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Some positive news!

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

I've been on Votrient since February of this year, and just had my latest scans and follow up with the doc. No new growth or progression! I was more anxious this time around than usual - probably because of the reduced dose I was on for two weeks while on vacation. It felt like a weight lifted off of me today. My "spousal equivalent" is going out of town next week for work. Last time she did that, I needed my cousin  to come out and "babysit" me. This time, in addition to good scans, I'm managing the side effects much better to the point that I'm going to hang solo for a week - just the dogs and me. I'm grateful for this group and for all of you. I've learned so much here and have truly benefited from the support we all give to one and other. And now, I'll celebrate the good news with some of "Colorado's finest!" Be well my friends and let's keep supporting each other!

Gary

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

Gary,

 

Greeat to hear the progress.

 

 

icemantoo  a/k/a Garry

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

...It was a steak.Wink

Congrats!

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

I don't drink anymore. It doesn't play well with Votrient, so... 

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

So glad to hear your upbeat news. Like Jerry says " having a high time, living the good life". Enjoy your me time you have earned it.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

... I know... 

Canadian Sandy's picture
Canadian Sandy
Posts: 491
Joined: Jul 2016

Happy for the good news. Enjoy that Colorado’s finest.

Limelife50's picture
Limelife50
Posts: 476
Joined: Nov 2011

Party on you deserve it !!!!!

daisybud's picture
daisybud
Posts: 455
Joined: Jan 2016

Good news!

angec's picture
angec
Posts: 923
Joined: Mar 2012

That is great, Gary! What dose of Votrient are you on now? My 86 year old mother has been on 200 mgs. since 2012. Was stage4 RRC.  She has been NED with Votrient since 2013 or so. Votrient is a very powerful drug and they usually start out with the highest dose of 800. But that does is not always needed and since the side affects can be strong it was a good idea to go lower. So, if it gets to the point you can't tolerate the side affects, don't go off the drug. Just keep going to the lowest point where you still get results!  All the best!

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

We started at 800, but I couldn't tolerate the side effects. Still was having it bad until they added pantoprazole, which has helped the GI SEs signicantly. Glad your mom is doing so well! Definitely encouraging to read that. 

Wehavenotimeatall
Posts: 479
Joined: Aug 2017

we have all been so worried about you

but glad to hear the plan is working 

i know you have had major life shifts but great to hear the news is going all your ways

peace and love

Annie

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Great news

I'm very happy for you

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