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just had open partial nephrectomy

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

thank you all for preparing me? I can barely stay awake.

BoondockSaint's picture
BoondockSaint
Posts: 242
Joined: Mar 2017

Rest my friend......rest. There will be time to hash out the incidentals soon enough.

Glad you had a successful surgery.

 

icemantoo's picture
icemantoo
Posts: 3280
Joined: Jan 2010

Nepro,

 

Or shoud I say Kidney Pie. Only those who  have been nephed can laugh about it.

 

Icemantoo

Positive_Mental_Attitude's picture
Positive_Mental...
Posts: 454
Joined: Jul 2014

Congratulations.  The worst is over. First couple of days of recovery were a bit painful, but after that, it was easy.  I was walking 4 miles per day 3 days after surgery.

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

For me, it seemed as though I was walking 4 miles per day, 3 days after surgery. It also felt as if I'd been hit by a truck, 2 days after surgery. It was more like maybe 1 mile that I walked. The good news is, all those 5 minute walks add up, plus you'll feel a little better every day (YMMV).

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

that's impressive. i woukd be happy with a BM

 

Steve.Adam's picture
Steve.Adam
Posts: 460
Joined: Oct 2016

That thought transported me back in time...

I know exactly how you feel.

Steve.

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Rest is good...listen to your body. I would recommend to increase your fluids if on pain meds. I thought I was drinking enough but it wasn't. Hoping you have easy recovery.

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

you know what, i didnt drunk much today. thanks for tge reminder!

APny's picture
APny
Posts: 1987
Joined: Mar 2014

Yes, the worst is over. Yay you! Rest is good but walk as soon as they say you can. It will help in healing, keeping your lungs clear, and getting rid of gas and getting things moving, so to speak.

Jan4you's picture
Jan4you
Posts: 1326
Joined: Oct 2013

YAAY, its over!! You are "under the influence" of general anesthesia, with opiates now. You WILL be a bit off, sleepy for a bit!

Let us know how you are doing. We're here for you!

Sending you healing hugs, 

P.S. don't forget ICE compresses are your friend.

Jan

JerzyGrrl's picture
JerzyGrrl
Posts: 760
Joined: Jun 2016

Sleepy is where it's at, at least for starters. You'll get there...!

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

Thanks Everyone. i just got home after two days un hospital. The pain fro intestinal bloating is worse than the incision pain. 3 days of only liquids. I am glad the cancer is gone but I was not expecting this much discomfort.

I hope you are all well.

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

Each day is better now. finally passing some gas. Anxious about pathology

daisybud's picture
daisybud
Posts: 490
Joined: Jan 2016

Gets better everyday.  Wishing you a fast recovery :)

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

thank you :)

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Good to hear your recovering well. The Path report put into perspective the beast was out of my body. Its hard waiting for it. On the American Cancer sight, there is a Page on staging cancer.I found it helpful after seeing surgeon  to explain the report. Positive thoughts for a good report.

NephroMan's picture
NephroMan
Posts: 10
Joined: Aug 2017

thank you. they said just get a scan in a year. i thought sooner. hmm.

BoondockSaint's picture
BoondockSaint
Posts: 242
Joined: Mar 2017

Our Oncologist was suggesting yearly scans too given my wife's stage and path report. However, I pressed him a bit and said that we wanted to do 6 mo. scans at least for the first couple years. He was totally fine with it.

Sometimes you have to be your own advocate. If you feel better with scans closer together, tell them. Either they listen and get it done or you find somebody who will.

glad you are on the good side of surgery. Press on and enjoy life.

 

lobbyist0724's picture
lobbyist0724
Posts: 418
Joined: Sep 2016

Congratulatiions NeprhoMan, please spend sometime to fill out the My CSN Space with your journey, so we can know what you are experiencing :)

In terms of follow up, we should at least follow the guideline from AUA or CUA. I asked my urologist to do US everysound and CXR every 4 months for first year.

 

Wish you a speedy recovery.

APny's picture
APny
Posts: 1987
Joined: Mar 2014

While I hated the scanxiety I'm glad they had me come in every six months for the first 2 1/2 years. I was stage 1 grade 3.

stub1969's picture
stub1969
Posts: 864
Joined: Jul 2016

that too, Nephro.  I'd ask--pretty agressive if needed to be scanned every six months initially.  After you get a few scans under your belt and hear the words "all clear" then annual scans are proper protocol.  This is a sneaky cancer and you want to be on top if it early.  Glad everything went well.  Take it easy and listen to your body during your recovery.  Walk as much as you can and rest.

Take care--

Stub

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

hope you are feeling a little bit better.. it must be great to have that bit over..I only found out a week ago so long way to go

how is the pain

what did the surgeon say

  size was your friend

Wehavenotimeatall
Posts: 489
Joined: Aug 2017

Or enemy ... mortal enemy I should say

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Hey Nephro...hope your feeling better today.

My surgeon gave me the National Comprehensive Cancer Network Guidlines for Kidney Cancer : https://www.nccn.org/patients/guidelines/kidney/index.html#1

Long document but from Path Report and staging you can see the guidelines we are following .I am scheduled  for first bloodwork & scan mid October. Hope this helps.

hardo718's picture
hardo718
Posts: 853
Joined: Jan 2016

The abdominal gas pains can definitely be worse than the surgical sites.  Walking will help alleviate that, so even if you're just walking around in the house, get moving a little at a time and work your way back to your normal.  Best wishes heading your way.  And good luck with the pathology report.  Keep us posted.

God Bless,

Donna~

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