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Cervical Cancer

Amberdoll
Posts: 1
Joined: Nov 2017

Is there anyone out there with cervical cancer? I have been stuggling to find someone out there that I can talk to about my cancer that understands what it is that I am going through. I have a great boyfriend who has had throat cancer but it just isn't the same. So if you are out there please let me know I am not alone.

 

Thanks

Alikatt
Posts: 1
Joined: Dec 2017

Hi Amber,

i have cervical cancer. Diagnosed May of this year. I just joined, same reasons, need to talk with someone with similar experiences. This is terrifying!

scorpio104
Posts: 2
Joined: Dec 2017

I had had cervical cancer, went through internal radiation, external radiation and chemo.  Then it came back in some

lymph nodes in my neck.  had chemo again.  right now, in remission since March.

Shancee
Posts: 1
Joined: Jan 2018

New to this, just diagnosed and very afraid. 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2699
Joined: Mar 2013

Ladies, it can be a little quite here sometimes so I would suggest the National Cervical Cancer Coalition as well. 

https://www.inspire.com/groups/national-cervical-cancer-coalition/

Jewelzaz's picture
Jewelzaz
Posts: 4
Joined: Jan 2018

Hello ladies. I also have cervical cancer. Dx was in November 2017.  I have had chemo and external radiation. I have an appointment on Feb. 14th to get a 2nd opinion because the place I was getting help and treatments from weren’t listening to me, and continued to cause me stress on top of an already stressful situation. It is scary. It is tough. In talking to folks on here about any cancer I’ve been encouraged.  I know what you mean by a different cancer. I’ve had a few people who know of a different kind and compare it to what they know and the treatments, meds, side effects, etc are not the same. 

Route66woman's picture
Route66woman
Posts: 3
Joined: Nov 2017

Hope your appointment today goes well for you. Thinking of you!

Route66woman's picture
Route66woman
Posts: 3
Joined: Nov 2017

I was diagnosed with cervical cancer in September 2017 and have been through targeted radiation and weekly chemo and now on a follow-up chemo regime that was successful with ovarian cancer patients. Then PET scan to see if any of this has helped. My chances of cure aren't great, that's for sure. We'll see. Scary place to be, this in-between space we all live in!

CynMae33's picture
CynMae33
Posts: 1
Joined: Feb 2018

I have recently been diagnosed with cervical cancer. A few moths ago I had my first abnormal PAP. I was referred to a Gyn for a colposcopy which showed CIN 3 squamous cell lesions. From there I had a LEEP procedure two weeks ago and was told the cells are cancerous. Tomorrow I will have my first appointment with the Gyn oncologist for a consult and am very stressed out about it and scared. My family has been a great support as well as my friends. But as you know its even better to be able to talkyou are going through. Reading your stories has been helpful because it reminds I am not alone and I too will survive this.

Aztex
Posts: 1
Joined: Mar 2018

Hi, I too was diagnosed in Oct. of 2017. I had a radical hysterectomy and my margins showed no cancer which was great.  A week after surgery got an infection and developed a fistula,I now have a catheter and double nyphrostomy tubes. This is certainly not fun waiting on another specialist to see if they can repair it. When I started having symptoms I was not forceful enough with the Dr. staff and perhaps it would not be this bad. Research your people and make sure you feel comfortable even if you have to wait to get another Drs. Opinion.  I have definently gone through depression but I do have good support and I hope the same for everyone. I am glad I found this site.

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2699
Joined: Mar 2013

Aztex, I am sorry to hear the extra problems that have developed since your surgery and have had to deal with it for all this time.  Don't worry about what you didn't do in the past but use that for the next round you will have.  I am glad you have a good support system - that is wonderful

summerlclark4
Posts: 1
Joined: Mar 2018

You are not alone. It looks like from your date, we were diagnosed very close to the same time. Are you still going through treatment?

mkwins
Posts: 3
Joined: Jun 2018

I had Cervical Cancer back in 1996.  Didn't know it was cancer until they did a partial hysterectomy.  Due to that I had 6 weeks of external radiation and three doses of internal radiation.  I am a survivor.  Keep positive.  Get all the support you can from friends and family.  You will get through this.

Ronsmom
Posts: 1
Joined: Sep 2018

How are you doing now? My mom is stage 3b. The doctors said she needs radiation and light chemo. hopefully all works out 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2699
Joined: Mar 2013

mkwins - thank you for posting and congratulations on 22 years!  I think it is helpful for others to know there is hope and success when facing the beast.  Congrats!

