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FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

Hello and a big thank you to the many knowledgeable and active participants on this board -- I've been lurking for a couple weeks and I have learned a lot from your questions and experiences.  Thanks for sharing!

I am 50 and live in SW Florida.  I was recently diagnosed with PCa (Gleason 3+4=7) and am scheduled for DiVinci assisted RP on Friday (9/1/17).  I have a few questions I was hoping you sages might be able to help me with.

I entered my full test result history in my About Me page including transcribed sections of my test results (why in the world are faxes still a thing?).  The short version is PSA was last tested at 6.2, phi just shy of 70.  DRE was negative.  Got fancy MRI and then fusion biopsy resulting in a my Gleason 7 diagnosis.  I'm pretty comfortable with my choice of surgery as my initial treatment.  I have read some of the accounts of less than positive experiences with surgery but I am much more concerned with cancer than incontenance or ED.  I'd prefer to get it out and leave radiation as a backup.  I do have some questions about my results and the RP experience though.  Here are the ones I can remember right now... brain seems to be operating at 25% efficiency since diagnosis:

1) I managed to not ask either my Uro or the surgeon about what stage I'm at.  The whole subject confuses me still.  I really don't know much about cancer and thought your stage was just a number but it seems they are more detailed now?  Can it be determined just from the test result info I put on my About me page?

2) I'm a bit worried about how many areas of my prostate seem to have cancer, though it seems most of it is 3+3 and just one section measured 3+4.  When my Uro discussed the biopsy results with me it sounded like all signs pointed to the cancer still being contained in the prostate (though, of course, don't really know until they can examine the whole gland).  However looking at the actual report I see this bit in the section for the second MRI detected lesion: "FOCAL PERINEURAL INVASION IDENTIFIED."  Trying not to freak out. How bad is this finding?

3) After RP, how quickly does PSA typically fall?  If it is going to go undetectable, does it take long?

4) I've never been catheterized.  It's obviously going to be fantastically annoying but how painful is it typically?

5) During the first week of recovery how knocked off my feet can I expect to be?  Is the catheter the most limiting thing or is fatigue & pain from the surgery going to keep me drooling on the sofa?  My only previous surgical experience was for sleep apnea and that was a brutal recovery.

6) How long did it take you guys to get back to taking walks, treadmill, regular exercies, etc.

Sorry for all the questions!  I have more cluttering my mind but that is really too many for one post.

-Tom

SubDenis's picture
SubDenis
Posts: 130
Joined: Jul 2017

Tom welcome and great questions.  I am reasonably new and cannot answer all your questions.  One of the stage decision points is the result of the DRE, palpable or not.  If not stage 1x, if palpable stage 2x; where the x has other factors.  I had a blockage post biopsy and had to be cathed and it was a brief moment of intense pressure/ pain.  But that may be different post surgery.  

 

I loved and get your comment about runny at 25%.  I am convinced we need to slow things down to allow the information to really process before jumping into the solution. I would encourage you to keep asking questions.  I am heading to LA for the PC conference to help educate myself.  Most of the big docs are they're doing presentations and this is a patient focused conference so many of us will be there to connect with and learn from.  I wish you well. Denis  here is link to conference http://pcri.org/2017-conference/  

here is link to conference http://pcri.org/2017-conference/  

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

Thanks!  I didn't even know that conference existed.  Maybe next year?

 

-Tom

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3280
Joined: May 2012

With all of the other guys, I welcome you Folorida Tom.  I note that your surgery is only two days from now.

My experience post-DaVinci was similiar to what Cleveland wrote earlier, so reread his post after mine, if you need a refresher.  You joinded here post-treatment-decision, which is rare but refreshing; it allows you to avoid the usual "Surgery vs. Radiation" brawls that so often occur.

PSA will plummet very rapidly after removal. I was tested at 3 months post-op undetectable.  Note that undetectable, depending on the test used and its sensitivity, is not necessarily all mathematical zeros.  I have been undetectable comming on 3 years, and none of my results did not have some figures to the right of the decimil point. But it is still clinically undetectable, and as such indicates full removal of all of the PCa.  Your doctor will explain this more fully.  By comparison, following radiation (even fully successful radiation) PSA ordinarily wanders about for a long time seeking a nadir, sometimes as long as two years.

