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Sleepless in Seat... Michigan

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Here I am, at 2am, reading about nine reasons sleep is a priority. Ugh!

 

https://health.clevelandclinic.org/2016/09/9-reasons-why-you-need-to-make-sleep-a-higher-priority/

Canadian Sandy's picture
Canadian Sandy
Posts: 518
Joined: Jul 2016

lol.....I’m with ya Phil. I also have A hard time getting to sleep. When I finally do I sleep for hours.

airborne72's picture
airborne72
Posts: 276
Joined: Sep 2012

Phil:

I awoke at 2:01 and read your post.  It is now three hours later and I have yet to fall back to sleep.  Too late anyway because a new day is awaiting with opportunity.  If and when i get sleepy later today then I will take a nap.

My sleep cycle disruption is primarily due to my ileostomy.  Every night I am up once to empty my bag, tonight I had to do so twice.

It is dilemma.  I need to gain weight and strength to improve my stamina.  That requires food.  When I eat my ostomy output increases and remains active almost constantly, which disrupts my sleep cycle and undermines my strength.

Currently, my daytime naps are of longer duration than my night time sleeping.  Maybe I should just do a lifestyle flip-flop and become a nocturnal creature?

May we all find peace in our afflictions.

Jim (sleepless in Tennessee)

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

My average sleep per night the past week was 8.5 hours which is better than when I was on chemo. I figure that the chemo made me sleep less, and then later on made me sleep more. I think that the best approach is to try to finish eating as early as possible. I am not having a lot of success with that as I have been working late for the past two weeks. Part of the reason for that is I have more monitors in the office. I have big monitors at home but they are in my cold office so I work at the dining room table at home on a laptop and I'm less productive in this mode.

I'm fortunate in that I can usually fall back to sleep relatively quickly after emptying the bag and there are lots of times when I like to sleep late but have to get up for work.

The only other thing that I can recommend is to sleep when it's dark. It's too easy to stay awake when it's dark due to artificial light but it might help.

You do have a reversal coming up soon, right?

Trubrit's picture
Trubrit
Posts: 4885
Joined: Jan 2013

Well, I can check several of those on the list. 

I know my body needs sleep, and this past month has been allot better, and I can tell.  Just as soon as our new, little home arrives on the lot, and we are no longer living with our children, I am getting my own room (love my hubby, but his sleep noises combined with mine....) and the hopes of better nights sleep ahead. 

Soothing music helps me, but when I am paritcularly stressed, nothing helps and it is truily awful to toss and turn (I refiuse to get up for the most part) and then feel drained the rest of the day. 

Sleep tight, Phil. Its good to see you here. Same to you, Jim and Sandy. 

Tru

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

i swear is the secret to a good marriage! My hubby not only after a sleep study was told his snoring was the highest decibel ever recorded (no shock to me) he has now added jumping in his sleep. We have not slept in the same room in years! Still love him but it’s for both of our safety and sanity! Lol 

JanJan63's picture
JanJan63
Posts: 2482
Joined: Sep 2014

My husband and I also don't sleep in the same room. He likes the room warm and his bed soft, I'm the opposite. He snores so loudly I can't sleep and he's now using a Cpap machine for it. He's restless and doesn'r care if his sheets are wrinkled. I like mine tight and I sleep in the same position for hours. Before he retired he was a train engineer and worked crazy hours. I always worked regular daytime hours and one of us would be getting ready to go to work while the other was trying to sleep. So we haven't slept together for years. The dogs sleep with me and the cat sleeps with him. He still calls out in his sleep even with the CPap machine. His snoring used to drive me insane. He has sleep apnea and he'd snore louder and louder and then do a big snort and then not breathe for what seemed like a long time, then he'd start it all over again.

I feel horrible for people who don't sleep well. I generally do and I'm so grateful. I was on sleeping pills for months and then my doctor told me about two weeks ago that I should get myself off of them or they'll start to become ineffective. I cut back to half a pill for a few days and then just stopped them. I still sleep really well other than getting up several times to go to the bathroom and once to empty my ostomy bag.

Jan

Trubrit's picture
Trubrit
Posts: 4885
Joined: Jan 2013

Yes, my husband also has a CPAP, which, when dislodged, blows wildy and sounds like a train. Then, when he chooses not to wear it, he snores and still sounds like a train.  He also has restless leg syndrome, and the bed is bouncing for all the wrong reasons. 

Top that with the fact that radiation killed our sex life, so I see no reason to sleep in the same bed.  

We still love each other like crazy, and it certainly won't affect our marriage. 

I can't wait for our house to arrive and my own little bedroom. 

Tru

BRHMichigan's picture
BRHMichigan
Posts: 368
Joined: Jul 2017

Sure wish there was a cure for this. Lately I'm taking Norco 10-325 and Melatonin. Calms me pretty quickly but then I am wide awake 4 hours later. I also find myself napping through the day but I should be working. So frustrating. My anxiety gets pretty high at night, but seems to be slowly improving. 

You guys all make me chuckle with the separate bedroom comments. We don't currently have a spare room but I totally understand. And I love to stretch out!

airborne72's picture
airborne72
Posts: 276
Joined: Sep 2012

Sleeping in separate beds or separate rooms is more common for older couples than many realize.  And, as everyone has explained, it's for better sleep.  There was a time for the honeymoon and there is now a time for sleep.

