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Hi, New here but extremely worried! Super, super large lymph nodes!

T1fft1m's picture
T1fft1m
Posts: 4
Joined: Nov 2018

Hi, I'm not trying to get a diagnosis, just very concerned! My entire biological female family passed b4 the age of 40 from a type of cancer. I'm 43. The last 9 mths I have the biggest lymph nodes I have ever seen ( you do not need to feel for them!!! They are so large even someone almost blind can see them.) On both sides of pelvic area. I also drench my sheets with severe night sweats. And have chills really bad. Sometimes low grade fevers, 1 node looks so large it can actually be the size of two chicken eggs! I have 1 about the size of two marbles in my left neck also. I'm having issues with my gp. So I thought maybe I'd come here for a lil advice... Anything???

po18guy
Posts: 934
Joined: Nov 2011

Just that simple.

T1fft1m's picture
T1fft1m
Posts: 4
Joined: Nov 2018

To you that simple but it isn't for me when nobody wants to take a new patient or my insurance it's not so easy for me by the way I found a new one this morning and my annoying rootable of vomiting I found one right above my hysterectomy Scar and it's pretty big too I have lost over 30 pounds now and I only weigh 69 now

po18guy
Posts: 934
Joined: Nov 2011

Then, try to resist the temptation to place roadblocks in the way of solutiuons or entertain additional worries on top of the burden you have right now. Be your own advocate, as we can only support you online. We are more than willing to do that as best we can, but how can we if you find difficulties for every solution? You have conquesred much in life. Accept this challenge and make the consious decision to do whatever it takes to get a firm diagnosis. Be the squeaky wheel and let your nervous energy propel you to that diagnosis. 

Evarista
Posts: 238
Joined: May 2017

Try to get a referral to a National Cancer Institute designated Cancer Center.  You can find a locations here:  https://www.cancer.gov/research/nci-role/cancer-centers/find

Wishing you all the best going forward.

yesyes2
Posts: 575
Joined: Jul 2009

If you don't want to see your GP a thought would be to try an appointment with either your OB/GYN or an appt. with your local Planned Parenthood.  They treat both men and women and have a long history of finding various cancers.  If they feel additional testing is called for they can send you (help you) to the right people.  Your groin inlarged lymphnodes, night sweats, fever should be able to get you in.  It does sound like you need to be seen and probably will need lots of various tests before anyone knows what is going on.  

 

T1fft1m's picture
T1fft1m
Posts: 4
Joined: Nov 2018

Thank you very much

Evarista
Posts: 238
Joined: May 2017

Not off the wall at all!  This is a great suggestion. 

yesyes2
Posts: 575
Joined: Jul 2009

Thanks Evarista.

ShadyGuy's picture
ShadyGuy
Posts: 333
Joined: Jan 2017

To be suspicious. For example the name looks like it may be generated by a bot. However if it is legitimate please do whatever is necessary to see an oncologist as soon as possible. Waste no time time on here. Go to an onc now.

T1fft1m's picture
T1fft1m
Posts: 4
Joined: Nov 2018

hi I'm real person I promise I'm not a annoying bot

Bill1958's picture
Bill1958
Posts: 60
Joined: Feb 2018

Please listen to the many brillant folks on here and get the answers you need.  Your symptoms are indicators at the very least of a lymphatic system problem of some sort.  I hope you find answers.

Rexmax's picture
Rexmax
Posts: 43
Joined: Apr 2017

This is a super support group we have here, however you have to help yourself first with a definite diagnosis,please seek out all the medical Dr.s available to you asap, and we will all be here for you.... This group has been a Godsend to me and I'm so grateful for you all.... by the way just finished #8 of my 12 Rituxan Maintenance sessions and so far doing well....wishing all a Very Thankful Thanksgiving ❤️

lindary's picture
lindary
Posts: 628
Joined: Mar 2015

I have a poster I got years ago that says "Obstacles are what you see when you lose sight of your goal". 

This doesn't mean that you should ignore the the obstacles, just don't let them stop you.  Good luck T1.

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