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From the frying pan into the fire

darcher's picture
darcher
Posts: 262
Joined: Jun 2017

  This about a brain tumor but started out as rectal cancer although the neuro surgeon said they weren;t related,    i had a "final" pet scan a few weeks back,    The oncologist called me in a panic asking if I was having dizzy spells or feeling numb, paranoid, or other things, which I was,    They said there was a shadow on the pet scan and wanted me to get an MRI   I did and they called me in right away,    Turns out, I had a  3 inch tumor in my head,    So, I went in for a 13 hour operation and it;s still not completly out,   I'll have to  go back in Feb to get the rest of it out.  

  I count my lucky stars that someone noticed the shadow on the pet scan.   It was barely visisble from the base of the skull which was the last scan in the series. The nwurosurgeon said he would not have seen it.  There was a sharp eyed radiologist who spotted it,    Had it not been seen I'd have dropped dead in a few years,   Im in the hospital now and  look like Aladdin with a turban.   Been in here for several days now.   I'll probably be going home in a few days which is triple the total length of time i spent in the hosital for the rectal cancer.  I'll bounce back from this too,   The point of this post is do a full body scan including your noggin.   The symptoms for a brain tumor are similar to colorectal cancer.  If youve gone through the treatment and still have the symptons then you better get checked out,

Canadian Sandy's picture
Canadian Sandy
Posts: 384
Joined: Jul 2016

Oh no! I’m so sorry Darcher. At least it’s being taken care of. My heart goes out to you.....prayers sent your way.

Woodytele
Posts: 158
Joined: Apr 2017

Had a neck MRI done, and they noticed brain Mets while doing it.  Had stereo-tactic radiation treatment to kill/shrink the Mets.  The cancer is evil and can go ANYWHERE!!

Trubrit's picture
Trubrit
Posts: 4447
Joined: Jan 2013

I am sorry to hear this, Darcher.

The thought of brain mets scares me no end. It has been one of my fears, especially as a Vertigo sufferer. 

I am so glad that someone was on the ball, and you are being taken care of. Not so happy to hear that it will take two shots, getting it all out. What trauma. 

I hope you are out of the hospital soon, and well recovered. This will indeed be a Thanksgiving celebration for you, no doubt.

Other than the following surgery, so they have plans to do mop up treatment? 

Wishing you well. 

Tru

Twinzma
Posts: 154
Joined: Jan 2018

I am so sorry you have had such a setback. How scary for you and your loved ones! I am so glad that they found it and treated you so quickly. Hopefully this will be the last bump in the road and you are in NEDsville soon. I hope you come home soon Aladin! Hugs & prayers

 

abrub's picture
abrub
Posts: 2028
Joined: Mar 2010

Wishing you all the best!

Alice

NewHere's picture
NewHere
Posts: 1030
Joined: Feb 2015

So glad you had a radiologist spot it and you are on the way to recovery. 

My original CRC was discovered the same way.  I had a scan for something else and the report said, by the way there is a shadow over to the right that should be looked at, just in case. 

As an aside, I have been having other symptoms and just had a CT scan on my brain two days ago.  Came back as no tumor, but they have no explaination of why I am so sick.  I am wondering if I should ask for it to be read again based on what you have gone through... it is scary how close things can be seen or missed in all of this.

Mikenh's picture
Mikenh
Posts: 782
Joined: Oct 2017

Glad it was caught and that it’s treatable. Best wishes on recovery.

JanJan63's picture
JanJan63
Posts: 2066
Joined: Sep 2014

Oh my goodness! What horrible news! I'm glad it's operable but how horrid to have to have two surgeries. I have a PET scan coming up in a few weeks. I wonder what they'll find. I'm actually pretty scared about it.

Heal fast!

Jan

Twinzma
Posts: 154
Joined: Jan 2018

Sending positive vibes and prayers your way. Hope you PET scan renders good news!!! Hugs 

SandiaBuddy's picture
SandiaBuddy
Posts: 503
Joined: Apr 2017

DArcher, what a bad turn of luck.  But you seem to have a great attitude.  Glad you caught it!

beaumontdave's picture
beaumontdave
Posts: 817
Joined: Aug 2013

Wow, a "shoestring catch" that your regular PET scan would see the shadow. My CT's were always neck to crotch, I'd never seen what the PET scans covered, but I assumed they were the same. Glad your plans in place and you're healing up...........................................Dave

Annabelle41415's picture
Annabelle41415
Posts: 5729
Joined: Feb 2009

Didn't know you were going through all of this but it is good that someone took the time to study your scan and discover this.  Hopefully in February they will get the rest of it and you will be on your way to a full recovery.

Kim

darcher's picture
darcher
Posts: 262
Joined: Jun 2017

  It's weird how this will make you forget the days of the week and even important events, like the wifes's 40th birthday.   I caught it on the day I was coming home from picking up the kids from school and looked at my phone and there it was, my wife's birthday. I says to her, I'm sorry, but it's still early so lets go get something to eat.  By then we were all well aware of my condition.   The tumor is 3 inches in size and located in the upper frontal area.  The neurologist said it grew over a period of 20 years and once they've cleared it completely out I'll be a new man minus all the negative stuff.  Wife is excited about that.