Perineural invasion means that some PCa is detectable inside the sheathing or insulation around the nerves that pass through the gland.  It does not establish by itself whether PCa has in fact exited the gland along the nerves, but the pathology report post-op should answer that question.  Another thing that the pathology study will confirm is your Staging; increases from the Stage suggested by the biopsy is notuncommon, and in fact my staging was changed from t1 to t2 by the pathology report.

I was in very significant pain for maybe 3 days after surgery, but was walking the next morning, and go up and moved about a good deal from Day 1.  I do not think I took any narcotic after 3 days or so.   My cath was removed after 5 or 6 days, and is painless.  I wore a diaper 1.5 days, and never again needed one. I wore "pads" probably longer than necessary, at least several months, and "Liners" for very light episodes beyond.  In under a year my continence post op was BETTER than before surgery, because I had serious BPH for so many years earlier.  I am sure you have been trained in Kegel pelvic floor exercises.   But as Cleveland also noted, there are normal ranges for recovery; some few men fall well outside this common values, for a variety of reasons.

Potency returns more slowly than continence for around 100% of the writers here.  Begin cialias almost immediately post op, to retain blood flow in the vasculature.  This will reduce atrophy, but will not lead to erections.  Maintaining blood flow is critical in assisting toward long-term recovery.  Six months or more before spontaneous partial erections is not uncommon, and for many men it takes over a year.

Godspeed, and please let us know how it goes,

max

 

Clevelandguy
Posts: 441
Joined: Jun 2015

Hi Tom,

I had a RP DiVinci almost 3 yrs. ago and my PSA is still undetectable.  Your PSA should fall rapidly within the first six months.  If I remember correctly mine was undetectable at the first six month PSA test.  I was in the hospital overnight and went home the next day with the cath.  The cath is the worst part of the whole recovery/surgery thing.  I had no infections but the cath was very irritating at the tip of my member.  I used Neosporanin which helped but you will so glad when they pull it out in about 10 days.  I stayed inside while the cath was in and did laps every so often around the inside of my "track" in the house to keep the blood flowing. I was up and moving around eating, walking the next day after surgery.  I had some light pain in the groin/adomen area for a few days but nothing that Tylenol could not handle.  Once the cath was out I was told I could go back to work with no heavy lifting for a few weeks.

I was just so glad that the cancer was removed from my body(hope it stays that way).  The urine leakage started out about two pads a day and today I just wear a light Depends tucked in my normal underwear to catch the occasioanl drip after I pee or stretch a weird way.  ED is about 95% of normal, it took me about 1.5yrs. to get back to the 95% level.  From what I read here my results are somewhat typical, recovery does vary from person to person. One person here had a very bad reaction/results from a RP but it appears he is making some progress towards recovery.  Good luck, send me a Private Message if you want more detailed info.  Good luck.................

Dave 3+4

contento
Posts: 76
Joined: Jul 2017

Tom, good luck on your upcoming surgery. In my case the surgery went extremely well. I was in the hospital for 2 nights. I was walking around the hospital , with some pain , the day after the surgery. Mostly scared that I would have to cough or sneeze. After I went home It took me about 3-4 days before I could really move around the house. The catheter was in fact the worse part . I can't say there was pain , it was just uncomfortable. I wasn't used to having something sticking out of my thing ! In any case no real pain just a pain in the neck ?? Also there was zero pain when it was removed , I think  it was 10 days later ? At the time I was worried about that. I went back to work in about 3 weeks and in hindsight I probably sould have given myself another week. I believed I had to use pads for a few months. after that I was and am still ok. My psa was non detectable on my first psa check after 3 months.