One of the "take away's" that I learned in Ranger School was that sleep is much more important than food.  On those ocassions when I had to choose, I selected sleep.  We can last almost 30 days without food, but only a much shorter time without sleep.

I recall one set of my grandparents sleeping in separate rooms and as a child I wondered why.  Now I know!

Jim

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

My wife sleeps in a separate room. I was always worried that she would do something to the bag causing leakage at night and she sleeps better alone. She needs her rest to help take care of me and to get her stuff done.

Tunadog's picture
Tunadog
Posts: 233
Joined: Mar 2017

I’m 63 and have been with my wife for almost 40 years. She’s the love of my life.

She snores, but if I softly touch her arm she will stop and she is snoring less.

As for sex, I had problems after surgery but I have resolved it.

We have a spare bedroom but our bedroom is a large suite and no moving out of it.

I don’t think I could sleep well without my wife next to me.

Ruthmomto4's picture
Ruthmomto4
Posts: 638
Joined: May 2013

I am 47 but we have been married for 29 years this may, together 32. I wasn't touching him softly when he snored and I almost pushed him  off the bed when the jumping started lol I can't sleep alone though so I take my dog up with me.  we make it work ;)

plsletitrain
Posts: 253
Joined: Jul 2017

Add me to the club.  I was alright even after surgery and months after it but these past months my output has been plenty so I have to get up early to empty it.  I wanted to just ignore it because I'm really having a hard time getting back to sleep but I'm afraid it might leak if I don't empty it.  There was one time I was too sleepy to get up I just told myself (and the bag) blah leak if you want I'll deal with you later!  I'm usually the first one to awake and never get back to sleep again.  I compensate this by sleeping early.  

I totally understand the importance of sleep.  If I don't have enough sleep, I get all sorts of headache, forgetfulness, impatience, irritability, etc.  It really affects my performance during the day.  And I can't sleep during daytime.  Sigh.  I wish I was a good sleeper too.

Annabelle41415's picture
Annabelle41415
Posts: 6239
Joined: Feb 2009

Being a mother I've always had a light sense when it came to sleeping.  I'd wake at every movement from one of my kids.  When diagnosed it was hard on me as I'd lay awake thinking and thinking and not getting any sleep and any snoring from my husband would definitely wake me.  Then after my surgery (which was 6 weeks recovery), then treatment and illeostomy and just not being comfortable he ended up sleeping in the spare room.  He has been there ever since.  He snores so bad that I'm not able to even lay with him for 1/2 the night.  Now it's a matter of getting sleep and he finds that he sleeps better without me too.  I'm up sometimes 5-7 times a night after my illeostomy reversal 8 years ago so he'd never get any sleep.  My sleep is so disrupted every night I'm not sure I'm able to get a full 5 hours as I'm waking constantly to go the bathroom or to clean up from an accident.  It's always a horrible night for me.  My days aren't much better, but I'm here 9 years later and I'm living life as best I'm able and loving every minute even though it's not always convenient.  Wishing you the best.  Also, I'm on ambien which I'll take a half pill before going to bed and wake up in the middle of the night and take the other half.  If it wasn't for that I'd never be able to sleep.  Sleep tight and sweet dreams Smile

Kim

Mickeyclaude's picture
Mickeyclaude
Posts: 21
Joined: Dec 2017

hi all. Ever since pain and needing the bathroom woke me up every night, I am kind of prone to waking and staying up for hours on end. Because my mind does start racing, and I feel so greedy about precious time, I do not want to sleep through it. I realized recently I do not have much time alone to process what I have been through because my children are preschool aged...so I think my minds seizes the opportunity whenever it can

Phil64's picture
Phil64
Posts: 835
Joined: Apr 2012

Sending up prayers for all of us with racing minds and insomni. May peace prevail. And may stress fade away. And wrapped in a quilt of Love may we all find warmth and rest. 

((hugs))

Mikenh's picture
Mikenh
Posts: 777
Joined: Oct 2017

The waking is a real pain if you can't quickly get back to sleep. I try to schedule the two wakeups at the same time every night so that my body gets used to it along with falling back to sleep again. When I can't fall asleep? I have a bar stool in the bathroom and use it with the laptop. Time is precious, especially with young ones. As you'll never get that time back.

Joan M's picture
Joan M
Posts: 383
Joined: Oct 2016

Crazy how so many on here have had sleep problems lately. Maybe it's due to that lunar eclipse the other day?  

Tonight I will blame on my teenager getting home way past curfew!  

He finally got home and to bed, so now I can do try to catch some sleep.

Goodnight everyone! Sleep well......

 

SandiaBuddy's picture
SandiaBuddy
Posts: 907
Joined: Apr 2017

Melationin can help with sleep and is also linked to making chemo more effective and reducing the risk of recurrence.  It gets me to sleep fine, and I usually get up once or twice over the night, but compared to what people are saying on this post, I am doing well.

http://www.impactjournals.com/oncotarget/index.php?journal=oncotarget&page=article&op=view&path[]=16379&pubmed-linkout=1
https://www.ncbi.nlm.nih.gov/pubmed/22271210
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3848957/https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3198018/

http://journals.sagepub.com/doi/pdf/10.1177/1534735408322846

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