kidney US last week and saw URO today. Same small sub cm cyst in other kidney wh1ch they have been watching for years. Officially NED for almost 17 years.


But PSA is higher and retest in 90 days. Then maybe Prostate biopssy. Trying to get discharged from URO.





Bay Area Guy's picture
Bay Area Guy
Posts: 495
Joined: Jun 2016

My dad, who never was diagnosed with any kind of cancer, had an elevated PSA level from about 65 years of age on.  He was referred to a urologist and various tests were done,  it did show an enlarged prostate.  As he got older, he did have an episode or two of difficulty urinating, but those passed (pardon the pun) with some medication and, once, with a catheter.  He passed away at 90, and the stated cause was complications from COPD, but the real reason, in my opinion, is that my mom passed away the year before and he missed her terribly.  I don’t think it was a coincidence that he passed away the night before what would have been her birthday.  I think he just wanted to be with her again.

Congrats on another year of NED, ice.  May you have many more, and continue with your cheesy humor (that I love) and continue being an inspiration to everyone on this board.

Posts: 40
Joined: Feb 2019

Congrats Iceman! Good luck with the PSA! 

Hoss79's picture
Posts: 78
Joined: Nov 2017

Congrats on the NED!!!

Dominick0711's picture
Posts: 92
Joined: Jan 2019

icemantoo, your 17 years NED gives me great hope! And your comments always give me an opportunity to laugh! So happy you are NED!  Best of luck with the retest in 90 days, I'm hoping no biopsy for you!

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 206
Joined: Oct 2017

Keep it up-we need you here-June

Manufred's picture
Posts: 241
Joined: May 2017

Somewhat ironic, but success in defeating cancer (well, I mean our cancer, RCC) is that there will then be something else that takes us out eventually.

Prostate is being managed very well these days as I expect you already know, and they say most men die with it (as your father may have done), not from it.

And this might open up a whole new community on the Prostate survivors discussion board who can then benefit from your wisdom and wit.

Hope it all goes away, but life goes on.

Best wishes, Fred

Bay Area Guy's picture
Bay Area Guy
Posts: 495
Joined: Jun 2016

In regard to my dad, that’s exactly what his urologist told him.....you’ll die with prostate cancer, but not from it.

eug91's picture
Posts: 307
Joined: Jan 2019

NED! Here's to at least another 17 years! 

Canadian Sandy's picture
Canadian Sandy
Posts: 690
Joined: Jul 2016

Congrats on your Ned status!


Allochka's picture
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Joined: Nov 2014

Congrats on NED, and good luck with PSA thing! 

Posts: 111
Joined: Nov 2017

That is fantastic.   Keep it up.   Gives me lots of long term goals.

APny's picture
Posts: 1998
Joined: Mar 2014

Great news, Iceman, and good luck with the PSA!

donna_lee's picture
Posts: 999
Joined: Feb 2009

Congrats, Iceman.  I'm hoping for a good report within a couple of weeks.


adman's picture
Posts: 338
Joined: Jul 2012

Great News; congrats. Continued great health and wishing you well.

God Bless. 

Jan4you's picture
Posts: 1327
Joined: Oct 2013

Let's celebrate YOU, Iceman!! Look at ALL you bring us at this forum. 

AND you offer us HOPE as you are Kidney cancer free for 17 friggin years!!

So now its time to practice what Fox always said, NOt to worry, life is too precious.

Sending you healing hugs,


daisybud's picture
Posts: 506
Joined: Jan 2016

Very happy for you! Happy dance time!

Retcenturion's picture
Posts: 240
Joined: Mar 2017

Thank you for sharing Iceman.  You do so much for all of us here. Wishing you many more good reports.

Posts: 28
Joined: Aug 2018

Congrats on NED and good luck with the prostrate.

stub1969's picture
Posts: 888
Joined: Jul 2016

You continue to set the standard, Iceman.  Keep us posted on your recheck on your PSA numbers.


Steph85's picture
Posts: 166
Joined: Feb 2018

Congrats on the NED icemantoo! You are an inspiration to us all.