Again good luck -- contento 

Lucky64
Posts: 29
Joined: Jun 2017

Tom,

 

Good luck buddy! I know there's only 1 day left, but you need to get some supplies. Check out this thread of mine:

http://www.healingwell.com/community/default.aspx?f=35&m=3889239

Nick

 

Grinder
Posts: 438
Joined: Mar 2017

Also had Davinci RP just over a year ago. I had no pain at all afterward. Never took pain meds either. The catheter is always a nuisance to deal with, but I had already had many in over the course of a prostate infection. The most important thing about the Foley catheter like CG mentioned... Keep it sterile. During one of my Foley durations, it got infected and I was peeing a beige liquid mixed with excessive blood. So keep sterile wipes and like CG suggested Neosporin or some antiseptic to wipe down everything that is even close to the tip. I even used to wash out the leg bag and night bag and tubing with colloidal silver. 

So as long as the catheter is kept sterile, it is just a temporary nuisance.

Max is right, sometimes this forum is like the WWF. But we all are here to help, encourage or warn other guys, we just have taken different approaches from our different experiences.

One month after RP my PSA had fallen from 18 to 3, the result of residual antigen remaining. After six months it was undetectable and still is.

During my recovery there was no fatigue, no pain, no other residual side effects besides expected incontinence and ED. Take Depends along when Cath is pulled so you don't spray the office like I did after I got off the table. Incontinence is cleared up about 95% and ED is getting there too. 

BUT the one side effect that surprised everybody... Your business tool will be shortened by one to two inches. That has been the major complaint about some of the anti-RP guys, and it is bad news. When the prostate is removed a one or two inch section of the urethra goes with it. Then the remaining urethra is pulled up to reattach, shortening the penis by that much required to reattach.

I hope you are starting out with an acceptable size that you can lose a couple inches. It also affects the length of erections by a similar ratio. So... You have been warned. I am now uncircumcised, I actually have a foreskin now and that I do not like. Maybe there should be an option during RP that the surgeon can be a mohel and perform a circumcision during RP. Laughing

But that is the worst of it for me, so all's well that ends well. 

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

This forum has really made a huge difference for me.  Thank you to everyone who took the time to read my questions and respond.  I feel much more confident that I understand what is likely in store for me.  You guys are the best!

While I'm not looking forward to the surgery and recovery, but I am definitely looking forward to being on the other side of it.

Thanks!

-Tom

VascodaGama's picture
VascodaGama
Posts: 2989
Joined: Nov 2010

Tom,

Best wishes for an eventless smooth and successful surgery. I was also 50 years old at my open surgery back in August of 2000. We have different starting diagnosis so that we cannot compare outcomes, however, from your shared info at your my page, I would think that you got a voluminous micrometastases case similar to mine. In answering your questions from my experiences;

1) The clinical stage is assumed/provided by the urologist based on findings from tests, biopsy results, DRE, image studies and experience of the doctor. Your data stages you at T2c. After RP, the analysis on the specimen (the gland, vesicles, nerve bundles and lymph nodes (if dissected) will confirm and provide the final pathological stage (this is the proper medical term) that will judge any future predictions.

2) PNI indicates that cancer was located at the nerves bundle. This is just an alarming flag to possible spread but not confirmed. Your worries are justified as this is known as the route taken by the bandit to travel out of the gland. They will refer to that in the upcoming pathological stage.

3) Our body takes about 10 days to clean circulating extra PSA serum. At 15 days post RP your PSA is already reliable for judgments. Many doctors wait one month to test the PSA and such is enough to verify the surgery success. The PSA should be less than 0.05 ng/ml.

4) Open surgeries requires longer periods of hospital stay. during my catheterization I never experienced pain caused by the catheter but I constantly used a cream at the tip of the penis to keep it moisturized. It was annoying to have something attached to my leg and the smell of urine, but I managed to take daily showers, walk at the hospital corridors and do little physicals. During the first three days I had to place the urine in a jar for analysis at the hospital laboratory (they controlled everything including my diet).

5) I never experienced fatigue but I had medicine tubes attached to my wrist, probably influencing my feelings. In the second day post operation I was already walking at the corridors pushing along a tripod with attached dripping medication and urine sac. I did that two times daily and felt great. My doctor recommends light physical exercises to the patients for full recovery. 

