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from the frying pan into the fire

darcher's picture
darcher
Posts: 265
Joined: Jun 2017

I'm sitting in my hospital bed wearing an Aladdin head dress after a wihrlwind of procedures.  Last year to the date I was in here for rectal cancer,   As you know, this type of tumor has a lot of side affects.   Mine is 3 inches around and wasnt discovered until after the post rectal cancer chemo PET scan.  

  Long Story short, the side affects of this are similar to rectal cancer so I didn't know to tell them to check.   A simple MRI would have shown this a year ago.   It didn;t show up until the PET scan this year and only because of an eagle eye radiologist looking at the last frame and noticing something different.  By then the tumor had grown down to the point of showing up on a PET scan.

 They say it's been growing for 20 years.  I doubt that.  Not when it grows at the rate it did. Plus, they said it made me paranoid and delusional.   I doubt that too.   They say it;s not cancerous and is benign.  That remains to be seen. 

For 13 hours they operated on me and got a good amount of it out.   Stilll have some more to go  which will be scheduled for Feb sometime.  I saw where t]hey do a whole brain radiation,`  I wonder, is it possible to do a targeted proton radiation?

 

NC_Mike's picture
NC_Mike
Posts: 1
Joined: Dec 2018

I had pretty much the same situation. Had a colonoscopy and they found a rectal tumor and colon tumor. While getting scans, during the pet, they saw the brain tumor light up, barely on the scan. So I had brain tumor (grade4 Glioblastoma) removed and completed 6 weeks of chemo and radiation. I live in NC, but chose Cancer Centers of America in Philadelphia. I go back next week for brain scan and if it looks good my date to remove colon and rectum will be set for Jan.. But the brain tumor popping up on scan was a mind blower after being diagnosed with colon and rectal a couple weeks before..

So how has your health been since surgery/treatments? And where are you receiving treatment?

darcher's picture
darcher
Posts: 265
Joined: Jun 2017

 All things consered my health is ok.  It was a shock and mine was discovered the  same way yours was except it was after the rectal cancer treatment. A follow up "lets see if there is any recurrance" pet scan is what revealed it. I think the only reason they caught it was because of how I was positioned on the table. This was my 3rd scan and the other two didn't show anything. On this one I was probably down further on the table enabling the machine to catch a single frame of it. I was told by  the neurosurgeon that had they not caught it I'd be dead in about a year or so. It was huge at 8cm across.  Biggest one he had seen in a live person is what he told me. The doctor told me had it grown at a faster rate my brain would not have been able to compensate for its intrusion and I'd be a gonner. 

 After the operation on Nov 5th I've been waking up so to speak. Many of the things I've forgotten are coming back and from what I've been told am easier to get along with.  I still have about 40% of it to get out which is on the  right side, about the size of a golf ball. I've become a lot more calm and the cancer I had is a distant memory, hopefully for good.  It came on so gradual that no one noticed, not even me.  At one point during chemo I had a bit of a melt down while in for a chemo checkup.  They sent me to a therapist who then sent me to a drug intervention place or something like that. I was there for about 20 minutes before they sent me home.  Just goes to show that even an oncologist or therapist with PHD next to her name can make mistakes.

  Like yours it was a mengionoma. I don't know what the grade was and didn't ask either. The fact is wasn't cancerous was the biggest relief.  Found out about that on the last day in the hospital

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