Take care,


Mighty Frog's picture
Mighty Frog
Posts: 152
Joined: Jul 2017

Congratulation Iceman! and NED forever.....

Apaugh's picture
Posts: 856
Joined: Aug 2016

Wonderful news for you Iceman.  Prayers that NED continue.


lobbyist0724's picture
Posts: 444
Joined: Sep 2016

Congrats Iceman, 17 years! Time flies isn't it!

Posts: 80
Joined: Jan 2018

hereth to stay. Congrats 

Angiebby75's picture
Posts: 209
Joined: Aug 2017

Congratulations to you what an beautiful blessing to share with this forum.

ImNotDeadYet's picture
Posts: 244
Joined: Apr 2017

I hope everything goes well with the PSA stuff. 

MelBlessed's picture
Posts: 71
Joined: Aug 2017

You are a blessing and an inspiration for all of us here in this club!

Posts: 57
Joined: Sep 2008

Dear Iceman,

  Please ask your urologist about you getting a 4K test before doing a prostate biopsy. It is a fairly new blood test that is said to be extremely accurate (more so than a biopsy) for detecting prostate cancer.

  Good luck with all to follow and major congrats on the NED!!


icemantoo's picture
Posts: 3317
Joined: Jan 2010

Had the 4K instead of a biopsy 2  years ago. Low risk per 4K but PSA keeps climbing.





Tapman63's picture
Posts: 137
Joined: Dec 2017

Here's to many more!!!

Posts: 23
Joined: Jul 2018

Congrats on your Ned status!! wonderful news for you Iceman

JerzyGrrl's picture
Posts: 760
Joined: Jun 2016

On the 17 years hanging out with Uncle Ned. It's the other stuff that tries to drive us crazy. Good thoughts for your follow up appointment, Iceman.

Posts: 390
Joined: Nov 2016

On 17 years NED! Hope that the psa levels resolve.

Posts: 57
Joined: Sep 2008

Dear Iceman-There is an incredibly accurate new blood test for aggressive cancer. It is called the 4K test -that can help avoid a biopsy. Also an MRI is another indicator if its just an enlarged prostate causing the elevation. Two specialists told my hubby not to even get the PSA taken as it causes undue worry, and that it goes up and down for many reasons (including constipation, having sex not too long before the test, etc).
  Avoid having a biopsy if at all possible because it can cause a slew of possible problems-check it out on the net. And if you do ask your dr. for an antibiotic a few weeks in advance.

Hope this info helps..


Posts: 32
Joined: May 2019

Hey Iceman

what is the size of the lesion in your kidney they are observing?

icemantoo's picture
Posts: 3317
Joined: Jan 2010

9mm, Doc really isn'i worried/ It has been there for years/





Posts: 32
Joined: May 2019

That’s nothing...9mm and not growing!!

Mine is 2.7 cm and maybe waiting won’t be recommended 

Max57's picture
Posts: 172
Joined: Mar 2015

May NED keep visiting you every year and good luck with PSA

Skagway Jack's picture
Skagway Jack
Posts: 224
Joined: Oct 2013

Iceman,   Good for you, and here's hoping that the PSA elevation is temporary.  Im sure manymore NEDs coming your way.


Posts: 15
Joined: Apr 2019

Congrats AND good luck!  Keep us updated!

Posts: 14
Joined: Apr 2019


Congrats and may long it continue. Are these annual ultrasounds part of an active surveillance plan recommended by your surgeon/oncologist or are you doing it for personal reasons? I'm curious to know at what point do doctors release you if they do not see a sign of remission. 

icemantoo's picture
Posts: 3317
Joined: Jan 2010

I probably would have been released, but for the cyst on the other Kidney. On second Uro because I moved To Florida 4 years ago.. Wants to change to 2 year scans. Still 6 months on PSA.  Its like a 1 stop shop.





Posts: 41
Joined: Feb 2019

Dear Iceman, congratulation for your 17th NED, which gives me more hope and confidence fighting for life. Good luck with the PSA!

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