6) The time required to normalcy depends on the recovery process. DiVinci surgeries have faster recovery times. Your doctor will tell you about your conditions.

Best wishes and luck,

VGama

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

I really appreciate the time you  put into replying each of my questions!  Its a lot to absorb and a little scary but it is always better to be well informed.  Thansk again,

-Tom

hewhositsoncushions
Posts: 269
Joined: Mar 2017

Good luck!

I hope it goes well. When you are recovering TAKE IT EASY. It is very easy to overdo it and tire yourself out. Keep hydrated, keep popping those laxitives and pain killers and watch your wounds - you may need dressing if they weep. One thing to truly truly look forward to is the removal of your catheter. After two weeks on that damn thing losing it beats coke and hookers hands down for the sheer joy of living :):)

@Grinder - you are right about soft length but I found Mr Happy was not far off his original dimensions but I have lost a lot of weight so that factors in. I'm seeing my ED chap fairly soon - will report back any useful information.

C

GeorgeG
Posts: 127
Joined: May 2017

Let pain be your guide for how much you can do. Safety pin the cath bag to the end of the bed and remember its there when you get up. Use the big bag all the time to prevent acidents. I flew home on the third day and took one pain pill that day. Your scrotum may swell and thats kinda freaky but it didn't hurt much. It resolves on its own. Cath removal is pretty painless. I took my own out and removed my own staples. Don't get constipated, that sucks. I was fairly active after a few days and pretty normal at a few weeks. 100% for sure ny 4 weeks. Had a little tugging and pain internally after I was active but excercise bike and sit ups completely resolved that. I was 100% continent in a few weeks and 50% on erections at a few months. I'm a little shorter but definitely not 2". My penis did disappear inside for a few weeks on occassion. I tried a vacuum pump along with Cialis for a while so maybe that helped. Never got useable erections with the pump but it does get you some length and blood flow. My RP was open.

George

 

Will Doran
Posts: 207
Joined: Sep 2015

Tom,

Sorry to hear of your situation.  You are at the right place to get info as to how our situations are going.  By noiw, you should be home and feeling better.  

I was diagnosed 4 years ago last week. (Aug 2013).  I had no symptoms.  When found, totally by accident, I had a PSA pf 69.  Had biopsy, and found Glearson 3+4 -7. I, like you, opted for the robotic surgery.  I wanted the cancer removed.  Had PR (DaVinci) December 2013. Surgery took 5 1/2 hours becasue of complications from hernia mesh and muscle development.   My PSA fell very rapidly.  I was at <0.010 for almost 3 years.  I was on Lupron for two full years.  That sucked. They had my testosterone down to 17.   I had 8 weeks, 5 days per week, of follow up radiation.  After I went off the Lupron my PSA stayed down a <0.010 for 6 months,  Then as my testosterone started to come up my PSA made slight increases.  I am over 4 years post diagnosis, my Testosterone is back up to "normal" and my PSA was still under 1.  It was around 0.345, 4 months ago.  I have more blood work this coming week (Sept 5->).  The hope is that my PSA will have settled in under 1.  If not, I will have to go back on intermitent Lupron or some other drug my doctor has talked about.  After surgery, the report was that I had 40% involvment, and there was one very small spot in one lymph node.  It was so small that it hadn't shown up in my MRI's.  So far, 4 year later, my scans are still clear.  

As to exercies, My doctors had me on a tread mill two days after surgery.  Not running, but walking.  I was to stay off my Pro Spinner Bike for 8 weeks, but Dr. "M" said I could get back on my bike after 6 weeks becasue of my progress. I had been a hard core road cyclist.    Weight lifting was OK after three weeks.   As Georeg G said "Let Pain be your guide",  I had no pain post surgery.  They gave me some pain meds, but I never used it.  I think it was Trylenol with Codine.

