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NED !

Max57's picture
Max57
Posts: 167
Joined: Mar 2015

I had done my scan lab and chest  last week ,today I meet with my doctor and its NED !! The doctor moved me to one year scan,,, she said  you are stage 1 and after 2years we did every 6 months scan  we should move now to one year ...please advise me is this the right guidelines or should I push for another 6 months scan ....any way good karma to all here in csn

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Can’t answer your question but pleased you are on the right path

AnnissaP's picture
AnnissaP
Posts: 632
Joined: Sep 2017

Congratulations!!!!!

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 205
Joined: Oct 2017

Nice-continued good health!!

icemantoo's picture
icemantoo
Posts: 3282
Joined: Jan 2010

Max,

To me yearly scans sound OK for you, but I'm not a doctor.

 

 

Icemantoo

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Congratulations on scans. Thanks for sending positive news!

daisybud's picture
daisybud
Posts: 491
Joined: Jan 2016

Mine was 2.5 cm and that's the schedule my Dr said I would follow too.  

Trucker1's picture
Trucker1
Posts: 82
Joined: Sep 2017

NED is # 1!!

Allochka's picture
Allochka
Posts: 929
Joined: Nov 2014

Congrats on NED!

 

 

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

YAAAY for NED~~thanks for sharing!

I was moved to yearly monitoring after 1st year, I believe.

Continued good reports!

Jan

APny's picture
APny
Posts: 1988
Joined: Mar 2014

Yay, super good news. I was stage 1 and they moved me to yearly after 3 years. But they did say I could continue with 2 x a year if felt more comfortable doing that. I said no thanks. Once a year anxiety is quite enough.

Max57's picture
Max57
Posts: 167
Joined: Mar 2015

Thanks all and happy Thanksgiving....God bless all

Mighty Frog's picture
Mighty Frog
Posts: 148
Joined: Jul 2017

Keep it up! Just listen to your body...... 

Shecka1121
Posts: 114
Joined: Apr 2015

Hi.  Congrats on NED.  I was 1.2 cm and stage 1a as well. I followed 6 months scans for 2 years and moved to annual.  Dr wants me to have annual for the rest of my life.  

 

 

Optimisticgirl's picture
Optimisticgirl
Posts: 82
Joined: Aug 2017

Another reason to be thankful this year! Wishing you a lifetime of NED!

Max57's picture
Max57
Posts: 167
Joined: Mar 2015

Without you my friends it would be really hard 

Live you all 

Ree_Maryland's picture
Ree_Maryland
Posts: 158
Joined: May 2014

I was stage 1b , had follow up 5mts later than one year apart,coming up on fourth yr in April .CONGRATS ON THE NED .

Mary H.
Posts: 17
Joined: Sep 2017

I had scans at 6 months the first year.  Then annual scans until year 4.  Now I have scans every two years.  I'm 7 years since surgery and there's never been a trace of anything concerning since 1/4 of my kidney was removed along with the tumor.

Hope you have continued good luck!

Never give up
Posts: 2
Joined: Nov 2017

Hello, I have been stage 4 for 2 years with no "new" areas to monitor. I'm allergic to the dye and find the whole process of getting a scan, seeing the doctor, and paying the bills (my deductable for scans has increased from 5% to 20%), all very stressful. Take a break for a year, then after your next scan reexamine your frequency. I have found that for me, living with cancer is the hard part. Reduce stress as much as possible, take care of yourself, it's ok to be freaked out by the whole thing. 

Rockspin
Posts: 77
Joined: Aug 2017

Congratulations! Wonderful news.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 244
Joined: Apr 2017

Very happy for you!

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

Thats the goal.  Now get out there and celebrate life!

Donna~

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