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More surgery for me...

abrub's picture
abrub
Posts: 2131
Joined: Mar 2010

I just spent 3 days in NYC for appointments at Memorial Sloan Kettering. The conclusion is that now is the right time for surgery; we shouldn't wait.  I don’t have the detailed reports yet, although my surgeon has them.  My metastatic appendix tumor has grown, but still appears to be confined in scar tissue. However, it is starting to press against my bowel, and it’s time to have it removed. No other spots are showing, which is good, as there were some questionable areas left after my surgery in 2016.  To date, there has been absolutely no growth or indication of recurrence there.   My surgeon is very happy that we had all of this pre-scheduled, in anticipation of the likely need for surgery.  We’re anticipating 4-6 days in the hospital, but understand that is not set in stone.  Surgery is set for Feb. 12.

Of interest, I’ve been asked to participate in a research study of genetics vs. mutations.  The DNA of my tumor and of my blood (considered normal) will be tested for both genetic markers and mutational markers to see what, if anything can be learned about this (and other) cancers.   Where my tumor DNA differs from my blood DNA will indicate mutation rather than genetic predisposition.  It should be interested, and I will be given a full report. A link to the study: https://www.mskcc.org/msk-impact

My head is in a good place; no panic mode yet! I've known I would need more surgery - the question has been when, and as it turned out, this is perfect timing medically as well as convenience for me and my family.  In anticipation, I scheduled it at my convenience; allowing me to enjoy a half season of curling, and to have my family around me (our daughter lives in Nepal).; Though I'll be down and out for the rest of the winter, come spring I'll be back in my kayak.

Alice

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

I am happy to hear that 'your head is in a good place'. That is always so improtant. It is good that you have had time to prepare yourself mentally for this surgery. I bet your recovery will be all the faster, for it. And to know that your family is here to help.  I would love to travel to India. My Oncologist is from India, and has been in America about 18 years. 

I have you on my calendar for the 12th, and will be sending prayers to Heaven, and good thoughts your way. 

It is also good to hear that there seems to be no other worrying spots. 

Tru

Kazenmax's picture
Kazenmax
Posts: 416
Joined: Feb 2016

Ao glad to hear that there no other spots. I know it’s not fun looking toward another surgery but you got this. I will have you in my thoughts and hope all goes well.

k

SandiaBuddy's picture
SandiaBuddy
Posts: 1093
Joined: Apr 2017

Best wishes for a successful surgery.  From your description, it sounds pretty positive.  Here's hoping for a quick recovery and a return to form for the next curling season.

Annabelle41415's picture
Annabelle41415
Posts: 6525
Joined: Feb 2009

Wishing you the best in your upcoming surgery.  Sounds like all of you have a plan and a good one.  Once the surgery is done you can start to heal in time for the kayaking in the summer which you love so much.  Please keep us updated on how everything is going.

Kim

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