Catheter?  As has been said, more of a inconvenience than painful. When I went to Doctors appointments, I put the Catheter bag in a State Liquor Store bag.  That got plenty of laughs from doctors and nurses.  My GP (former student of mine) had some joint surgery and had a catheter.  Well, Dr. "B" told me that removing the catheter was very painful for him.  So, going by what he said, the day I went to have the catheter removed, I took 2 of those Codine Tylenol pills.  By the time my wife drove me to the doctors, I was in La La Land.  Walked in the doctors place sort of laughing, carrying my catheter bag in a Liquor Store Bag.  The folks in the waiting area were laughing, as was the staff.  The nurse came to the door and started to laugh and called me in.  We got in the room, I got undressed and on the table.  She was getting stuff ready and I was laughing.  I told her I had taken those pills.  She laughed.  So, as we are talking, I said Well, let's get this over with.  She held the catheter up and it was already removed.  I didn't feel a thing. To this day the staff laughs about that and teases me about taking the pain med.  Dr. "M" really teased me.  I'm glad I got to make some people laugh, and the laughter helped me as well. 

I had some leakage problems.  I was still wearing pads, just in case up to 2 weeks ago.  As a result of my surgery, becasue of my muscle development in my thighs, from the road cycling, my doctors had trouble finding the lymph nodes in my right thigh/groin area.  They finally got them, and had the robot do a mirror image which got them right to the lymph nodes in the left side. As a result, I was told this the night of the surgery when my surgeon came in at 10PM to check on me, I developed a hernia and a benign tumor in that groin area.  It was because of brusing during the surger.  It was becasue they were in that right side for a long period of time.  So, this past early spring, that Hernia acted up.  Went in to ER at 3AM. Different surgeon Dr. "H" came in at 4AM ready to do the surgery, but he got the hernia back in and I had surgey two days later. Dr. "H" wanted to have his own staff assist, which in understood completely. Dr. "M" insisted on only the exact staff he worked with were available for my robotic surgey as well.   Hernia is fixed and tumor is gone.  Result, pressure on bladder and nerves has gone away and my bladder control is back to normal.

So, Hang in there Tom.  Your life will change, but it will improve.  Best wishes and know that you are in my thoughts and prayers.  Listen to yoru doctors orders, and I will tell you this-----

DO YOUR KEGELS.   That's after the catheter is out.  I was warned not to do Kegels with the catheter in.

Love, Peace and God Bless

Will

 

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

Well I went in Friday morning for my surgery and everything went very smoothly.  When I woke up from surgery the pain was okay when I was lying still but had a pretty bad ripping kind of feeling when I lifted my head or tried to sit up.  By the next day I got out of bed and took a little walk.  I was still in pain but it felt more like pulling than ripping.  They sent me home Sat and everything seemed fine at first. I took a shower and ate some food.  However after a while I got tired and took a nap and woke up with chills and a 102.5 fever.  Surgeon had me go to the ER.  They started me on a bunch of antibiotics and took a bunch of blood and urine for cultures.  The ER admitted me and it looks like I'll be in the hospital for at lesat a couple more days.  At this point they're not sure what kind of infection I'm looking at.

 

Anyone have a similar post op experience?  Thanks for all your great input and help on this journey.

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3280
Joined: May 2012

FloridaTom,

I never got a post-prostectomy infection, but after my first chemo for Lymphoma my WBC count plunged, causing a fever, which as a precaution did put me  on the cancer floor as an inpatient for a weekend (this plunge of WBC count is very common with numerous chemo drugs).

Like you, constant blood draws, looking for bacterial strains, although the docs knew that I probably did not have an infection.  But they left me on a continuous antibiotic drip nonetheless.  I developed Red Man Syndrom, a side-effect.  I was beet red from the neck to my feet, and had to go on immediate Benadryl regimine to elliminate it.

My only suggestion is to monitor yourself if you are on an IV, watching for heavy itching or bright redness, which can indicate that things are being overdone.

It sounds like the surgery was successful, since you do not report any problems from the surgeon.  Please share the pathology report when it comes in, if you arre so inclined,

max

 

VascodaGama's picture
VascodaGama
Posts: 2989
Joined: Nov 2010

Any RP guy is subjected to such experience. Infection or inflammation is common so that the need for a post op careful recuperating period (at home or at the hospital). I think that those in robotic RP are more prone to such pain and nasty effects/experience as they go home earlier. Open surgeries require longer periods of medication so that one may not feel the same, however, we all recuperate to normalcy.

