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What in the HELL!!!

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

No procedure today they found another tumor. Waiting to hear from surgeon. Sounds like I will be headed down to Seattle soon for a major procedure.

How in the hell can something grow that fast. I can't even breathe right now.

The hits keep coming...

Cin

Babygirl05's picture
Babygirl05
Posts: 42
Joined: Oct 2017

I'm so sorry to hear that.  Lean on your friends and family for support and they will help you get through this. 

Canadian Sandy's picture
Canadian Sandy
Posts: 479
Joined: Jul 2016

Sorry to hear this. Nothing surprises me when it comes to cancer. 

donna_lee's picture
donna_lee
Posts: 884
Joined: Feb 2009

A local RCC survivor went in for an unknown swelling and they found a growth on her left kidney the size of an orange.  By the time surgery was done 3 weeks later it had increased to a 13# watermellon.  She is still alive over 15 years later.

Hope to hear you are as successful.  And good luck and Hugs.

donna_lee

Bryn1108's picture
Bryn1108
Posts: 77
Joined: Jul 2017

Please know my husband and I are praying hard for you.  BIG HUGS 

sandy23
Posts: 137
Joined: Jan 2017

What?  How can that even be?  I assume it was also in your kidney, or was it found someplace else?  Do they think it could just be a cyst?

Steph85's picture
Steph85
Posts: 157
Joined: Feb 2018

I'm so so sorry! I can't believe how fast this all happened! If I could, I would give you a hug! Keep us posted. I don't pray, but I'm sending positive thoughts your way! 

Take care, 

Stephanie

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

I have no idea how or why. I now have a tumor on my upper pole and lower pole both very small and encapsulated. Dr today said he has never seen a tumor pop up like that in a month.

I'm very scared.

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

Sorry to hear-sending good wishes your way.  

APny's picture
APny
Posts: 1904
Joined: Mar 2014

I'm so sorry, Cinnamon. I'm hoping it's a cyst and that's why it grew fast. How did they find this?

Tapman63's picture
Tapman63
Posts: 134
Joined: Dec 2017

...a big thing to take away is that they are both very small.  Get that kidney out as soon as you can get surgery scheduled and stop any spread from happening.  The group is here for you whenever you need...I know it's hard under these circumstances, but stay positive!!

Best wishes,

Jim

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

I'm not gonna have the kidney out. It's the only one  I have left Jim.

They found it with CT before procedure

AnnissaP's picture
AnnissaP
Posts: 617
Joined: Sep 2017

Hi. I am so very sorry to hear this. Maybe it was missed? Mine was for 3 scans until last August. Either way....hang in there. They will take care of you no doubt!!! We are all with you friend.

Brock1969
Posts: 80
Joined: Jan 2018

THoughts and prayers from large groups is scientifically known to work wonders though. :) Be strong and as positive as you can be. 

foxhd's picture
foxhd
Posts: 3183
Joined: Oct 2011

You will now be more closely looked at with little time lost before surgery. 2nd tumor was probably better enhanced not  new. They also didn't opt for radical neph so it still looks good.

Glidergal365's picture
Glidergal365
Posts: 93
Joined: Feb 2018

Hang in there! I can only imagine all the things running through your mind right now. I hope you have some good folks to surround you in person right now <3 Sending peaceful thoughts to you

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Surgeon called he is ordering a different kind of scan so he can get a better look at kidney looking like a partial nephrectomy for sure depending on what the scan shows. Top tumor is 1.4 cm bottom is 1.6 cm.

I asked to be referred to seattle and he said I would have to go to Swedish because Univ if Wash doesn't take kaiser which is my insurance.

His office is going to call me tomorrow with an appt.

stub1969's picture
stub1969
Posts: 769
Joined: Jul 2016

Not only do we "get" to struggle with the emotional demons of RCC, we also have to work (and sometimes battle) with insurance companies.  You've had a rough turn of events, Cinn.  Sounds like you will be working with some very qualified RCC people.  Try to trust them.  One question...Do you remember the grade of your original tumor?

Take care,

Stub

Cinnamongirl's picture
Cinnamongirl
Posts: 199
Joined: Jan 2018

Yes my original tumor was a stage T2b grade 3.

However every Dr and radiologist so far have said these are primary tumors not metastases. And that my lymph nodes all look grear

 

stub1969's picture
stub1969
Posts: 769
Joined: Jul 2016

With your age and primary tumors in both kidneys I'd really push for genetic testing.  It may reveal something that will help in the long run.  Depending on where they are located on the top and bottom of your kidney you may be able to have partials with limited loss of kidney.  I'm sure that option will come up.

Good luck, Cinnamon.

Stub

ImNotDeadYet's picture
ImNotDeadYet
Posts: 239
Joined: Apr 2017

So sorry, Cin. Hopefully they caught it in time, and this will end up being a momentary setback. 

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