HPV+ Cancer Survival Rate

DShaw
DShaw Member Posts: 11
in Head and Neck Cancer #1

I’ve heard that HPV+ H&N cancer has a 92% cure rate. What are the statistics for 5 year survival and beyond?

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Comments

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #2
    I was HPV+ and it sucked.

    DShaw,

    If it is 92% cure rate and 5 years (post) is considered the must meet (cured) timeline and beyond is till you are called home, I guess it is 92%.

    Who comes up with this stuff?  I have yet to “cop a good buzz” from statistics.  I can understand the necessity of statistics; I just find them less effective to cancer treatment than radiation.

    Matt

     

  • MarineE5
    MarineE5 Member Posts: 1,030 Member
    edited February 2018 #3
    The number - 1

    I found that the most important number of all was the number 1 (Me/You) taking all efforts to beat this beast. I did the old Dr. Google when I found out about my cancer and ended up with sleepless nights until I focused on doing everything to beat this beast. I recently passed my 13 year mark of ending treatments for Base of Tongue cancer.

    My Best to You and Everyone Here

  • Peneloppe
    Peneloppe Member Posts: 28
    #4
    Hi,  take 2 people with the

    Hi,  take 2 people with the same cancer and they will have different results because so many factors influence the outcome.

    The stage of the cancer, your general health, your age, how well you react to the treatment, etc.  All these numbers are based on previous studies and things change on a daily basis, new drugs, better tests, etc,  I mean a type of cancer could have a 30% survival rate today and tomorrow change because of treatment innovation.

    92% is a high success rate and if you read those statistics, you probably saw written somewhere that if you make it to 5 years your chances of recurrence diminish.  Best of luck

  • OKCnative
    OKCnative Member Posts: 326 Member
    #5
    The stats have their place,

    The stats have their place, but I don't think people should get caught up over a 3-15% difference plus or minus. Stats can literally change weekly and depend on several factors. The thing to know about head and neck cancer is that "HPV" is "good" in terms of curability and "survivability." So good in fact that you have a very high likelihood of coming out on the other side with the entirety of your life to look forward to. Take HPV out of the equation and I've seen stats that tend to hover between only 43-55%. I'll take the 90's and beyond any day.

    I know when I started treatment the radiologist said the center I was at had a "cure rate" of 90%.

  • Curlyn
    Curlyn Member Posts: 189
    #6
    There are 2018 survival

    There are new AJCC 2018 survival stastics based on stage, I believe. But as others have said, it also depends on other factors, too. I know someone whose mother was told that she had a few months, inoperable cancer. That was 12 yr ago. She goes to the gym. I recently read an article stating that those who jump quickly back into life do better than those who don't. If I can find it, I will post it. Be careful where you get your stats, how old the study group is.

  • swopoe
    swopoe Member Posts: 492
    #7
    My husband had HPV- cancer

    My husband had HPV- cancer and he was still given stats over 90%. 

     

    Everyone is different though. If you are doing well, that is all that matters.

  • AnotherSurvivor
    AnotherSurvivor Member Posts: 383 Member
    #8
    I think there is an element

    I think there is an element of 97% of statistics are made up on the spot at work.  I was quoted 95% at start of treatment, 98% after but before first post PET.  Last month I saw my ENT for first year post exam, was completely clear, but back down to 95%.  I would be depressed, but my kid the ER doc and I fought a year long battle of Stalingrad proportions over his 8th grade Algebra homework, so suspect numeracy may not be a pre-condition for med school.

  • AnotherSurvivor
    AnotherSurvivor Member Posts: 383 Member
    #9
    As a long time researcher and

    As a long time researcher and practitioner in what is now known as 'Data Analytics', I can assure you that the probability of adequate funding for rigorous collection of underlying data (i.e. Design of Experiment) is in a range between slim and none.  That inadequacy does not preclude the quoting of results anyway.  There is a mini industry of books by Statistics profs making fun of the errors they find in other people's (principally Economists) research. 

    If there is accurate data it tends to measure very specific granular differences between things like Cisplaten and Carbol-taxol.  That's where you tend to find good method in measurement.  They can tell how much difference there is in results between 6 and 7 Carbol-taxol treatments.  Five year survival rates have a lot of exogenous variables (not least of which is keeping track of a homogeous group of treatment subjects for five years in a highly mobile population).  And, given the change in treatment modalities over five years given changes in technology, what is the value of those results.

    But, yeah, knowing my odds would also be sort of cool.

  • hlrowe
    hlrowe Member Posts: 80
    #10
    Survival rate

    My rad onc simply told me when I first saw him, "If I didn't think I could cure you I wouldn't treat you". He was not so bold as to give me misleading statistics. And, I didn't ask. I finished treatment June of 2012. 

    I have read that if you make it to the 5 year mark your reoccurrence rate has the same probability as the standard population.

