Max57 Member Posts: 175 Member
edited November 2017 in Kidney Cancer #1

I had done my scan lab and chest  last week ,today I meet with my doctor and its NED !! The doctor moved me to one year scan,,, she said  you are stage 1 and after 2years we did every 6 months scan  we should move now to one year ...please advise me is this the right guidelines or should I push for another 6 months scan ....any way good karma to all here in csn



  • Wehavenotimeatall
    Wehavenotimeatall Member Posts: 488 Member

    Can’t answer your question but pleased you are on the right path

  • AnnissaP
    AnnissaP Member Posts: 632 Member


  • Gtngbtr58
    Gtngbtr58 Member Posts: 206 Member

    Nice-continued good health!!

  • icemantoo
    icemantoo Member Posts: 3,360 Member
    Yearly scans


    To me yearly scans sound OK for you, but I'm not a doctor.




  • Retcenturion
    Retcenturion Member Posts: 240 Member
    edited November 2017 #6
    Good news

    Congratulations on scans. Thanks for sending positive news!

  • daisybud
    daisybud Member Posts: 535 Member
    Congrats !

    Mine was 2.5 cm and that's the schedule my Dr said I would follow too.  

  • Trucker1
    Trucker1 Member Posts: 82
    edited November 2017 #8

    NED is # 1!!

  • Allochka
    Allochka Member Posts: 1,022 Member
    Congrats on NED!

    Congrats on NED!



  • Jan4you
    Jan4you Member Posts: 1,330 Member
    YAAAY for NED~~thanks for

    YAAAY for NED~~thanks for sharing!

    I was moved to yearly monitoring after 1st year, I believe.

    Continued good reports!


  • APny
    APny Member Posts: 1,995 Member
    Yay, super good news. I was

    Yay, super good news. I was stage 1 and they moved me to yearly after 3 years. But they did say I could continue with 2 x a year if felt more comfortable doing that. I said no thanks. Once a year anxiety is quite enough.

  • Max57
    Max57 Member Posts: 175 Member
    Thanks all !

    Thanks all and happy Thanksgiving....God bless all

  • Mighty Frog
    Mighty Frog Member Posts: 152 Member

    Keep it up! Just listen to your body...... 

  • Shecka1121
    Shecka1121 Member Posts: 117 Member
    Hi.  Congrats on NED.  I was

    Hi.  Congrats on NED.  I was 1.2 cm and stage 1a as well. I followed 6 months scans for 2 years and moved to annual.  Dr wants me to have annual for the rest of my life.  



  • Optimisticgirl
    Optimisticgirl Member Posts: 82 Member

    Another reason to be thankful this year! Wishing you a lifetime of NED!

  • Max57
    Max57 Member Posts: 175 Member
    Thanks all !

    Without you my friends it would be really hard 

    Live you all 

  • Ree_Maryland
    Ree_Maryland Member Posts: 161 Member
    Max57 said:

    Thanks all !

    Without you my friends it would be really hard 

    Live you all 


    I was stage 1b , had follow up 5mts later than one year apart,coming up on fourth yr in April .CONGRATS ON THE NED .

  • Mary H.
    Mary H. Member Posts: 17
    I had scans at 6 months the

    I had scans at 6 months the first year.  Then annual scans until year 4.  Now I have scans every two years.  I'm 7 years since surgery and there's never been a trace of anything concerning since 1/4 of my kidney was removed along with the tumor.

    Hope you have continued good luck!

  • Never give up
    Never give up Member Posts: 2
    edited December 2017 #19
    Timing of scans

    Hello, I have been stage 4 for 2 years with no "new" areas to monitor. I'm allergic to the dye and find the whole process of getting a scan, seeing the doctor, and paying the bills (my deductable for scans has increased from 5% to 20%), all very stressful. Take a break for a year, then after your next scan reexamine your frequency. I have found that for me, living with cancer is the hard part. Reduce stress as much as possible, take care of yourself, it's ok to be freaked out by the whole thing. 

  • Rockspin
    Rockspin Member Posts: 77
    Congratulations! Wonderful

    Congratulations! Wonderful news.

  • ImNotDeadYet
    ImNotDeadYet Member Posts: 244
    Outstanding news!

    Very happy for you!