In your shoes I would stay in the hospital as longer as you are allowed because your follow up treatment got more attentive eyes and hands caring the issues. The medication will treat your situation but it will also influence in the PSA results. Better to wait one month for a trustful test. Try keeping the tip of the penis lubricated.

Best wishes for fast improvements.

VG

 

Grinder
Posts: 438
Joined: Mar 2017

Besides kegels after the Cath is removed get yourself a good vacuum pump. My urologist insisted I get one, not to get and maintain erections, but to draw blood into the corpus cavernosa and spongiosum. This will help substantially in penile rehabilitation. In my experience, it doesn't make for good woodies anyway. But eventually, if your business tool is rehabilitated, it will resume getting hard and not just big and floppy. 

I don't know why some guys lose a lot more length in RP than others, unless the bigger the prostate the more urethra is cut. One gentleman on this forum claims he has nothing more than a "bellybutton" left where his business tool used to be. I have no reason to doubt him, but I would have liked to know why it how it happened. If I had been in this forum and read his account of his experience BEFORE I had my RP, it may have caused me a lot of reservations. Fortunately I did not know about this forum at the time so I was full throttle going in and it has been a lifesaver for me. I only stay on this forum now because I want to encourage guys to seek out the best procedure available for their particular profile.

I had RP done because a friend had it done and strongly recommended it. I am glad he did. Also, my neighbor across the street died of it because he did not know he had it in time to successfully treat it, and he warned all friends and family not to hesitate to get checked and treated.

So yes, I will be hanging around here pushing guys to get checked and treated with the appropriate procedure, and good for you Tom... Better to be taking antibiotics and dealing with a catheter and even lose an inch or two of your business tool than to be six feet under and your widow crying over your grave, just before she sells the house because the memories are too painful of your early departure.

Some day I am going to post a little profile and short history of my neighbor. It will make us survivors feel a lot more blessed to have as many alternatives that are available.

Grinder
Posts: 438
Joined: Mar 2017

Have to mention this too. My wife and I just got over bad colds... And she had a 102 fever like yours as well. It very may well be your immune system was compromised by the operation, and you picked up a common virus in the hospital. Not saying it was, but it could be. These colds have hung on for a hike too. She is a high school teacher and brings all these maladies home and gives them to me, and this one has lasted a while.

There is something called the mechanic's fallacy in which you might think two engine problems are related, when they may not be... They could be separate problems that just coincidentally happen at the same time.

I hope that is all it is. Time will tell. Good luck and God bless on your rehabilitation. Remember, 3 to 6 months or more of incontinence and 1 to 2 years of ED... Hopefully much shorter.

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

Stayed in the hospital from Sat night until Tue evening.  Once they got my fever down it stayed low grade (99 - 100) and since yesterday has been perodically normal.  Whatever it is is under control.  I was discharged and placed on 10 days of oral antibotics.  All the cultures are still negative.  However, the morning I was to be discharged, I suddenly felt a very strong urge to urinate. I've read how common that is with catheters so I didn't worry too much at first.  However when I tried to BM urine leaked around the catheter which made me check my flow -- none.  Called the nurse.  She wanted to further inflate the balloon.  I said no way.  There was a lot of back and forth and waiting for answers which made me very anxious and eventually a lot of pain from a VERY full bladder until I finally got a hold of my surgeon (who was pissed the nurse didn't just flush my catheter).  He was already in the hospital, came up, flushed my catheter, and I experienced the biggest relief of my life.  I half filled the bag.  My nurse and the nurse leader were made to observe.  Nothing but urine came out with the first flush but I clogged up again 30 minutes later and the nurse flushed me and a bunch of blood clots came out.  No problems after that.

This morning I went to get my catheter removed and get my path results.  Got the catheter removed.  Yay! Path results not ready yet due to holiday weekend.  Boo!

