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6 Year NED - Ultrasounds Only?

love_of_my_life
Posts: 77
Joined: Jul 2012

Just got back from the oncologist with my wife Holly who had her kidney removed (Stage 1, 2012) and another NED.  Thank God.

She only had an ultrasound this time and they said that this was SOP going forward.

Sound about right to others who have reached this milestone?

Thanks!

Tom

icemantoo's picture
icemantoo
Posts: 3211
Joined: Jan 2010

Tom,

 

 

Since year 5 I have only had US with a CT thrown in at year 10.

 

 

icemantoo

BoondockSaint's picture
BoondockSaint
Posts: 240
Joined: Mar 2017

Don’t know what is standard is. I’m sure it varies but........big congrats on the NED for you both!!

 

Bellafelice
Posts: 57
Joined: Sep 2008

We were also told that after 6 years cancer free, only a sonogram was necessary. Unfortunately we listened to that advice from our  former PCP. Year 7 mets were found on a CT that was ordered only because of a prostate infection that occurred. However, that CT showed RCC mets that had spread to my husbands spine. Our former PCP told us after 5 years there is a ZERO (and he help up his hand to show us a 0 figure) kidney cancer would re-occur. I would advise  least CTs every year or at least every other year. Just my two cents from our experience. Hope this helps.

Bay Area Guy's picture
Bay Area Guy
Posts: 385
Joined: Jun 2016

My doc said the same thing.  CT at 6 months, 12 months, then annually to year 5, then US after that.  I was told health insurance would not pay for CT’s after 5 years, but would pay for US.

love_of_my_life
Posts: 77
Joined: Jul 2012

Thanks for the advice.  I will discuss with Holly.  We need to see what insurance will cover.

AnnissaP's picture
AnnissaP
Posts: 623
Joined: Sep 2017

Congratulations!!!!!

stub1969's picture
stub1969
Posts: 792
Joined: Jul 2016

I'm happy for you, Tom--and Holly!  I'm hopeful this will continue for a long, long, long time.

Stub

randyradiohill's picture
randyradiohill
Posts: 64
Joined: Aug 2017

Awesome News!  Congratulations

lobbyist0724's picture
lobbyist0724
Posts: 383
Joined: Sep 2016

Congratulations, my doc said he doesn't want me to expose to too much radiation. So will only do CT on year 2 and year 5. Chest X-ray and Ultrasound in between.

Steph85's picture
Steph85
Posts: 158
Joined: Feb 2018

Congrats!

cboone75's picture
cboone75
Posts: 43
Joined: Feb 2012

I was "graduating" to ultra sound only as well until they found my mets after 6 years.  Now it's back to the CT's!

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