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jason.2835's picture
jason.2835
Posts: 336
Joined: Nov 2014

Hey, guys,

Very cool to see so many of you doing so well.  I've been absent, only popping in here and there over the last couple years.  To be honest, a lot of things have fallen by the wayside (but in a good way).  Our son has been diagnosed on the autism spectrum and is still nonverbal at 3 years old.  He's a great kid, but we've doing therapies and doctors about 10 hours a week.  In addition, I took a new job 2 years ago and I've been working to get promoted (going to happen soon), so life has been crazy, crazy, crazy.  

But it occurred to me that this is important, too.  I recently was given the "all clear" for another year which makes 4 years NED.  For those who don't remember or are new, my rundown is: 

pT1a, 2.8cm, Fuhrman Grade 2, conventional clear cell RCC, robotic radical left neph on October 21, 2014, NED since. 

I've been fine, physically, since then.  But with our "heads down" in work both literally and figuratively, we lose sight of the important things.  And I find talking to people on this board important.  So I will endeavor to make more time for doing so. 

Again, glad to see so many of you are doing well. 

- Jason 

icemantoo's picture
icemantoo
Posts: 3208
Joined: Jan 2010

are you back, but I see you are helping me with the newbies as well.

 

 

 

icemantoo

lobbyist0724's picture
lobbyist0724
Posts: 383
Joined: Sep 2016

Nice to hear from you Jason and Congrats on the NED :)

Sounds like a lot has been going on with life, best wishes for you and your family. Hope we will hear from yu more often!

APny's picture
APny
Posts: 1933
Joined: Mar 2014

Great to see you, Jason. Glad you got an "all clear." Way to go! All the best to you and family. 

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

So happy for you NED status-continued good health-June

donna_lee's picture
donna_lee
Posts: 892
Joined: Feb 2009

As we all know.  But a NED is even better.  Glad job is going well and son's Dx is not easy.  Let's hope he'll be high functioning.  A friend's son (age 29) is a challenge but such a sweetheart.

Hang in there and welcome back.

donna_lee

stub1969's picture
stub1969
Posts: 790
Joined: Jul 2016

Good to hear from you and thanks for the update.  Life does get busy, but we've got to remember the gift cancer has given us...truely understanding how precious life AND time is.  I hope to hear more from you, Jason--take care!

Stub

LMCRJB13's picture
LMCRJB13
Posts: 82
Joined: Oct 2017

Thanks for checking-in...gives those of us who are early-on in this journey hope and optimism for the future.

Happy that you've remained NED and wish you continued good health!

Ryan

Steph85's picture
Steph85
Posts: 158
Joined: Feb 2018

Congrats on NED! Congrats on life.  Seems like you have a lot of great things going on. My 5 yr old is also on the spectrum so I understand all the appts with speech therapy, occupational therapy etc.. My son is pretty high functioning but his speech was a bit delayed to. My friend has a son who is 4 and is starting to say some words. Well, good luck with everything! Cheers to NED!

Stephanie 

Allochka's picture
Allochka
Posts: 861
Joined: Nov 2014

Hello Jason,

very glad to see you are doing fine health-wise.

About son's diagnosis  -  I've heard these special therapies work wonders, and wish he will be high functional. Timely diagnosis and therapies are keys to success.

Good luck,

Alla

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