My surgeon said, though, that the path results wouldn't really change anything for the next 6 weeks anyway, when I get my first post op PSA test.  *shrug*  I thought if they found stuff in lymph nodes, etc you generally went straight to radiation?  Any thoughts?

Thanks for all your help and support!  It has been invaluable.

-Tom

Max Former Hodgkins Stage 3's picture
Max Former Hodg...
Posts: 3280
Joined: May 2012

Florida,

When I woke up after surgery in post-op, I had a  terrible urge to urinate. I felt like I was going to blow up.  The nurse said the cath was flowing, no problems.  It continued till I was in my room, in agony. The surgeon's NP came in, and said it was bladder spasams from the surgery, and gave me an anti-spasam med, which fixed it. I did not have restrictive flow.

IF radiation were necessary post-op due to the biopsy (and let's hope it is not), a few weeks wait would be meaningless, so relax. The wait will mean nothing regarding outcomes.

max

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

I guess the commonness of full bladder feeling and catheter leakage explains why nobody was in any hurry to help me -- nobody believed I actually had an obstruction.  There was urine in the tube but I could see it hadn't moved (small blood clots) and the level in the bag hadn't increased in hours.  It wasn't really the pain or frustration that bothered me.  I started getting worried there was a more serious complication and they'd have to reoperate or something.  It's not hard to start dwelling on the worst possible conclusion when you are sitting alone in a hospital room.

-Tom

GeorgeG
Posts: 127
Joined: May 2017

As stated, try to relax and recover. Even if radiation is in your future it would be months at a minimum and that may not even happen. 

George

 

VascodaGama's picture
VascodaGama
Posts: 2989
Joined: Nov 2010

Congratulations. You've become a survivor and with it had the first experience in many to come. As George comments, take it easy, now it is the time to recuperate fully. You need to be active with those kegels and ED affairs. Massaging, pumps, viagra, etc, it all helps for faster improvements. You may also check on diets and on a physical program that can be adapt to your life style.

The first PSA will be your marker of success. It should be the one clean from the antibiotics. There is no need to hurry for anything. I would recommend you to get copies  and file all those test results and reports.

It is typical of us survivours to expect the worse, but apart from being educated on the facts we cannot change our karma. We need to learn in accepting the results and act coordinately according to the findings. The best outcome is cure, however, if surgery failure is found, there are a series of procedures to deal with the problem. For the moment you should be celebrating the success of being alive and out of that big operation with no scars.

For peace of mind please note that surgery failure is declared when the one-month PSA is above remission (typically PSA> 0.05 ng/ml). Recurrence is declared when the PSA increases from a previous nadir and gets above 0.2 ng/ml (you are miles away from this to happen). Both occurrences would be dealt with a salvage therapy that commonly involves radiation (your question). In such setting, earlier salvage treatment is not linked to better survivorship but to a longer period of free biochemical failure. Any radiation should only be delivered after complete healing of local tissues (which case takes over 4 months to occur).

Let's celebrate. What do you suggest; a whiskey or a whisky on rocks? I like the single malt.

Best,

VG

FloridaTom's picture
FloridaTom
Posts: 10
Joined: Aug 2017

I really appreciate the support and detailed answer to my questions.  Thanks!

I'm trying to do as much recuperation and celebration as I can but it doesn't seem Hurricane Irma is much impressed with my need to rest.  This is really some fun timing.  I've got our landscaper helping my father-in-law and I.  He is doing all the heavy lifting but there are a million small things that need to be taken care of as well.  Interesting times and all that.  ;)

ps. Before I lost interest in drinking I was also a single malt man.  I'll toast a virtual Lagavulin with ya.

Clevelandguy
Posts: 441
Joined: Jun 2015

Hi,

Glad to hear your surgery was not to bad.  Be sure to keep active and walk but I would not do any heavy lifting or straining.  It took me a little over two years to where the progression of good healing things kinda stopped, so you have a journey ahead of you.   Keep the blood flowing in the groin area by drugs(cialis, ect.) or any other kind of activity, it's important in the healing process.  Hope & pray for many more undetectable PSA readings................

 

Dave 3+4

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