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Stage 4 Prostrate cancer metasised to the bones

Shals
Posts: 1
Joined: May 2018

Has anyone been able to survive Prostrate Stage 4 metasised to the bones or put the disease in remission or is it just treatment after treatment?

RobLee's picture
RobLee
Posts: 259
Joined: Feb 2017

Since no one has replied I'll tell you what I can.  Stage 4 mets is typically end stage. It is essentially incurable but is treatable. Some men have live a decade on hormone therapy and other treatments. New treatments are being developed all the time, but yes, they are expensive. Unfortunately at present you will likely never see remission, but life can be extended. Eventully the side effects of treatment may become more uncomfortable than the disease itself. Hope that helps.

Steelhead Fisherman
Posts: 3
Joined: Feb 2018

Hi RobLee,

 

Your coments were well said, thank you!  I have Stage 4 with Bone Met.  Have went through Chemo and am on Eligard (Lupron) and am on Zytiga.  Have a lot to live for and am doing all that I can to move forward.  Definitely have side effects from all, but so far so good.  Was originally diagnosed in Jan 2017.  Last PSA test I was down to 33 and am hoing my Onco Exam in June (2018) shows an improvement.  Yes, end stage which causes me a lot of sleep lose thinking about all, but am forging ahead.  Praying that some researcher has an answer soon.

Chuckect's picture
Chuckect
Posts: 45
Joined: Jan 2018

i fished for steelhead in wash, and or,, pretty exciting

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3308
Joined: May 2012

Shals,

I have had two friends die of PCa in the last seven years, the most recent was about 5 years ago.  Both received essentially every therapy then available, which is not a lot different from what exists today.  The second friend I assisted a lot, and was authorized to speak to his nurses offically, since he was not very clear-headed later on, and his relatives all lived out of state.  Between learning from his nurses, and then later getting PCa myself (Stage II), I have become fairly current, or try to be.

My "read" of your situation, not knowing a lot about it, is that both Rob and Vasco are correct.  Bone metastasis is the most common first site for PCa tumors to show in (after they have departed the gland itself), with a variety of other organs roughly tied thereafter, such as the lungs or liver. But anywhere is possible.

Both of my friends survived a remarkably similiar amount after time after first diagnosis with PCa: 13 years.  Both had surgery, IMRT, HT, and chemo. Only the more recent guy received Jevtana and Zytiga, as they were apparantly not available to the man who passed in around 2010 or 2011.

What seems most critical among the cases described here is timing of the HT.  HT application and withdrawal is part science, part art.  Vasco is by far the most expert in describing this of anyone I've ever heard discuss proper HT strategy.

While imaging for PCa tumors is not the best, what does seem to accurately show widespread involvement is PSA.  One friend (Gary) had been tracking PSA rise for a few years, and then I recall one day it had hit 66.  This was controlled with pallative use of chemo (which is usually Taxotere with Prednisone), and after that stopped being effective, then Jevtana and Zytiga.  Near the end, his PSA was over 1,000, with bone deformities.  I have heard of men limiting bone pain via spot radiation, but Gary never chose this.  I got an-email from the other friend, Ed, who said that "bone pain was too severe for the morphine to touch," and that her had ordered an end to chemo. He died two days later, but my point is that his metastasis also, as far as his doctors knew, was to the bone.

More than anything, a man on HT needs a world-class expert in medical oncology. Urological oncologists are usually NOT this.  Even among medical oncologists, some are highly conversant in PCa, others less so. You need a doctor who specializes in advanced PCa itslef.

As to time, no man can say, but I have read accounts of men here living a long, long time on HT, and doing well.

max

Chuckect's picture
Chuckect
Posts: 45
Joined: Jan 2018

welcome brother,, i was dxd with stage 4 metastatic in jan, 2017.. felt the effects in july 2016..  took the dumb******** that lo0ng to find out whats wrong eith me.. so i'm 2 years into it.. and i find that between the zytiga, prednisone, xgiva, lupron, hydrocodone, zoloft5, bourbon, pot some days are greater than others,,  love ya,, good luck

 

VascodaGama's picture
VascodaGama
Posts: 3030
Joined: Nov 2010

In my opinion the stage 4 groups the cases with far metastases but not all of them can be judged at the "End Stage". Bone metastases can be treated and has been eliminated in several patients. I thing that the end stage Rob is commenting about is the one that includes metastases at other organs, in particular at the lungs or liver. This is when the bandit real causes trouble because it interferes with the functioning of these vital components of our living. In fact, bone metastases can be subdivided into grades of advancement depending on the extent and the location of affected bone. We have read reports of survivors that managed to control or even eliminate cancer in bone.

I am sorry to say that; you guys at stage 4 are not yet relieved of your life duties. It all depends on how much you accept treatments side effects over quality living.

Best wishes to you all.

VGama

foamhand
Posts: 79
Joined: May 2016

I was diagnosed in May 2016 and referred to a clinical trial. I have several bone mets but not very big and painless most all the time. My Dr. said most of my aches / pains are more from the HT drugs and getting older. I am currently able to handle any pain with OTC meds. I was on Effexor for hot flashes and am trying to get off of it now. It is by far the most troublesome med issue I have now. I am in pretty good health otherwise and still work. The fatigue is an issue but I take 10mg Adderall XR daily which helps alot. No addiction issues so far (it's an amphetamine) but i want to keep it at a low dose so I don't even mention increasing the dose to My Dr. He probably wouldn't agree anyway. 

Mentally, I try to keep my attitude as "Ok, I have Pca, so what. Keep pushing thru and live life"

This is just my experience. Hope it helps.

foamhand

 

RobLee's picture
RobLee
Posts: 259
Joined: Feb 2017

Hey foamy, I'm curious what is the issue with Effexor? You mentioned it is "most troublesome". I realize that SNRI discontinuation is a slow, difficult process. I've even heard it is worse than narcotic withdrawal. Is the "trouble" you mentioned just getting off of it?

I've been on Effexor for a year now and upped my dose to 150mg in early January. I have to say that life on Effexor is better than life was without it (though I had never taken any sort of antidepressant or tranquilizer before a year ago).

I mentioned to my wife that I may be on it for the rest of my life. The HT should be ending by the end of this year, and will take a while to wear off, but the moodiness I had been going thru since my cancer battle started about four years ago was really tearing me up. The Effexor has made me a much happier man and a nicer person to be around. 

I understand why you would want to get off any meds you don't need anymore, but was wondering if you had a problem in particular with the Effexor.

Chuckect's picture
Chuckect
Posts: 45
Joined: Jan 2018

holy ****,, my PSA went to 74,, was 22.4 last month,, hope it wasn't because i drank that bottle of woodford reserve , because it was derby week here in louisville

lorijeannj
Posts: 49
Joined: May 2011

The bottle of Woodford was Justify'd.

Old Salt
Posts: 720
Joined: Aug 2014

Will we have a Triple Crown winner this year? Send your bets my way please...

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