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Been a while..

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Sorry to see so much lost content! I know it's been a while since I posted...

Last scans show 3 spots in my lungs. Two in right, one in left. Onc scheduled repeat scans and one "spot" resolved itself??

They, however,  want to biopsy the one in the left lung. I have been spending a lot of my time on smart patients but I would really like to see if anyone has any thoughts on this.

I had an ablation on my remaining kidney last June that was benign and just fibrous tissue.

Suspicious spot in breast...fibrous tissue as well.

Kinda scared it might be another primary cancer??

 

Anyway I hope you are all well.

Cin

Hd67xlch's picture
Hd67xlch
Posts: 143
Joined: Apr 2016

dont sweat that nothing to it. Have they doubled since they were 1st noticed? How big are they? My 1st thought is to always get them cut out if they are sure its cancer, thats the approach Ive always taken and its gotten me several years of ned, but it always seems to come back eventually once its metastisized somewhere. If its doable via surgery its your best chance of a so called cure for awhile anyway, JMO. Good luck.

eug91's picture
eug91
Posts: 139
Joined: Jan 2019

I don't have any insight into your lung spots, but yikes - it sounds like you've already been put through an emotional ringer with both scares turning out to be fibrous. Understandable why you'd be scared, but I'll be crossing my fingers and saying prayers for you that you'll be okay. 

jazzgirl's picture
jazzgirl
Posts: 133
Joined: Nov 2017

Sorry, no similar experience to give you any information, but I am so glad to see you on here.  As eug91 says, you really have been through the wringer, both physically and emotionally - prayers as you walk through the latest.  Any appointments set yet?

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Oh dear Cinnamon girl, WE are here for you!

Just keep bumping up this post and eventually others with more knowledge will respond.

Now in the meantime, I am here for you and will walk along side you. The unknown can be scary

but please do not fret and worry about things you cannot change. 

I like to say the Serenity prayer until I feel at peace:

(God) Grant me the SERENITY to accept the things I cannot change,

the COURAGE to change the things I can and the

WISDOM to know the difference.

Sending you calm, healing vibes, 

Hugs, Jan

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

I can't answer your question, but sure do want to send up all the best for you for a good outcome. Hang tough. That's all we can do during these trying times.

Keep us posted on what you find out, please!

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Biopsy scheduled for Valentines day 7am! They are going to attempt a biopsy on the 9mm spot in the right lung. Fingers crossed.

Thank you for all of your encouragement I'll keep you posted!

Cin

Hoss79's picture
Hoss79
Posts: 78
Joined: Nov 2017

Praying it’s nothing.

sandy23
Posts: 137
Joined: Jan 2017

Hi Cinn, I was going to look back through old posts to find out if you originally had 3 spots but then remembered that isn't possible.  Is that the same as before? 

Also, the fact that one "resolved" itself makes me feel much better about the other ones.  Sorry that your roller coaster ride is still going, you need to get off that darn thing already!!

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

The "spots" are new. I have an appt today with Radiation oncology in case it comes back positive for RCC. Fingers crossed everything goes smooth on Valentine's day!

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Well results are in. Biopsy positive for RCC in lungs. Very sad day. The hits just keep coming. 

 

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Aww ok a scary day. Give your reactions a day to sink in then do exactly what you are doing now. 

ASK for what you need, support, information etc. We'll be here along side you ALL THE WAY!

Many folks here and on SmartPatients.com have had lung mets and are surviving, are beating this!

Keep me (us) informed if you want ok hon?

Sending you CALM, HOPE and SUPPORT!

Jan

eug91's picture
eug91
Posts: 139
Joined: Jan 2019

I'm sorry, Cinn. That sucks. Please take care of yourself tonight. Maybe treat yourself to something fun.

But then after a good night's sleep, get yourself ready for war. You already kicked that RCC's butt before, you'll do it again. We're with you. 

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

oh dear. that’s tough to take 

cry and cry

then we fight

a day at a time

stay strong 

Annie

Allochka's picture
Allochka
Posts: 861
Joined: Nov 2014

Very sorry to hear ... Did you discuss the plan already ? Is it possible to cut them out?

jazzgirl's picture
jazzgirl
Posts: 133
Joined: Nov 2017

So sorry to hear this Cin.  Hugs from afar.  Take care -

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

The plan is to stay off of systemic treatment as long as possible. With that being said the plan is to do SRBT  they placed a marker when they did the biopsy.

I'm having a VERY tough time with this! For the first time since this all started I feel scared....very scared. I am not someone who sits and cries but I can't seem to stop.

If the SRBT works I will be NED again which should give me encouragement  but I am really struggling.

I truly hope you all are well and healthy.

 

Cin

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Sorry for the news. Believe in the plan. We are all sending our best.

APny's picture
APny
Posts: 1933
Joined: Mar 2014

I am so sorry, Cin. It really sucks. I totally get having a tough time digesting this. Hopefully the treatment will return you to NED status. keeping you in my thoughts xo

Jan4you's picture
Jan4you
Posts: 1317
Joined: Oct 2013

Hey sweetie, it is perfectly okay, all right to cry and cry and cry. It lets out the pain. Think about it, you cannot put a tear back, right?

That is your human side and its natural. I totally dislike when others say, Be strong when you are feelling like crap, eh?

We'll be here for you. You can write me via email her any time ok hon?

At least you know there is a plan. Who are your support people, if you care to share?

Sending you CALM, HOPE and healing hugs,

Jan

jazzgirl's picture
jazzgirl
Posts: 133
Joined: Nov 2017

Tears sound really normal and appropriate today, as is the fear.  We're with you as you put one foot in front of the other and keep moving, and, as Retcenturion says, beliving in the plan - and in everything, everybody else you believe in.  Take care -

Allochka's picture
Allochka
Posts: 861
Joined: Nov 2014

The most important is that there is a plan, with great chance to retutn you to NED.   Hd67xlch did it twice with great success.

Hugs, cry as much as you need, and then start fighting and winning!

Hd67xlch's picture
Hd67xlch
Posts: 143
Joined: Apr 2016

in the hospital right now recovering from my 3rd lung surgery. I had the surgery two days ago and feel pretty good.  I’m now ned  again hoping to get a another long run of being Ned again   Good luck

APny's picture
APny
Posts: 1933
Joined: Mar 2014

Wishing you a speedy recovery and an endless run of NED!

stub1969's picture
stub1969
Posts: 790
Joined: Jul 2016

I'm going to echo what people have said--"you have a plan moving forward".  In the meantime, gather information so you are knowledgeable about next steps.  Be an advocate and a partner with your medical team.

Blessings to you, Cinnamon.

Stub

Canadian Sandy's picture
Canadian Sandy
Posts: 491
Joined: Jul 2016

Sorry to hear this. Keep strong cin.

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

Now you know, and a plan is in place to zap therm outta there. You're already strong so just hang tough til it's over. You got this one, too. Rooting for you all the way, always!

MarkDavid18's picture
MarkDavid18
Posts: 57
Joined: May 2018

Cancer sucks. It doesn't fight fair. It hides and lurks in the body and then just when you think you are in the clear it rears its ugly head. I really hate this disease. I am so sorry that you are dealing with this. It sounds like you have a great plan in place to zap those little mets to oblivion. I pray that you have strength and healing as well as peace while you go through this ordeal. We all fight with you ... 

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