     

  • Mavish
    Mavish Member Posts: 84 Member
    edited February 2018 #11
    Numbers varies between studies

    I have just asked the same question to my radiation oncologist. He said it iqs very unlikely that this cancer kills me.I had HPV +right tonsil SSC with two neck lymph nodes. My treatment was completed 20 mo ago. At the time of diagnosis I was giving the 5 years survival rates pf 85% and 90% fpr  by two different oncologist. Now, I am living my life as if it will never come back. I know that there is a small risk, I will worry about it, if it happens. Thing we shoul remember is that this is a curable cancer. 

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #12
    Nine Years Out..

    And I'm not a statistic.., I'm abby-normal maybe though.., LOL.., OK, I am abby-normal..

    Anyways, statistics.., uggg..

    Everyone brings so much to that table.., age, general health going in, genetics, location, career exposure.. Add into that that HPV derived cancer still doesn't have the history as tradional H&N Cancer..

    Worry about the now, deal with the what-ifs as they come..

    Unfortuantely there aren't any guarantees.. life can end at anytime entirely no fault of yours, and completely out of your control, non-health related..

  • corleone
    corleone Member Posts: 312 Member
    edited February 2018 #13
    Skiffin16 said:

    Nine Years Out..

    And I'm not a statistic.., I'm abby-normal maybe though.., LOL.., OK, I am abby-normal..

    Anyways, statistics.., uggg..

    Everyone brings so much to that table.., age, general health going in, genetics, location, career exposure.. Add into that that HPV derived cancer still doesn't have the history as tradional H&N Cancer..

    Worry about the now, deal with the what-ifs as they come..

    Unfortuantely there aren't any guarantees.. life can end at anytime entirely no fault of yours, and completely out of your control, non-health related..

    Welcome back, Skiffin!

    Haven't seen you (..r posts) in a while. Hope you are doing OK.

  • Strawberry54
    Strawberry54 Member Posts: 4
    edited March 2018 #14
    MarineE5 said:

    The number - 1

    I found that the most important number of all was the number 1 (Me/You) taking all efforts to beat this beast. I did the old Dr. Google when I found out about my cancer and ended up with sleepless nights until I focused on doing everything to beat this beast. I recently passed my 13 year mark of ending treatments for Base of Tongue cancer.

    My Best to You and Everyone Here

    Today, you are my hero!  I

    Today, you are my hero!  I was diagnosed today...details and formal plan of attack after biopsy report and petscan.  I will win and seeing you 13 years out makes this 63-year old woman ready to work to win!

  • possumtrot
    possumtrot Member Posts: 9 Member
    #15
    STATISTICS

    Let's face it. For each of us, it's either 0 or 100%.

  • aak16
    aak16 Member Posts: 24
    edited March 2018 #16
    Oh, Stats

    My HPV- cancer came back in less than 6 months and now I need a partial laryngectomy (possibly a total if they get in there and decide a partial won't get all of it). Stats on laryngectomies are about 50% survivial rate, and at 30 years old, I REFUSE to believe those are my odds. There's no way I can even fathom dying with over half of my life left.

  • cardoza33
    cardoza33 Member Posts: 81
    #17
    aak16 said:

    Oh, Stats

    My HPV- cancer came back in less than 6 months and now I need a partial laryngectomy (possibly a total if they get in there and decide a partial won't get all of it). Stats on laryngectomies are about 50% survivial rate, and at 30 years old, I REFUSE to believe those are my odds. There's no way I can even fathom dying with over half of my life left.

    You wont. you will kick its *

    You wont. you will kick its ****! Good luck.

     

  • Darkdancer333
    Darkdancer333 Member Posts: 115 Member
    #18
    aak16 said:

    Oh, Stats

    My HPV- cancer came back in less than 6 months and now I need a partial laryngectomy (possibly a total if they get in there and decide a partial won't get all of it). Stats on laryngectomies are about 50% survivial rate, and at 30 years old, I REFUSE to believe those are my odds. There's no way I can even fathom dying with over half of my life left.

    as they saying goes the

    as they saying goes the strong of mind survive and you fit  the bill

    Positive attitude will go a long way... I would say you have only lived 1/3 of your life....your far from an old geezer like myself:)

  • mehblues
    mehblues Member Posts: 3
    #19
    surival

    Good day for me I thought I was clean then after 18 months the beast came back same area and again same treatment anyone know anyone whos been throguth this twice?  Just completed my 2nd round of teh treatmetn radiation & chemo. All the kings horses and al the kings men who put me back together are optomistic "we got it this time"  just tired of it all...won't knnow if I'm clean unitl sometime in may when I go for the tell all pet-scan. 

  • mehblues
    mehblues Member Posts: 3
    #20
    you know "they say 40% of

    you know "they say 40% of satistics are made up on the spot.  (just a little humor) Stats and me never got along always one to defy the stats but I tell ya this one has thrown me for a loop.  Stats or not it doesn't get eaiser the 2nd time around.

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #21
    100% on your team for success.

    mehblues,

    Yes, there are a number of H&N members to go through treatments again after a reoccurrence.

    Good luck.

    Matt

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