Brendilou
Posts: 4
Joined: Sep 2019

Hello. I have just joined this group. I have seen many of your posts and appreciate all your encouragement to the ladies on this sight. Keep it up!

B

juby
Posts: 1
Joined: Jun 2018

Hi i am new to this, i was diagnosed in April with stage 3b cervical cancer i have just had my first Chemo treatment and feeling really scared-just like to say a big hello to everone.

Brendilou
Posts: 4
Joined: Sep 2019

I just joined this group and wanted to get in touch with some of the newer posters. Read my post this month.

B

catcon49's picture
catcon49
Posts: 398
Joined: Aug 2008

My daughter is a cervical cancer survivor. She finished 35 external radiations and 7 internal radiations. Only to find out last week it came back in para aortic lymphnodes(2). Only 1cm. So more radiation. I’m looking for survivors of this so I can tell her

Brendilou
Posts: 4
Joined: Sep 2019

I just joined this group and wanted you to read my post for your daughter.

B

pjrmar's picture
pjrmar
Posts: 1
Joined: Jun 2018

I have been battling cervical cancer due to high risk HPV Virus.  Any news on antiviral medication for these high risk virusesa?

MommaP
Posts: 2
Joined: Sep 2018

I was diagnosed with cervical cancer, stage 1b1, in January of 2018.  The diagnosis came as a result of the pathology of a total hysterectomy for endometrial cancer (1a).  Since I had the wrong type of surgery (not a radical) and no lymph nodes removed, it was decided to do 5 cisplatin treatments with 25 external and 2 internal radiations.  Just wondering if any of you who have finished treatment have experienced back pain?  

Anamckeown's picture
Anamckeown
Posts: 1
Joined: Apr 2017

HI! I was diagnosed 1B1 as well and had chemo, internal & external radiation & eventually a hysterectomy in 2016. Ive had lower back pain off and on since. The radiation (I think the direct treatments) damaged my bladder, ureters & bwoel and I now have a colostomy and urostomy. I don't say that to scare you but i do wish I would have known that it was possible when I first started to have symptoms. I;ve had several surgeries and that could be the cause as well. Honestly I just think pelvic radiation is just so tough on your body...

Brendilou
Posts: 4
Joined: Sep 2019

Hello. I was reading about some of the difficult struggles some of the ladies here are going through with skin burns and digestion issues. I have cervical cancer that has been treated with sculpted external and internal radiation. No surgery, too advanced with abdominal lymph node invovement. Diagnosed February this year, symptoms started last year, September, but I didn't know or think it was cancer because 7 months earlier I had a uteran scraping and biopsy that was benign. Well, by March this year, the uterus, and vagina had involvement. This is clear cell adenocarcinoma, agressive and rare. I couldn't tolerate the chemo after one treatment, I was too weak. So, I opted for just radiation.

It has now metastacized to lymph nodes in chest and neck. But the abdominal and pelvic area treated is healed with no evidence of disease! I am praising God for that miracle.

I want to tell you all of the help I have found for the mucosa lining (skin) burns. Marshmallow root capsules healed my husband's mouth and nose sores from his chemo treatment in 2017 for colorectal cancer, so I used that for vaginal and colon skin repair. It has helped with the scarring of vagina and using the dialator is not too painful. I think it might also be helping the intestines heal. I have had a lot of digestional issues.

During radiation, I used aloe vera gel for vaginal burning. It burns at first, but goes away and it healed that area very quickly.

Something I started doing for digestion and lymphocyte improvement is rubbing castor oil on my abomen over the liver/ribs and spleen area. It improves lymph circulation and helps the stool to evacuate more regularly. I have many stools per day, but they feel like a more clean evacuation and not liquid diarrhea anymore.

My DO also recommended L'glutamine for nerve and skin repair, I think. I have to go back on that.

I am currently in treatment for stage 4 with Keytruda, an immuno therapy. Anyone with experience here, with Keytruda, I would really like to chat. This has progressed outside the treatment area in the lymph nodes to chest and neck. So, now dealing with stage 4. But, my eyes are looking up where my hope comes from. 

My heart goes out to all of you that are struggling and looking for some answers. Wish the medical community would give us more help managing side affects naturally. That is why I am posting. 

You are not alone.

B

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