   My two brothers came out for the surgery.  My sons also showed up.  Can't say I remember any of it from the time I got to the hospital.  I got there on Monday and I'm home today.  I have the hiccups now and I think it's because the brain is shaking around. Anyhow, Im back home and got lots of medications to take.  I'm up to 5 bottles of medicine, from anti-seizure to pain kiillers plus other stuff.  Can't recall what they are. This is non-malingnant and is unrelated to the rectal cancer. Big surprise there but after discusssing it with the neurosurgeon I suspect it's due to the steel mills in Western Pa where I grew up.

  On a positive note the neurologist said I'd come out of this a new man since I won't remember much of anything from before.   Come to think of it, I can't remember the first 8 years of my marriage, lol.   Don't know if that's a good thing or not.   While in there I was wearing a turbban.  Once they removed it, oh boy, I've got an ear to ear scar across the top.  Frankenstein syndrom.  On the way out I had some fun with it...Gotta do that.   There were groups of people visting the hospital and some saw the stiching across my head.  I said, "Miracles of modern medicine.  I've had a brain transplant".  The looks I got, lol.

  Well, at least I'm still alive and kicking.  No big mac attacks and only 2 extra days beyond the original 3 days for the rectal cancer.

Ruthmomto4's picture
Ruthmomto4
Posts: 532
Joined: May 2013

i am so happy to see it’s not malignant but I am so sorry! I am so happy they found it, little miracles everywhere I guess. Rest & recover and get Big Mac man! You deserve it and then some!

Annabelle41415's picture
Annabelle41415
Posts: 5729
Joined: Feb 2009

Welcome home and glad that all seems to be going well and it's not cancer.  Wishing you a speedy recovery and that you continue to heal and get your memory back (good ones only LOL).  Thanks for the update and glad you still have a sense of humor.

Kim

Canadian Sandy's picture
Canadian Sandy
Posts: 384
Joined: Jul 2016

Omg.....you are so funny Darcher. With your attitude and sense of humour you’ll be around for a long time. That is unless you keep forgetting the wife’s birthday.  lol I would have loved to see the looks on they’re faces,

Trubrit's picture
Trubrit
Posts: 4447
Joined: Jan 2013

You had a three inch tumour and forgot your wife's birthday. Man, you have the best excuse ever! Even I (a wife) would take that as an excuse for my hubby to forget. 

I am glad you are home. There is nothing like your own bed, house, food, to haste recovery. 

Heal well. Enjoy Thanksgiving, Christmas, and face the next surgery when it comes. 

Tru

SandiaBuddy's picture
SandiaBuddy
Posts: 503
Joined: Apr 2017

I am glad to hear you are doing well and wish you an optimal recovery.  Too bad you are too late for Halloween--imagine greeting the kids at the door with that scar!

ron50's picture
ron50
Posts: 1685
Joined: Nov 2001

The recovery process. I hope it gives you no further problems. Likewise with the rectal cancer. Wishing you good health and a cancer free life. Ron.

Peter_S's picture
Peter_S
Posts: 118
Joined: Oct 2018

You've managed to find and express the humor in what sounds like an off the charts ordeal. For someone like me 5 weeks into a colon cancer diagnosis and with my colectomy in a few days, your story gives me hope and a whole lot of inspiration, I'm grateful for that. I just want to add my voice to all the others here in wishing you all the good health, love and laughter you deserve. Peter

ellend
Posts: 71
Joined: Apr 2016

Really glad to hear that the tumor was not malignant and not related to the rectal cancer. I'm glad that you can find humor in all of this, I think it speeds healing. Plus, if we can't laugh, we would end up crying over the ordeals we have all been through.

Best of luck in your healing process.

Ellen

plsletitrain
Posts: 266
Joined: Jul 2017

Sorry you had to go through surgery again (and in one of the most major/vital organs at that!) but I'm glad it's not malignant.  Glad to hear you're back home.  Stay well.  

Butt
Posts: 70
Joined: May 2018

Guys, does anyone here when you get scans for chest and abdominal area also receive a brain scan? Butt. 

NewHere's picture
NewHere
Posts: 1030
Joined: Feb 2015

From my experience of scans the last four years -

Usually the 3 month scans are neck down to lower abdoman - CT (not MRI nor PET).

Some things showing on a CT may need MRI to confirm - like the spinal tumor I had.  The said if picked up on CT need MRI to confirm.  PET scans are usually top to bottom.

PET scans are limited in use in the brain due to the activity (sugar uptake) that is part of normal brain activity, so other scans are needed there.

You can ask for top to bottom scan.  It is not a bad idea to get one at some point for future reference.  Though a PET Scan may have issues, that seems to be one of the tests that get done at some point.  I think I have had three now in the last four years.

plsletitrain
Posts: 266
Joined: Jul 2017

I think you have to have a full body scan for them to see the brain.  Or a brain scan independently.

darcher's picture
darcher
Posts: 262
Joined: Jun 2017

 A pet scan isn't enough.  I suppose an MRI is required to see details of the brain.  The most important detail is the symptons are the same from colrectal cancer and a brain tumor.   So, if you are having persistent symptoms even a month after cancer treatment then get an MRI.

 

Dave

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