CSN Login
Members Online: 4

You are here

Great news!

CSN is getting an upgrade. All of your posts will still be here, but the website will have a new look, new features and be mobile-friendly. To prepare for the changes, the site will be down briefly at the end November. We’ll continue to provide updates as we get closer.    

Is anyone able to work during chemotherapy

abita's picture
abita
Posts: 1074
Joined: Dec 2017

I am just wondering if anyone works during chemotherapy. Granted, I am still recovering from my first surgery, but I am only two infusions in, and even just taking a shower exhausts me.

Trubrit's picture
Trubrit
Posts: 5532
Joined: Jan 2013

My dentist called my Oncologist who said NO kind of treatment, not even cleaning. 

Tru

abita's picture
abita
Posts: 1074
Joined: Dec 2017

I figured. Thanks for the info. I am now realizing the root canal you had wasn't during chemo.

darcher's picture
darcher
Posts: 305
Joined: Jun 2017

   I could have sworn my dentist appointment was Thursday next week.  Turned out it was Tuesday this week.  Same for the chemo. I thought it was 3weeks on and one off with near 5000mg dosage on Jan16. It's  3500 mg and 2 weeks on and one off starting Jan 2. A few other things happened along the same lines so now I'm worried. Chemo brain?  I hope so in a twisted sort of way and that it's temporary.

Anyhow, if chemo is scheduled for anytime soon check with the oncologist first.  Also, make sure the dentist is aware of your condition.  I ended up having to get a permission slip signed. That was due to how bad my teeth are.  Multiple root canals, fillings, crowns, etc is what's on the menu.   This is going to take about 5 visits over the next couple weeks on alternating days and may overlap the start of chemo on January 2.  I'll bite the bullet and just do it so long as I'm physically up to it.       

 

Mikenh's picture
Mikenh
Posts: 779
Joined: Oct 2017

Yesterday I put the Xeloda Times in my online calendar for the first cycle. I will also put in reminders for ordering more and for the second infusion. The hospital sends me email reminders for appointments and I can always check the portal for upcoming stuff. So use the electronic tools available and maybe your spouse to remind you of your schedule if you find yourself forgetting things. I think that happens, chemo or not, as you get older.

OzarkGal's picture
OzarkGal
Posts: 41
Joined: Oct 2017

  

abita's picture
abita
Posts: 1074
Joined: Dec 2017

What?

carrieh's picture
carrieh
Posts: 146
Joined: May 2012

I tried but it was too much...quit. Started working at home as a freelance writer. I did work from bed my last go round. I'd be happy to try to hook you up with some sites I use where you can earn a little extra each month, if you want. I don't visit this site a lot lately, been pretty sick but I'll check my messages like once a week. Best of luck luv! One day at a time. You can do this...we're all tough sometimes and as weak as kittens others...you aren't alone.

abita's picture
abita
Posts: 1074
Joined: Dec 2017

Thanks. I am good though. I just really miss my work.

Simply Southern
Posts: 13
Joined: Mar 2016

Hey guys! I hope everyone is doing well and looking forward to the holidays! I haven't posted very much, however, I do check in and see what everyone is up too. Most of the posts up here give me hope and in my current situation that is what I/We need!! I was diagnosed back in March of 2013. Stage IV CRC. I had a 10cm mass in my rectum. My surgeaon removed the mass, 22 lymph nodes, appendix, one ovary and tube. 25 rounds of radiation, eight cycles of Folfox/5FU (FU-cancer seems appropriate). My first scan after treatment was clear. Didn't last long, Mets to liver in 2014...had liver resction followed by Xeloda for a year. (8 caps a day, two weeks on/one week off). Mets to lungs in 2015...another year of Xeloda. Took 6 months off of chemo and added CBD/THC which didn't do to much for my tumors but I'm not giving up on that regimen. I have read on numerous occasions if you've been on chemo for years copled with radiation that it can take longer for that to work.  I recently (against my better judgement) went back on the drip chemo. I have a new met that is in my cervix. About 4cm. Doc said that if I didn't go back on chemo (Folfiri, so far 5 cycles/ just added Avastin-1 cycle of that so far) that the tumor could go through my vaginal wall so back on chemo I went! I continue to take the CBD/THC (Oncologist approved) in hopes of that adding to help the chemo...plus it helps with diarrhea, nausea, and most of all my appetite!!!!!! I actually gained three pounds in between my last treatments! just had a scan showing that all of the tumors are stable. No growth, no new ones, but no reduction....With all of that being said, I have worked the entire 5 years since diagnosis with the exceptions of surgery recoveries! I feel so blessed to be able to go to work. I feel like it keeps me alive and moving. I just feel better once I get up and get dressed and get moving! Myself and my entire family have just recently purchased fit-bits. Holy cow at the motivation this has caused. Noone wants a cancer/chemo patient to out walk/run them so it has been so much fun with the friendly family competition. i out walk them most days...then I fall way behind on my chemo weeks (like 3000 steps, tops for two days ) so as soon as I get unstrapped from that dreadful fannie pack (I call her Jezzi the hooch) I feel so free...then the competition is back on full force! IMO (if you are able) is to keep moving!!! If we stay still for too long I think we wither away.   I haven't enter acted with you guys very much but would love to start! I hope you all have a Merry Christmas!!! Praying for Good health and happiness for you all! I am super excited to spend some much needed family time! Xoxo 

