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First HAI pump chemo and he is jaundice

Ruthmomto4's picture
Ruthmomto4
Posts: 640
Joined: May 2013

his numbers for his liver are horrible, ast 444 alk 268 alt 218 Bilirubin 3.7  lactate dehydrogenase 333

so bad! This is chemo toxicity not cancer he is still NED obviously directly infusing his liver is not good for him, since this is mop up chemo he is telling them no more, and having them fill the pump with glycerin. Unless of course the numbers don’t come down, then he will need more steroids.

i am so upset because he was feeling so good and looked so good and I am having such flashbacks to last summer when the tumor blocked his bile duct and he spent most of the summer jaundice. I know this isn’t that but this scares me too, I worry we got the cancer out only to wreck his liver with chemo. The dr said it was higher than normal but it should come down, google has not been my friend. I also feel guilty because they have a limited amount of HAI pumps left and it is wasted on him. Someone could have certainly benefited from it more. 

Has anyone who received hepatic artery infusion chemo had their numbers go this high and come down? I can’t help but shake the fear he has unfixable liver damage. I am so tired of being worried all the time. Things were going so well. The plus is CEA is steady at 2.0. It’s a good indicator for him.

Annabelle41415's picture
Annabelle41415
Posts: 6304
Joined: Feb 2009

Oh my goodness, I'd have hoped that after all he has been through that this would have worked for him.  I'm not able to help you with this situation or answer any of your questions, but I'll be praying for you both.  You've already been through so much.  Please ask your doctor some specific questions on what their future plan is.

Kim

Ruthmomto4's picture
Ruthmomto4
Posts: 640
Joined: May 2013

sessions total of this chemo, but with a reaction this severe I think we both have decided the benefits are not worth permanent liver damage. Not when there are no tumors and all margins were clear, with 6 months of chemo before. It just seems the risks are too high. I am just hoping he starts to look and feel better soon and we get to make a choice. i am praying his liver starts to fix itself very quickly. 

Thank you Kim!!!

Butt's picture
Butt
Posts: 338
Joined: May 2018

I think we got resected around the same time. I am also on HAI now Plus systemic. His Numbers are high. I think steroids in pump can reduce them. I do blood work weekly. They are watching it. My doc said people usually can have only 3-4 treatments because there is a liver toxicity. Not sure why he increased so early. Keep us posted. Butt. PS. There are supplements that may assist in fixing. Liv 52, liver guard, NAC, forte essentialE.

Ruthmomto4's picture
Ruthmomto4
Posts: 640
Joined: May 2013

get resected and pump implanted at basically the same time. I knew his liver enzymes would go high but I wasn’t expecting his bilirubin to go up. the oncologist said they were higher than normal but wasn’t to nervous about it. She gave him a steroid in his pump yesterday, hoping it brings t down. In my searching I did see some people’s liver just can’t handle the direct infusion. This was his second resection, and he spent most of last year with high liver enzymes due to a tumor. I am not a dr but I think his liver is saying cut the crap already. 

Anyway I hope your numbers come down and you are doing well!

Ruthmomto4's picture
Ruthmomto4
Posts: 640
Joined: May 2013

a lot less jaundice, they want him to do a special mri called an mrcp to check for blockages from the chemo  but the only place that could fit him in was in nyc. He told them no, if he gets worse he will call them. I don’t blame him enough already.

Annabelle41415's picture
Annabelle41415
Posts: 6304
Joined: Feb 2009

You are such a good wife and I'm so glad that he looks better.  It's good to let him make the calls on what direction he wants to take and it seems like you are letting him take it.  Hope he starts to feel better and everything falls into place for him. 

Hugs!  Kim

Butt's picture
Butt
Posts: 338
Joined: May 2018

Where are you geographically? I have a good pump doc in FL.

Ruthmomto4's picture
Ruthmomto4
Posts: 640
Joined: May 2013

in Ct he goes to sloan Kettering in nyc

Twinzma
Posts: 220
Joined: Jan 2018

Who is your doctor in Florida????? I can't get my husband to go to NY, he's stubborn and refuses to miss time from work. Maybe if he can see someone close to home he'd go. His oncologist is great and he likes her, but is in the dark when it comes to the HAI pump with liver mets. 

 

Butt's picture
Butt
Posts: 338
Joined: May 2018

Mark Bloomston in Fort Myers. They stopped making the pumps and he doesn't have any left. He does liver resections and knows how to monitor the pumps.

Butt's picture
Butt
Posts: 338
Joined: May 2018

I was told if the pump deal is not working they can do Y90/spheres. Most people get the second option and not the pump originally according to an MD Anderson doc.

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