Complex Kidney Cyst

Scared1126
Scared1126 Member Posts: 4

Hi everyone,

I found out yesterday that the simple cyst on my right kidney is now complex.  I have had it for a few years. It did get bigger which is why the ultrasound tech recommended the CT Scan.  My doctor called and said I have to see a urologist because there is a 5 percent chance its cancer.  I know this seems like a small percent. She said the radiologist only recommended a 6 month followup. But I have high anxiety and I am imagining all these awful things.  I was wondering if this is similar to anyone else's story.  I don't know the size exactly but I knew it was rather large when it was considered a simple cyst and it's not currently effecting kidney function and my bloodwork is good.  I would appreciate any comments or support. Thank you in advance. 

Comments

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Get the CT and see a Urologist

    Scarred,

     

    We were all scarred in the begining,  Hopefully what you have is nothing, but lets find out now while it is close to 100% curable. That was me 16 years ago after a near certain diagnosis that it was Kidney Cancer. Let the Urologist give you his opinion on waiting 6 months, not the GP or Radiologist. Laets hope it is nothing, but if it is something deal with it and get it behind you.

     

    The fact that your bllodwork is good and your Kidney function is good does not mean everything is OK. While they may indicate a problem if bad they can still be OK if there is a problem.

     

    icemantoo

  • Scared1126
    Scared1126 Member Posts: 4
    icemantoo said:

    Get the CT and see a Urologist

    Scarred,

     

    We were all scarred in the begining,  Hopefully what you have is nothing, but lets find out now while it is close to 100% curable. That was me 16 years ago after a near certain diagnosis that it was Kidney Cancer. Let the Urologist give you his opinion on waiting 6 months, not the GP or Radiologist. Laets hope it is nothing, but if it is something deal with it and get it behind you.

     

    The fact that your bllodwork is good and your Kidney function is good does not mean everything is OK. While they may indicate a problem if bad they can still be OK if there is a problem.

     

    icemantoo

    Thank you so much for your

    Thank you so much for your response.  I will see the urologist next week.  Your words really helped.  Just trying to be ok until then.  The unknown is so scary.  

    I had the CT Scan done this week and results showed it was complex. I mean I don't even understand a 5 percent chance if its not biopsied. Confusing.

    I love your story and your picture you both look so happy.

    Hoping I can have a story to tell like you.   Any other info you can give me I would appreciate it.

     

    Jennifer

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    How big is the little bugger?

    Jennifer,

     

    How big is the little bugger?

     

     

     

    icemantoo

  • Scared1126
    Scared1126 Member Posts: 4
    Dont have exact measurements.

    Dont have exact measurements. I am going to contact dr but I feel like they said it was large. Not sure what that means?

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Large?

    Jennifer,

     

     

    Large and rescan in 6 months are not consistent. Complex cyst a 5% chance of Cancer are not consistent. Lets hope it is just a little buggar.     

    icemantoo

  • Abunai
    Abunai Member Posts: 173
    Second Opinion

    I agree with Iceman: see a urologist. Better yet see a urologic oncologist. Your Primary care doc should be more than willing to provide a referal if you need it.

  • lobbyist0724
    lobbyist0724 Member Posts: 484 Member
    edited May 2018 #8
    Glad you found our site. I

    Glad you found our site. I also have a cystic tumour and is Bosniak 3. I am from Canada and there's a medical paper at this link below. You might want to skim it through. Did they categorize your cyst into the Bosniak scale after the CT scan. From the fact that your cyst is just "becoming" more complex and doctor is say there is a 5 percent chance that it is cancerous. I think it might fall into the "Bosniak 2F" (F stands for follow up), but please confirm with your doctor. So please look it up from the guideline for more info. (It's important to remember that what you have is not a solid mass but a cystic mass, so hence the Bosniak rating system that guides what should be done.) Also, the true cystic lesions (excluding those pseudocyst from necrosis and etc.) are more indolent in general, so please don't worry too much but make sure you find a doctor that you can trust as others suggested.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5365391/

  • Scared1126
    Scared1126 Member Posts: 4
    edited May 2018 #9
    You are all amazing

    Wow!  Thank you for the amazing resources. I agree I feel confused by large and 5 percent chance. I just know it scared the hell out of me.  I go tomorrow for an MRI, so now I will have had the ultrasound, CT Scan and the MRI.  Going to take advice to find a urologic oncologist.  I am so happy I came here because the information from people who have been through this feeling of unknown. I dont think my GP really knows about it so she basically red me the CT scan report.  I am going to be as proactive as I can.  

    Thank you and I will keep you posted,

    Jen

  • Svenska1
    Svenska1 Member Posts: 3
    1 week post kidney removal

    Over did it yesterday and this morning I am thinking that some sort of belly wrap to stabilize my tummy (could use a tummy tuck ! LOL) is in order.  Gravity is fighting me and wondered if any one out there has used any type of support band after surgery, and if so, what brand?  

    Thanks for your responses.

  • icemantoo
    icemantoo Member Posts: 3,359 Member
    Svenska1 said:

    1 week post kidney removal

    Over did it yesterday and this morning I am thinking that some sort of belly wrap to stabilize my tummy (could use a tummy tuck ! LOL) is in order.  Gravity is fighting me and wondered if any one out there has used any type of support band after surgery, and if so, what brand?  

    Thanks for your responses.

    Welcome

    Svensa,

     

    Welcome to our club. I see you enjoyed the initistion. For your tummy tuck question, please start a new forum Post.

     

    icemantoo

  • hardo718
    hardo718 Member Posts: 853
    Welcome Scared

    Sorry you find yourself here.  Do you have a copy of the report, or can you get one?  Most facilities these days have an on-line system that you can look at the report directly.  Then you will see the measurements of this little beast.  Mine was a complex cyst and relatively small (about 3cm roughly).  When I got my first opinion, he looked at it and said it's 80-90% cancer.  I followed up with a 2nd opinion and they agreed it needed to come out.  Sure enough, it was cancer, but I was lucky, stage 1.  That was 5-1/2 years ago.  Still cancer free I'm happy to report. 

    Waste no time getting your hands on the report and finding yourself a urologic-oncologist.  You need to be proactive and be your best advocate.

    Best wishes, keep us posted.

    Donna~

  • Svenska1
    Svenska1 Member Posts: 3
    icemantoo said:

    Welcome

    Svensa,

     

    Welcome to our club. I see you enjoyed the initistion. For your tummy tuck question, please start a new forum Post.

     

    icemantoo

    Posting

    Thank you, I will.  Rookie mistake.