kojack007
Posts: 6
Joined: Dec 2017

I completed my chemo and radiation and was able to continuing working.  At the time I was exercising daily for 2 hours in the gym.  Diet is a BIG factor in staying energized and healthy.  I switched to lots of fruits and veggies very little red meat and lots of water.  I also consumed 50 bitter apricot seeds a day. I feel it made a difference because when the test on the section of colon they removed came back the tumor was completely gone.  Now XELODA I would say no.  I say this now because i fell into the having the Rare side affects.  Even the heart failure which i owe my life to the wonderfall staff at the hospital for reviving me.  Yes the Doctors believe the heart failure was caused by the Xeloda.  This all started for me March 2017.  

abita's picture
abita
Posts: 1074
Joined: Dec 2017

I actuallly have just bought veggies and seitan to get lots of protien and vitamins. I am trying to get as healthy as I can before my liver surgery. After my colon surgery, I was so fatigued i ate mostly microwave frozen meals. I have been trying to drink at least 9 cups of water a day. I figure it is hard on my liver and kidneys to process all the chemo drugs so need more water.

What is Xeloda? Why did you take it after you finished the chemo and radiation. Amazing that it got rid of your tumor. My markers are lower. I do hope that means the tumors are shrinking.I am on Folfox, leucoverin, oxiplatin, and 5fu.

Mikenh's picture
Mikenh
Posts: 779
Joined: Oct 2017

Xeloda is the pill form of 5FU.

kojack007
Posts: 6
Joined: Dec 2017

 Xeloda,  or Generic Capecitabine is a chemotherapy drug used to treat different cancers, including breast, colon, rectal, stomach, oesophageal and pancreatic cancers.

The list of possible side affects is quite long.  

I was prescribed Xeloda after I had finished everything else as a precautionary step to help increase the odds of cancr not returing.  When initally found i had about a 4 to 4.5 cm tumor with an agitated lymph node several inches above the rectum.  They classified it as rectal cancer.  I did 8 weeks of chemo and radiation along with taking 9 grams of apritcot seed extract., that was my own research for the apricot extract. Then surgery in August to remove the section of colon and place temp colostomy.  I had the temp colostomy reversed on Oct 25th this yr.  At this time I am clear.  

kojack007
Posts: 6
Joined: Dec 2017

Please take the time to recognize what does not feel right when taking xeloda.  When I first started by the 3rd day of my first cycle I had aches and pains in my head jaw neck shoulders and chest.  It seemed to move around my body it would only last a few minutes several times a day.  When it started in my chest my oncologist told me to stop and go see my cardiologist.  He checked me out and the heart was healthy and strong.  I started again and one and a half weeks into my second cycle with out warning i collapsed at work talking to a visiitor.  I was revived by CPR and one jolt from the AED.  After the doctors checked me out and ran tests on my heart it was strong and no issues.  It seems they think the xeloda messed with the electrical signals and i had heart failure. I am very blessed to be here right now  This is the very rare side effects and I just happen to experience them.  That just happened on 12-20-17.  

Trubrit's picture
Trubrit
Posts: 5532
Joined: Jan 2013

What an awful experience. I'm happy to hear you had good people around you, and you're here to tell the tale. 

Welcome to the forum.

Tru

caregiver3
Posts: 49
Joined: Oct 2017

He was really hoping and believing that he could continue working during his treatments, but from the colon surgery and being restaged to stage 4, and now chemo, it has kicked his butt!  He has so many side effects.  And he's losing so much weight and not able to eat well.  And there is hopefully a liver resection in the next few months too.  It has been really hard on him, he has worked all his life since he was a teenager.  He has gone from a very active person, to not being able to leave the bed some days.  It has been very sad to watch.  It seems like everyone is different, but in our case there is no way he could be working right now. 

Pages

Subscribe to Comments for "Is anyone able to work during chemotherapy"